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336 total results

Comments (311)

Finally after years of dry eye, dry mouth, atrophy of pelvic area, etc. I have been...

https://connect.mayoclinic.org/comment/266221/

So diagnosed with Dystonia which I do ... Have been a Dystonia Volunteer Advocate ... patient of NIH for clinical trials of Dystonia

Discussion: Xiidra (Lifitegrast ophthalmic solution) for dry eyes

Support Group: Eye Conditions

Posted: Jul 22, 2019

My name is Armor and I have had cervical dystonia since 2014 (I had received the...

https://connect.mayoclinic.org/comment/1065938/

name is Armor and I have had cervical dystonia

Discussion: Chronic Pain members - Welcome, please introduce yourself

Support Group: Chronic Pain

Posted: May 11, 2024

@bilbo4343 and others, Thank you for your comment. I plan to join the group regularly. I'm...

https://connect.mayoclinic.org/comment/793925/

He has a movement disorder, Dystonia

Event: Caring for the Caregiver Support Group (Florida)

Posted: Jan 8, 2023

I can't speak to DBS. However, I do have abdominal dystonia vs camptocormia. I got my...

https://connect.mayoclinic.org/comment/313090/

However, I do have abdominal dystonia

Discussion: Dystonia Issues and the Issues it Causes

Support Group: Brain & Nervous System

Posted: Jun 10, 2020

I have been on klonopin for approx 16 years for a neurological condition Dystonia. I decided...

https://connect.mayoclinic.org/comment/120784/

years for a neurological condition Dystonia

Discussion: Protracted Benzo withdrawal

Support Group: Depression & Anxiety

Posted: Sep 11, 2018

Here is the Budapest Critieria for CRPS to which @livelifes referred. https://www.ncbi.nlm.nih.gov/books/NBK464482/ "To make the clinical...

https://connect.mayoclinic.org/comment/608872/

motor dysfunction (weakness, tremor, dystonia ... motor dysfunction (weakness, tremor, dystonia

Discussion: Want to talk with others. Have you found relief from CRPS?

Support Group: Chronic Pain

Posted: Jun 13, 2021

I too had terrible anxiety attacks, plus dizziness to the point that I was on another...

https://connect.mayoclinic.org/comment/233282/

Life has been hell with Dystonia. ... It sounds like you may have Dystonia

Discussion: Hand tremors

Support Group: Brain & Nervous System

Posted: Dec 19, 2018

Hi Gabe and everyone else So I just got diagnosed with Tourette's syndrome. For the longest...

https://connect.mayoclinic.org/comment/681276/

the longest time, I thought I had Dystonia

Discussion: Mysterious shortness of breath: What has helped you?

Support Group: Lung Health

Posted: Feb 15, 2022

I lost range and lost enough laryngeal strength to make it hard to get through a...

https://connect.mayoclinic.org/comment/1080376/

premier center for spasmodic laryngeal dystonia

Discussion: Has anyone lost vocal singing range and did it come back?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jun 3, 2024

I have taken Clonazapam for many years. It affects memory and mood. This med was prescribed...

https://connect.mayoclinic.org/comment/210589/

This med was prescribed for cervical dystonia

Discussion: Has anyone taken Klonopin?

Support Group: Depression & Anxiety

Posted: Nov 4, 2019

I have been noticing head tremors(very slight) for a year. I then got covid in august(...

https://connect.mayoclinic.org/comment/659196/

neurologist diagnosed focal cervical dystonia

Discussion: Cervical dystonia (Spasmodic Torticollis): Looking for support

Support Group: Spine Health

Posted: Dec 2, 2021

Yes, Cervical Dystonia. No, not related to spine injury. Mine is Genetic. I have not experienced...

https://connect.mayoclinic.org/comment/163066/

Yes, Cervical Dystonia.

Discussion: Anyone dealing with Dystonia?

Support Group: Brain & Nervous System

Posted: Sep 9, 2018

This is great to hear. I myself suffer from cervical dystonia. I’m in with a movement...

https://connect.mayoclinic.org/comment/670429/

I myself suffer from cervical dystonia

Discussion: Cervical dystonia (Spasmodic Torticollis): Looking for support

Support Group: Spine Health

Posted: Jan 13, 2022

My husband is very hard of hearing, has hearing aids but still has much difficulty and...

https://connect.mayoclinic.org/comment/808637/

on both sides would help with the dystonia

Discussion: Caring for your caregiver when you have Neuropathy

Support Group: Neuropathy

Posted: Feb 9, 2023

I have a condition called cervical dystonia. And severe arthritis in my neck, back, foot, and...

https://connect.mayoclinic.org/comment/169639/

I have a condition called cervical dystonia

Discussion: Back Pain Due to Heavy Lifting

Support Group: Spine Health

Posted: Sep 21, 2017

This may be good news for Dystonia. I've had Spasmodic Torticollis since 1993, when I was...

https://connect.mayoclinic.org/comment/163062/

This may be good news for Dystonia. ... 10 aunts and uncles showed signs of dystonia

Discussion: Anyone dealing with Dystonia?

Support Group: Brain & Nervous System

Posted: Aug 5, 2018

Thank you so much everyone for the replies. I've been suffering with this nerve pain and...

https://connect.mayoclinic.org/comment/716941/

suffering with this nerve pain and dystonia

Discussion: COPD and Gabapentin use.

Support Group: COPD: Chronic obstructive pulmonary disease

Posted: Jun 12, 2022

Dear Sadnancy, I am taking Clonazapam for abdominal jerking and Carbidopa-Levodopa for the generalized dystonia. Without...

https://connect.mayoclinic.org/comment/811268/

Carbidopa-Levodopa for the generalized dystonia ... and the neck twisting and lots of dystonia

Discussion: Anyone dealing with Dystonia?

Support Group: Brain & Nervous System

Posted: Feb 14, 2023

Thankyou so much for taking the time to reply,you have given me hope!. I'm going to...

https://connect.mayoclinic.org/comment/989950/

12 years has caused me to develop Dystonia

Discussion: Tips on minimizing withdrawal symptoms from Effexor (aka Venlafaxine)

Support Group: Depression & Anxiety

Posted: Jan 1, 2024

Thank you. A slight hand tremor remains for me too, especially while performing fine motor tasks....

https://connect.mayoclinic.org/comment/787834/

Speaking of hands, I also have Focal Dystonia

Discussion: Memory issues while taking Tacrolimus

Support Group: Transplants

Posted: Dec 22, 2022