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858 total results
Comments (784)
Hi Old Karl @oldkarl -- I thought about you when I received an email update from...
https://connect.mayoclinic.org/comment/92438/
with hereditary transthyretin (hATTR) amyloidosis ... progression in patients with hATTR amyloidosis ... polyneuropathy from hereditary transthyretin amyloidosis
Discussion: Anyone here dealing with peripheral neuropathy?
Support Group: Neuropathy
Posted: Sep 11, 2018
@sousou Hi, Saida. Glad to help. And for your question, ABSOLUTELY Amyloidosis causes sever constipation. And...
https://connect.mayoclinic.org/comment/179554/
And for your question, ABSOLUTELY Amyloidosis ... A great place to start is the Amyloidosis ... I hope you have downloaded by Amyloidosis
Discussion: Abdominal pain with severe constipation and weight loss
Support Group: Digestive Health
Posted: Jan 4, 2018
Hello @sstouten, Welcome to Connect. I'm sorry to hear about your diagnosis, and so glad that...
https://connect.mayoclinic.org/comment/169956/
waldenströms-macroglobulinemia/ – Waldenstroms and amyloidosis ... connect.mayoclinic.org/discussion/waldenstroms-and-amyloidosis
Discussion: I have been recently diagnosed with Waldenstrom Macroglobulinamia
Support Group: Blood Cancers & Disorders
Posted: Oct 20, 2017
Hi @azjulie, welcome to the caregivers group on Connect. We have members here who have experience...
https://connect.mayoclinic.org/comment/112032/
discussion: - Current diagnosis is Amyloidosis ... mayocl.in/2cpKVI7 - Diagnosed with AL Amyloidosis
Discussion: Meet fellow Caregivers - Introduce yourself
Support Group: Caregivers
Posted: Aug 30, 2016
My husband was recently diagnosed on May with Cardiac Amyloidosis in Mayo Clinic-Jacksonville FL His Kappa/Lambda,...
https://connect.mayoclinic.org/comment/898854/
recently diagnosed on May with Cardiac Amyloidosis ... drug Vyndamax has been prescribed for Amyloidosis ... As a Retired RN I never heard about Amyloidosis ... The word Amyloidosis is new to us.
Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?
Support Group: Blood Cancers & Disorders
Posted: Jul 20, 2023
Amy, just to be sure you understand clearly, I have been studying amyloidosis for about 18...
https://connect.mayoclinic.org/comment/108549/
understand clearly, I have been studying amyloidosis ... primary systemic hereditary light chain amyloidosis ... I bought a very expensive book, "Amyloidosis ... It is free, usually from www.amyloidosis.org
Discussion: Autoimmune diagnosing problem
Support Group: Autoimmune Diseases
Posted: May 19, 2017
Hi again all - I had my first HOCM consult at Johns Hopkins on Friday. The...
https://connect.mayoclinic.org/comment/1175884/
said it was important to rule out any amyloidosis ... Amyloidosis is protein deposits in your ... being able to eliminate potential amyloidosis
Discussion: Why Camzyos instead of surgery?
Support Group: Hypertrophic Cardiomyopathy (HCM)
Posted: Nov 18, 2024
@oliviahutson My husband was suffering from the same symptoms except the bzck issues. He visited the...
https://connect.mayoclinic.org/comment/906775/
cardiologist diagnosed him with Cardiac Amyloidosis ... The amyloidosis was causing all his ... Mayo this week to check which type of Amyloidosis ... Amyloidosis is a very complicated condition
Discussion: Looking for advice: Could this be MGUS, because of low m-spike?
Support Group: Blood Cancers & Disorders
Posted: Aug 3, 2023
https://connect.mayoclinic.org/discussion/amyloidosis-2/ Hello @nkb2023, and Welcome to Mayo Connect. I see that this is your first post,...
https://connect.mayoclinic.org/comment/1026670/
/connect.mayoclinic.org/discussion/amyloidosis ... link for you to check out about heart amyloidosis ... You mention the Amyloidosis Support
Discussion: Stiff Heart - diastolic heart failure
Support Group: Heart & Blood Health
Posted: Mar 3, 2024
Hi @jan52241. Welcome to Connect! I'm sorry to hear you have felt alone in this diagnosis...
https://connect.mayoclinic.org/comment/104684/
mvpdda and @tmousetis who also have amyloidosis ... want to look at this thread on AL Amyloidosis ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Discussion: Current diagnosis is Amyloidosis and multiple myeloma
Support Group: Blood Cancers & Disorders
Posted: Jun 12, 2016