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826 total results
Comments (754)
Hi @azjulie, welcome to the caregivers group on Connect. We have members here who have experience...
https://connect.mayoclinic.org/comment/112032/
discussion: - Current diagnosis is Amyloidosis ... mayocl.in/2cpKVI7 - Diagnosed with AL Amyloidosis
Discussion: Meet fellow Caregivers - Introduce yourself
Support Group: Caregivers
Posted: Aug 30, 2016
Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...
https://connect.mayoclinic.org/comment/169956/
waldenströms-macroglobulinemia/ – Waldenstroms and amyloidosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis
Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia
Support Group: Blood Cancers & Disorders
Posted: Oct 20, 2017
https://connect.mayoclinic.org/discussion/amyloidosis-2/ Hello @nkb2023, and Welcome to Mayo Connect. I see that this is your first post,...
https://connect.mayoclinic.org/comment/1026670/
/connect.mayoclinic.org/discussion/amyloidosis ... link for you to check out about heart amyloidosis ... You mention the Amyloidosis Support
Discussion: Stiff Heart - diastolic heart failure
Support Group: Heart & Blood Health
Posted: Mar 3 10:16am
My husband was diagnosed last year with Cardiac Amyloidosis at Mayo Clinic in Jacksonville FL. We...
https://connect.mayoclinic.org/comment/1069204/
was diagnosed last year with Cardiac Amyloidosis ... this group of Cardiologists have an Amyloidosis ... This medication doesn’t cure Amyloidosis ... Amyloidosis caused his Heart Failure
Discussion: Cardiac Amyloidosis
Support Group: Heart & Blood Health
Posted: May 16 5:26pm
I had IgA kappa MGUS for 8 years, diagnosed this summer with SMM. They tested me...
https://connect.mayoclinic.org/comment/1158835/
They tested me for amyloidosis (fat ... I need a kidney biopsy to rule out amyloidosis ... number of peer-reviewed papers on AL amyloidosis
Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.
Support Group: Blood Cancers & Disorders
Posted: Oct 18 8:14am
@capt209 Hi, Brandon. Just noticed your symptoms, and there may be a few things you have...
https://connect.mayoclinic.org/comment/175189/
About 80% of proven Amyloidosis present ... Symptom of systemic amyloidosis. ... Amyloidosis, probably primary systemic ... Good luck, and get my Amyloidosis story ... from Mayo with Martha Grogan about Amyloidosis
Discussion: Months of Chest Pain - Please help
Support Group: Digestive Health
Posted: Nov 26, 2017
@loribmt Thanks, Lori. Just had my first full dose yesterday; will share my experience with folks...
https://connect.mayoclinic.org/comment/1042514/
watch and wait… By the time my Dx of Amyloidosis ... nonbiodegradable proteins from the Amyloidosis
Discussion: Abnormal bloodwork questions
Support Group: Blood Cancers & Disorders
Posted: Mar 30 3:07am
I was diagnosed with MGUS about 4.5 years ago and now I have been Diagnosed with...
https://connect.mayoclinic.org/comment/1100052/
and now I have been Diagnosed with Amyloidosis ... months and with my new issue with Amyloidosis ... It may change now with the Amyloidosis
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Jul 5 11:53pm
I've just got my diagnosis of AL amyloidosis today after having a bunch of testing and...
https://connect.mayoclinic.org/comment/88311/
#39;ve just got my diagnosis of AL amyloidosis ... radiation in the area that I had my amyloidosis ... said she's never seen Cutaneous Amyloidosis
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Feb 20, 2019