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364 total results

Comments (338)

Hi. No I have not compared test as I didn’t know about them. I have seen...

https://connect.mayoclinic.org/comment/967045/

tell me if Histamine intolerance and mCAS

Discussion: Histamine Intolerance the same as MCAS?

Support Group: Autoimmune Diseases

Posted: Nov 18, 2023

Hi Brielle, welcome to Mayo Clinic Connect. I moved your message to this existing discussion about...

https://connect.mayoclinic.org/comment/660031/

or Mast Cell Activation Syndrome (MCAS

Discussion: Mast Cell Disease: how does one get an accurate diagnosis?

Support Group: Blood Cancers & Disorders

Posted: Dec 6, 2021

Hi Pat @51irishlass, thanks for the private message. I thought I would answer it here so...

https://connect.mayoclinic.org/comment/134375/

Reply and it will take you to the MCAS

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Mar 19, 2019

Regarding Mestinon: I have Post Lyme Disease, small call Neuropathy and MCAS. I suffered from Brain...

https://connect.mayoclinic.org/comment/1254879/

Disease, small call Neuropathy and MCAS

Discussion: Mestinon for Long Covid

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 10 2:26pm

I found this guide (see link below) and filled in as much as I could...I then...

https://connect.mayoclinic.org/comment/1142117/

b475ed18-33af-4a98-afec-189d2795291d/mcas-primer-for-the-gastroenterologist.pdf

Discussion: Allergy to B vitamins

Support Group: Neuropathy

Posted: Sep 15, 2024

Facebook has several groups that may be of help- mast cell disorders forum has over 38000...

https://connect.mayoclinic.org/comment/1014806/

groups, Mayo Clinic has turned away MCAS

Discussion: Sjogrens and dysautononia and mast cell activation

Support Group: Autoimmune Diseases

Posted: Feb 13, 2024

Yes, absolutely. The fatigue is very treatable. I have healed myself completely with supplementation and diet....

https://connect.mayoclinic.org/comment/772472/

Following the MCAS protocol works well

Discussion: Increasing anger, impatience, grumpiness and brain fog after 2.5 years

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 12, 2022

Thank you for your response. I have been reading a lot about MCAS and Histamine intolerance...

https://connect.mayoclinic.org/comment/737065/

I have been reading a lot about MCAS

Discussion: Post COVID: Anyone experiencing internal vibrations?

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 13, 2022

I had slight swelling at the injection site and lots of itching, which apparently coincides with...

https://connect.mayoclinic.org/comment/910908/

coincides with when the onset of the mcas

Discussion: Does anyone know of anyone who has gotten over Long Covid Condition?

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 10, 2023

I had been developing some reactions to certain color sauces and fried rice. But my blood...

https://connect.mayoclinic.org/comment/781714/

I’m trying to get assessed for MCAS

Newsfeed Post: Gastrointestinal Symptoms and Diets in EDS

Blog: Ehlers-Danlos Syndrome

Posted: Dec 6, 2022

@terrirussell thank you so much for sharing 🙏🏻🌼 I’m glad you recuperated from that massive episode....

https://connect.mayoclinic.org/comment/773878/

I did a discussion on MCAS because I

Discussion: Ehlers Danlos Syndrome (EDS) & HSD, calling all types!

Support Group: Bones, Joints & Muscles

Posted: Nov 16, 2022

@anned- Welcome to Mayo Clinic Connect. Thank you for posting your story in such wonderful detail....

https://connect.mayoclinic.org/comment/203156/

this group how you found out about MCAS ... (MCAS is a condition in which the patient

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Sep 5, 2020

Hi @hral. As a fellow EBV remission/post covid 2 yr person who appears to have similar...

https://connect.mayoclinic.org/comment/964585/

posts🙃 , you may find helpful MCAS

Discussion: Severe Allergy to Paxlovid

Support Group: Post-COVID Recovery & COVID-19

Posted: Nov 14, 2023

Hi! I am looking for advice on where to start in finding out if my almost...

https://connect.mayoclinic.org/comment/806253/

daughter has the trifecta EDS, POTS, and MCAS

Newsfeed Post: POTS Part II: Treatment

Blog: Ehlers-Danlos Syndrome

Posted: Feb 4, 2023

Here is a link to a guide Dr Afrin co-wrote that out lines mast cell issues…it...

https://connect.mayoclinic.org/comment/719577/

www.ehlers-danlos.com/wp-content/uploads/MCAS-Primer-for-the-Gastroenterologist.pdf

Discussion: New Dermatographia: What is helping you?

Support Group: Autoimmune Diseases

Posted: Jun 21, 2022

I’m now in the care of the Long Covid clinic The Leading Edge Clinic headed up...

https://connect.mayoclinic.org/comment/1073366/

diagnosed with Dysautonomia, POTS, MECFS, MCAS

Discussion: Cat Scans and Post Covid follow-up

Support Group: Post-COVID Recovery & COVID-19

Posted: May 23, 2024

I think one blood test but I forgot the name. I’m trying to see a rheumatologist...

https://connect.mayoclinic.org/comment/773427/

feeling 😓 horrible and I prefer MCAS

Discussion: What testing should I look forward to be properly tested for MCAS

Support Group: Autoimmune Diseases

Posted: Nov 15, 2022

Hi Evie777 - I see the topic of Mast Cell Activation Syndrome (MCAS) has been raised...

https://connect.mayoclinic.org/comment/723329/

of Mast Cell Activation Syndrome (MCAS ... my Mast Cell Activation Syndrome (MCAS ... #39;t learn you had an undiagnosed MCAS ... I had MCAS since childhood that I did ... had developed breast cancer and a MCAS

Discussion: New Dermatographia: What is helping you?

Support Group: Autoimmune Diseases

Posted: Jul 3, 2022

Thank you! I agree. He also started oral Ketotifen the same week so it is hard...

https://connect.mayoclinic.org/comment/850693/

I personally am convinced it is MCAS ... this allergy doc says it isn't MCAS

Discussion: My son has hives on his skin and Dr suggests XOLAIR

Support Group: About Kids & Teens

Posted: Apr 28, 2023

Hello. I see the red on your cheeks. I had this too. Try a low histamine...

https://connect.mayoclinic.org/comment/815910/

low histamine diet works, look into MCAS