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826 total results
Comments (754)
@kibwezi Hi. One of the triggers of Sjogren's, and SICCA which is very close to Sjogren's,...
https://connect.mayoclinic.org/comment/170411/
of the Protein Deposit Disease, or Amyloidosis ... at ALNYLAM.com, Mayoclinic.org, and Amyloidosis ... Read the stuff on various forms of Amyloidosis
Discussion: Doctors can't decide on diagnosis
Support Group: Autoimmune Diseases
Posted: Oct 22, 2017
With both psoriatic and rheumatoid arthritis, and lung lesions, you are in the zone where it...
https://connect.mayoclinic.org/comment/143209/
yourself checked for some form of amyloidosis ... doctor you see is not experienced with amyloidosis ... Call the amyloidosis foundation or Mayo
Discussion: Cavitary lesion and wall thickness ?
Support Group: Lung Health
Posted: Mar 25, 2017
@lisabeans Perhaps you need to rule out a few things. I would start by ruling out...
https://connect.mayoclinic.org/comment/137327/
deposit disease, or commonly called Amyloidosis ... find a list of many of the common Amyloidosis ... Search for Amyloidosis, then study that
Discussion: Undiagnosed auto immune disease, put on Leflunomide
Support Group: Autoimmune Diseases
Posted: Oct 22, 2017
@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I...
https://connect.mayoclinic.org/comment/72263/
learned a lot about various forms of Amyloidosis ... I have some form of FreeLiteChain Amyloidosis ... I may have such things as AL (Amyloidosis ... at HTTPS://bit.Ly/1w7j4j8, titled Amyloidosis ... Series 13 or Amyloidosis Series 12.
Discussion: Brachioradial pruritus. (severe itching on forearms and neck, no rash).
Support Group: Skin Health
Posted: Dec 8, 2017
Hi Becky, if you go to this site again that @colleenyoung posted, you’ll see a box...
https://connect.mayoclinic.org/comment/738621/
some current conversations regarding amyloidosis ... Diagnosed with AL Amyloidosis. ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Aug 17, 2022
@oliviahutson My husband was suffering from the same symptoms except the bzck issues. He visited the...
https://connect.mayoclinic.org/comment/906775/
cardiologist diagnosed him with Cardiac Amyloidosis ... The amyloidosis was causing all his ... Mayo this week to check which type of Amyloidosis ... Amyloidosis is a very complicated condition
Discussion: Looking for advice: Could this be MGUS, because of low m-spike?
Support Group: Blood Cancers & Disorders
Posted: Aug 3, 2023
Hi @jan52241. Welcome to Connect! I'm sorry to hear you have felt alone in this diagnosis...
https://connect.mayoclinic.org/comment/104684/
mvpdda and @tmousetis who also have amyloidosis ... want to look at this thread on AL Amyloidosis ... connect.mayoclinic.org/discussion/diagnosed-with-al-amyloidosis-would-like-to-hear-from-someone-about-what
Discussion: Current diagnosis is Amyloidosis and multiple myeloma
Support Group: Blood Cancers & Disorders
Posted: Jun 12, 2016
Hi Old Karl @oldkarl -- I thought about you when I received an email update from...
https://connect.mayoclinic.org/comment/92438/
with hereditary transthyretin (hATTR) amyloidosis ... progression in patients with hATTR amyloidosis ... polyneuropathy from hereditary transthyretin amyloidosis
Discussion: Anyone here dealing with peripheral neuropathy?
Support Group: Neuropathy
Posted: Sep 11, 2018
@sousou Hi, Saida. Glad to help. And for your question, ABSOLUTELY Amyloidosis causes sever constipation. And...
https://connect.mayoclinic.org/comment/179554/
And for your question, ABSOLUTELY Amyloidosis ... A great place to start is the Amyloidosis ... I hope you have downloaded by Amyloidosis
Discussion: Abdominal pain with severe constipation and weight loss
Support Group: Digestive Health
Posted: Jan 4, 2018
Amy, just to be sure you understand clearly, I have been studying amyloidosis for about 18...
https://connect.mayoclinic.org/comment/108549/
understand clearly, I have been studying amyloidosis ... primary systemic hereditary light chain amyloidosis ... I bought a very expensive book, "Amyloidosis ... It is free, usually from www.amyloidosis.org
Discussion: Autoimmune diagnosing problem
Support Group: Autoimmune Diseases
Posted: May 19, 2017