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Comments (2,483)

MS 40+ yrs, RA, Sjogrens, Lupus, other autoimmune. Lots of steroids over yrs, but treatments now...

https://connect.mayoclinic.org/comment/1232847/

MS 40+ yrs, RA, Sjogrens, Lupus, other

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 9 9:36am

I agree with getting a rheumatology consult and with checking vitamin levels. My new neurologist did...

https://connect.mayoclinic.org/comment/1209267/

to rule out rheumatoid arthritis, lupus

Discussion: Could these symptoms be related to SFN?

Support Group: Neuropathy

Posted: Jan 11 3:42pm

I had the exact same experience with Paxlovid! I have lupus, and had regular hip pain....

https://connect.mayoclinic.org/comment/1151326/

I have lupus, and had regular hip pain

Discussion: Paxlovid and Autoimmune Disease

Support Group: Autoimmune Diseases

Posted: Oct 3, 2024

I have what’s called Inappropriate Sinus Tachycardia (IST) associated with lupus and think this is common...

https://connect.mayoclinic.org/comment/1137496/

Tachycardia (IST) associated with lupus

Discussion: Dermatomyositis - tachycardia symptom

Support Group: Autoimmune Diseases

Posted: Sep 6, 2024

@lafee Keith McCormick told me that 40% of his patients on Evenity have joint pain. Evenity...

https://connect.mayoclinic.org/comment/1124850/

with some other health issues (I have lupus

Discussion: Anyone taken Evenity (romosozumab) for Osteoporosis?

Support Group: Osteoporosis & Bone Health

Posted: Aug 16, 2024

Sun sensitivity is a well known symptom of lupus. It can cause a malar or photosensitivity...

https://connect.mayoclinic.org/comment/1088770/

sensitivity is a well known symptom of lupus

Discussion: Getting sick after sun exposure

Support Group: Autoimmune Diseases

Posted: Jun 17, 2024

Hi I am suffering from ITP for last 3 years. I also have Lupus. Took lots...

https://connect.mayoclinic.org/comment/839233/

I also have Lupus.

Discussion: ITP after Covid Vaccine

Support Group: Autoimmune Diseases

Posted: Apr 7, 2023

@txbunny67, did your cardiologist say that you have small vessel heart disease (also known as coronary...

https://connect.mayoclinic.org/comment/746306/

- Rheumatologic disorders, such as lupus

Discussion: Anyone have Small vessel spasms in their heart?

Support Group: Heart & Blood Health

Posted: Sep 6, 2022

Hi Andria, My name is Lisa and I first started seeing my rheumatologist in 2019 for...

https://connect.mayoclinic.org/comment/705585/

Also had testing done for lupus and

Discussion: Blood work normal, symptoms of RA

Support Group: Bones, Joints & Muscles

Posted: May 5, 2022

I was diagnosed with Sjogren's about 15 years ago by my Ophthalmologist. MY PCP at the...

https://connect.mayoclinic.org/comment/680751/

three years ago I was diagnosed with Lupus

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Feb 14, 2022

Go figure so many of the so called are BS. The professional that did my MFR...

https://connect.mayoclinic.org/comment/119851/

Ketamine and a friend of a friend has Lupus

Discussion: Fibromyalgia pain: Let's connect

Support Group: Fibromyalgia

Posted: Jan 23, 2021

@runwthme You're right, there are situations where it seems to take forever to narrow down a...

https://connect.mayoclinic.org/comment/331857/

finally diagnosing me with Systemic Lupus

Discussion: Tips for Getting a Proper Diagnosis of an Autoimmune Disease

Support Group: Autoimmune Diseases

Posted: Jan 13, 2021

I feel your pain…I’ve been there. I was diagnosed itch Rheumatoid arthritis when I was 49,...

https://connect.mayoclinic.org/comment/1049721/

In addition to RA, I have Lupus (diagnosed ... butterfly rash is a typical sign of Lupus

Discussion: Can anyone assist me with any help in regards to my skin condition

Support Group: Autoimmune Diseases

Posted: Apr 12, 2024

While I bet it’s true about autoimmune stuff, nobody told me the raynauds is autoimmune or...

https://connect.mayoclinic.org/comment/920530/

you don’t have rheumatoid issues or lupus ... I have some lupus but not enough to

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Aug 28, 2023

I've had MCTD since 1996. Kind of overwhelming for the first couple of years, but once...

https://connect.mayoclinic.org/comment/710325/

Some say the Lupus Handbook is helpful ... Scleraderma self help group, and tried the Lupus

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: May 22, 2022

Oh thank you so much 💜 I'm going to try some of those things. I do...

https://connect.mayoclinic.org/comment/934800/

My sister has lupus, my mom has rheumatoid ... grandmothers side of the family had a lot of lupus

Discussion: New diagnosis of Addison disease

Support Group: Diabetes & Endocrine System

Posted: Sep 23, 2023

Raven1955, I wanted to share that I was put on Prednisone which my PCP Doctor prescribed...

https://connect.mayoclinic.org/comment/842290/

he said he was 99.0% certain it was Lupus ... familiar with PMR but thought it was Lupus

Discussion: Two weeks in, frightened by meds, PMR and COVID Booster Shot

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 12, 2023

Hi grandma, I really understand your feelings. I had methotrexate for a few months and have...

https://connect.mayoclinic.org/comment/1349893/

I was negative for RA and Lupus.

Discussion: Any Tips For Tapering Off Prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16 7:30pm

Kathyv66 Yes not just my observation re PMR and peripheral vascular disease . It’s a medically...

https://connect.mayoclinic.org/comment/1200486/

with rheumatoid arthritis or systemic lupus

Discussion: Has anyone been diagnosed with peripheral vascular disease after PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 30, 2024

@kildlaren96 it seems you must have high blood pressure, from the meds you are taking. That...

https://connect.mayoclinic.org/comment/1105506/

forums, whether for bones or heart or lupus

Discussion: Anyone with occasional Afib NOT on a blood thinner?

Support Group: Heart Rhythm Conditions

Posted: Jul 14, 2024