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Comments (2,428)

Oh thank you so much 💜 I'm going to try some of those things. I do...

https://connect.mayoclinic.org/comment/934800/

My sister has lupus, my mom has rheumatoid ... grandmothers side of the family had a lot of lupus

Discussion: New diagnosis of Addison disease

Support Group: Diabetes & Endocrine System

Posted: Sep 23, 2023

While I bet it’s true about autoimmune stuff, nobody told me the raynauds is autoimmune or...

https://connect.mayoclinic.org/comment/920530/

you don’t have rheumatoid issues or lupus ... I have some lupus but not enough to

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Aug 28, 2023

I've had MCTD since 1996. Kind of overwhelming for the first couple of years, but once...

https://connect.mayoclinic.org/comment/710325/

Some say the Lupus Handbook is helpful ... Scleraderma self help group, and tried the Lupus

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: May 22, 2022

Raven1955, I wanted to share that I was put on Prednisone which my PCP Doctor prescribed...

https://connect.mayoclinic.org/comment/842290/

he said he was 99.0% certain it was Lupus ... familiar with PMR but thought it was Lupus

Discussion: Two weeks in, frightened by meds, PMR and COVID Booster Shot

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Apr 12, 2023

Kathyv66 Yes not just my observation re PMR and peripheral vascular disease . It’s a medically...

https://connect.mayoclinic.org/comment/1200486/

with rheumatoid arthritis or systemic lupus

Discussion: Has anyone been diagnosed with peripheral vascular disease after PMR ?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 30, 2024

@kildlaren96 it seems you must have high blood pressure, from the meds you are taking. That...

https://connect.mayoclinic.org/comment/1105506/

forums, whether for bones or heart or lupus

Discussion: Anyone with occasional Afib NOT on a blood thinner?

Support Group: Heart Rhythm Conditions

Posted: Jul 14, 2024

gbrodan1945, Good morning. I was 65 yo when dx with MS. I was dx w/fibromyalgia at...

https://connect.mayoclinic.org/comment/990155/

up for various autoimmune diseases, lupus

Discussion: Neuropathy of the feet: Any advice on how to eliminate the numbness?

Support Group: Neuropathy

Posted: Jan 2, 2024

Coleen. I have neuropathy but not sure what itis called. I have numbness in hands feet...

https://connect.mayoclinic.org/comment/817914/

forgot to mention I was diagnosed with Lupus

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Feb 27, 2023

Thank you for the response @amandajro ! There are a few things that ring a bell...

https://connect.mayoclinic.org/comment/794351/

They were also thinking a form of Lupus

Discussion: Left Flank Pain

Support Group: Just Want to Talk

Posted: Jan 9, 2023

Hello @acid2come, You'll notice we moved your post to this discussion on Burning Feet Syndrome which...

https://connect.mayoclinic.org/comment/72034/

Lupus?

Discussion: Burning Feet syndrome

Support Group: Neuropathy

Posted: May 26, 2020

Hello, I can't remember if I've posted here before, but I'll introduce myself again anyway. My...

https://connect.mayoclinic.org/comment/95513/

I have just been diagnosed with lupus

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: Jun 26, 2017

@regeana I echo @kariulrich advice on speaking with your doctor. You have many things going on...

https://connect.mayoclinic.org/comment/56451/

Connective Tissue Diseases such as Systemic Lupus

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Mar 26, 2017

I was diagnosed with Systemic lupus and Sjögren’s over 30 years ago. Up until now I...

https://connect.mayoclinic.org/comment/1242684/

I was diagnosed with Systemic lupus

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 22 2:23am

You're welcome. Glad you got off the PPI I learned from my labs through my rheumatologist...

https://connect.mayoclinic.org/comment/1247503/

suspected" of causing drug induced lupus

Discussion: Sudden onset of neuropathy

Support Group: Neuropathy

Posted: Feb 28 3:08pm

This happened to both me and my sibling about the same year-4 years ago- we are...

https://connect.mayoclinic.org/comment/1182645/

In my case, a suspected Lupus which

Discussion: Does anyone else have MGUS?

Support Group: Blood Cancers & Disorders

Posted: Dec 1, 2024

Good morning!! What kind of a doctor are you using? I have appointment tomorrow with Orthopedic...

https://connect.mayoclinic.org/comment/1172714/

I have Lupus, MCTD.

Discussion: Carpal tunnel release

Support Group: Bones, Joints & Muscles

Posted: Nov 13, 2024

I would bet this is autoimmune and your test results just aren’t showing anything yet. It’s...

https://connect.mayoclinic.org/comment/1142083/

I have lupus and had numerous symptoms

Discussion: declining platelet count & decrease activiy Factor VIII?

Support Group: Autoimmune Diseases

Posted: Sep 15, 2024

I have relapsing polychondritis, RA, systemic lupus, and CIDP. My RP is the least of my...

https://connect.mayoclinic.org/comment/1094285/

relapsing polychondritis, RA, systemic lupus

Discussion: Relapsing Polychondritis

Support Group: Autoimmune Diseases

Posted: Jun 26, 2024

Yes side effects seem worse in weeks 2-3, for me. The medication peaks at 5-7 days...

https://connect.mayoclinic.org/comment/1057951/

I have lupus and paresthesias and a

Discussion: Evenity and side effects: What helps joint and muscle pain?

Support Group: Osteoporosis & Bone Health

Posted: Apr 26, 2024

I have all the same issues. I had an MRI without contrast and took a SAGE...

https://connect.mayoclinic.org/comment/681739/

My mom had Lupus, Sojourn.

Discussion: Multiple Autoimmune Diseases & Post Covid

Support Group: Autoimmune Diseases

Posted: Feb 17, 2022