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209 total results
Comments (199)
Hello @jan355 and welcome to Mayo Connect. I see that @californiazebra has already posted with you....
https://connect.mayoclinic.org/comment/1221355/
one who is familiar with treating DIPNECH
Hello Teresa, If I had a minimal uptake 2.1 SUV 1cm tumor (multiple other had no...
https://connect.mayoclinic.org/comment/1024566/
The doctors say I have Dipnech and DPM
@netnan I also have lung NETs (atypical carcinoids) and DIPNECH with 50+ tumors scattered across both...
https://connect.mayoclinic.org/comment/1107096/
lung NETs (atypical carcinoids) and DIPNECH
Hi @aclanton @terradean My largest 2.6 cm tumor was destroyed with microwave ablation. Not a fun...
https://connect.mayoclinic.org/comment/1076548/
still considered stage 1 although my DIPNECH ... have multiple nodules/tumors then DIPNECH ... I have both DIPNECH and lung NETs (typical
It has probably been close to 10 years since DIPNECH was suspected in me. In the...
https://connect.mayoclinic.org/comment/881201/
probably been close to 10 years since DIPNECH
I think you hit the nail on the head with the workaround. That being said, I...
https://connect.mayoclinic.org/comment/1126890/
for 3.5 years for my lung NETs and DIPNECH
Wow hats off to you on your journey what an experience you learned from and handled...
https://connect.mayoclinic.org/comment/821372/
Also have Dipnech which are multiple
Were your tumors malignant which were destroyed with microwave ablation? The one I am scheduled to...
https://connect.mayoclinic.org/comment/1208651/
experienced NET team that is aware of DIPNECH ... believe I also have had this undiagnosed DIPNEC
Mine was found incidentally on a coronary CT, then pet scan showed malignancy in RML, along...
https://connect.mayoclinic.org/comment/1205379/
typical “ carcinoid/NET, and that I had DIPNECH
I am so glad the Octreotide had that unexpected and positive side effect! I had to...
https://connect.mayoclinic.org/comment/863539/
Now I want to look up the NETS and DIPNECH
@jhhaas I’m curious. You listed a lot of symptoms but said you haven’t needed treatment shots...
https://connect.mayoclinic.org/comment/1205397/
effects are so much better than my DIPNECH
Hi @marciamiller I also have DIPNECH and lung NETS (cancer). I’m guessing you saw Dr. Ramirez....
https://connect.mayoclinic.org/comment/1162740/
Hi @marciamiller
I also have DIPNECH ... on YouTube and like his interest in DIPNECH
@hopeful33250 Hi Teresa, You are correct that they did not suggest surgery for me. The reason...
https://connect.mayoclinic.org/comment/861413/
It's the DIPNECH that causes me ... So without DIPNECH, lung NETs (typical
Hi @leah4122 I'm sure you're worried especially since your dad had lung cancer at an early...
https://connect.mayoclinic.org/comment/1215283/
neuroendocrine lung condition called DIPNECH ... doctors to consider lung NETs and DIPNECH
Ps- my symptoms primarily are shortness of breath on exertion, like climbing stairs a lot or...
https://connect.mayoclinic.org/comment/1209863/
I wish there was a DIPNECH data bank
Hi! I was recently… finally diagnosed with DIPNECH. I am 69 and probably have had this...
https://connect.mayoclinic.org/comment/1173598/
was recently… finally diagnosed with DIPNECH
@cmc188 I don't blame you for not wanting side effects without any benefit. I have had...
https://connect.mayoclinic.org/comment/1206123/
thought it was asthma, but it was DIPNECH ... Typical carcinoids and DIPNECH are not ... DIPNECH is so rare that may NETs specialists ... videos on youtube including ones on DIPNECH
Hi Jake! Sure I'll explain. California because that's where I live. Zebra is because people with...
https://connect.mayoclinic.org/comment/837201/
DIPNECH (only a couple hundred documented
Sorry to hear about your NETS diagnosis. Check out LACNETS.org and you will find so much...
https://connect.mayoclinic.org/comment/842248/
lung NETS - typical carcinoid and DIPNECH ... Advanced DIPNECH which is really rare
Hi @phylrose1taubezin I have primary neuroendocrine lung cancer and unrelated stage 4 breast cancer. It's sooo...
https://connect.mayoclinic.org/comment/875145/
cancers) in the setting of advanced DIPNECH ... None of them had heard of DIPNECH. ... The bottom line is stage 1 lung NETS/DIPNECH
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