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858 total results
Comments (784)
@loribmt thank you for this really helpful post, Lori! I had shortness of breath since 2013,...
https://connect.mayoclinic.org/comment/1041665/
year later finally diagnosed with amyloidosis ... almost 20% of patients with MM have Amyloidosis
Discussion: Abnormal bloodwork questions
Support Group: Blood Cancers & Disorders
Posted: Mar 28, 2024
My husband was diagnosed with MGUS not long ago. He went to a cardiologist in Jacksonville...
https://connect.mayoclinic.org/comment/931005/
after being diagnosed with Cardiac Amyloidosis ... and the Cardiologist specialized in Amyloidosis
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Sep 16, 2023
@casey1329 My husband who is 80 yrs old has been suffering for months with the same...
https://connect.mayoclinic.org/comment/900586/
as well as finding he has Cardiac Amyloidosis ... hematologist ordered 2 biopsies to confirm Amyloidosis ... : the results confirmed Amyloidosis ... these proteins which are causing his Amyloidosis ... He started with Vyndamax for his Amyloidosis
Discussion: Possible Al Amylodiois
Support Group: Blood Cancers & Disorders
Posted: Jul 23, 2023
@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I...
https://connect.mayoclinic.org/comment/72263/
learned a lot about various forms of Amyloidosis ... I have some form of FreeLiteChain Amyloidosis ... I may have such things as AL (Amyloidosis ... at HTTPS://bit.Ly/1w7j4j8, titled Amyloidosis ... Series 13 or Amyloidosis Series 12.
Discussion: Brachioradial pruritus. (severe itching on forearms and neck, no rash).
Support Group: Skin Health
Posted: Dec 8, 2017
@lisabeans Perhaps you need to rule out a few things. I would start by ruling out...
https://connect.mayoclinic.org/comment/137327/
deposit disease, or commonly called Amyloidosis ... find a list of many of the common Amyloidosis ... Search for Amyloidosis, then study that
Discussion: Undiagnosed auto immune disease, put on Leflunomide
Support Group: Autoimmune Diseases
Posted: Oct 22, 2017
@kibwezi Hi. One of the triggers of Sjogren's, and SICCA which is very close to Sjogren's,...
https://connect.mayoclinic.org/comment/170411/
of the Protein Deposit Disease, or Amyloidosis ... at ALNYLAM.com, Mayoclinic.org, and Amyloidosis ... Read the stuff on various forms of Amyloidosis
Discussion: Doctors can't decide on diagnosis
Support Group: Autoimmune Diseases
Posted: Oct 22, 2017
With both psoriatic and rheumatoid arthritis, and lung lesions, you are in the zone where it...
https://connect.mayoclinic.org/comment/143209/
yourself checked for some form of amyloidosis ... doctor you see is not experienced with amyloidosis ... Call the amyloidosis foundation or Mayo
Discussion: Cavitary lesion and wall thickness ?
Support Group: Lung Health
Posted: Mar 25, 2017
Hi Becky, if you go to this site again that @colleenyoung posted, you’ll see a box...
https://connect.mayoclinic.org/comment/738621/
some current conversations regarding amyloidosis ... Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Aug 17, 2022
I have had MGUS for 4.5 years. The strategy has been to monitor it with blood...
https://connect.mayoclinic.org/comment/1101928/
How ever mine just added Amyloidosis ... , but not uncommon for MGUS to add Amyloidosis ... people with MGUS to have this because Amyloidosis
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Jul 8, 2024