Mast Cell Disease: how does one get an accurate diagnosis?
Years ago, I was seen by a well-known endocrinologist in my area for a variety of symptoms I had been suffering from.
After extensive tests, he was sure I has Mast Cell Activation Syndrome.
A couple years later, I saw an allergist where I now live, and he did a few blood tests and said he was certain that I do not in fact have any type of Mast Cell disease.
So my question is, how does one get an accurate diagnosis?? Especially when most of the specialists who treat this disorder will only accept confirmed cases, and most doctors don't seem to know much about it or have different ways of diagnosing it.
I would like to know if I am positive or not. That way, I can learn more about it, and hopefully feel better; or I can move on and know that it's not the cause of my symptoms.
Thank you, and I appreciate your time.