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Comments (2,985)

My husband has had treatment free time. Including a 6 year block and a 3 year...

https://connect.mayoclinic.org/comment/892777/

Including a 6 year block and a 3 year ... utm_term=rsa&msclkid=a0fccd26304e1a9c3b10a98cc81d7e9b

Discussion: MM Stage 6 done, any thoughts--BMT or monthly treatment?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Jul 9, 2023

Yes, your comments are helpful. Since my earlier post I've had another ERCP, stent replacement, as...

https://connect.mayoclinic.org/comment/891349/

diagnosed as Adenocarcinoma, Stage 1B. ... Following 6 or 10 more Folfurinox infusions

Discussion: Husband had Whipple surgery and chemo: He's uncomfortable

Support Group: Pancreatic Cancer

Posted: Jul 6, 2023

@ray666 - You did touch on something about University Hospitals and in the time I've spent...

https://connect.mayoclinic.org/comment/890673/

The B-12 for me was in the 120 range ... the doc told me to take 1000 mg of B- ... On the B-6....I'm taking 50 mg every ... primary and neuro doc and I also take B-

Discussion: Has anyone been prescribed EB-N5?

Support Group: Neuropathy

Posted: Jul 5, 2023

At my lab normal is 50 - 180 mcg/dL , I was getting my daily 45mg...

https://connect.mayoclinic.org/comment/871634/

taking a 45mg slow release iron with a B, ... started to bounce back from 12.0 to 13.6

Discussion: What can I do for iron deficiency anemia?

Support Group: Blood Cancers & Disorders

Posted: Jun 3, 2023

I am making some headway in determining the cause of my CMT2. My local neurologist ordered...

https://connect.mayoclinic.org/comment/867728/

genome sequencing, it could cost about $6,000 ... B12), etc. Good luck!

Discussion: Any recommendations for a neurologist at Mayo in Rochester MN

Support Group: Neuropathy

Posted: May 27, 2023

The ala did help with my numbness. I think it is important to use rALA. Good...

https://connect.mayoclinic.org/comment/859688/

010001881ab10388-cbd5e884-463c-46d3-b5f1 ... aHeGcP7FaOc0fEFpA5iRurKUn9CFPfwRF2UV0b6ly94

Discussion: Alpha lipoic acid for Neuropathy

Support Group: Neuropathy

Posted: May 14, 2023

Opps, just skimmed your story and got the name of you doc but not which clinic...

https://connect.mayoclinic.org/comment/859422/

0100018817bda088-aa066d12-a5cd-457c-b101 ... -ec500be6c6fd-000000/DUo43XldSiHtIHUlWqQibonaeKHtlPxsgxurLmSgYxg

Discussion: Double Vision & Spinal Stenosis

Support Group: Spine Health

Posted: May 13, 2023

I can only speak from my experience. I was diagnosed in July 2021 with an IPMN...

https://connect.mayoclinic.org/comment/858046/

resected portion, so I was stage 1b. ... I had Folferinox for 6 months to chase

Discussion: MRI MRCP - Cyst (IPMN) - Newbie

Support Group: Pancreatic Cancer

Posted: May 11, 2023

Good morning, @2tnt There are some studies taking place regarding Covid and the effect it can...

https://connect.mayoclinic.org/comment/853639/

-19-damage-teeth-mouth_l_5fb1d951c5b6d05e86e85b0a

Discussion: Changes in oral health post covid or the covid vaccine?

Support Group: Post-COVID Recovery & COVID-19

Posted: May 3, 2023

Hello @singlelady61 -- I'm sorry to hear that your cancer spread twice. Yes, we can relate....

https://connect.mayoclinic.org/comment/851424/

healed from the surgery, he underwent 6 ... The clinical trial is a Phase 1b/2 study

Discussion: HPV Throat Cancer

Support Group: Head & Neck Cancer

Posted: Apr 29, 2023

So sorry to hear but Stage 1 pancreatic cancer has more treatment options than Stage 3-4....

https://connect.mayoclinic.org/comment/848814/

I was diagnosed with Stage 1B. ... I am starting 6 months of chemo shortly

Discussion: Prognosis Stage 1 chose not to have treatment: What can I expect?

Support Group: Pancreatic Cancer

Posted: Apr 24, 2023

Hello @cherilynb Feeling that your doctors are dismissive is one of the most frustrating things. Especially...

https://connect.mayoclinic.org/comment/845127/

20symptoms&msclkid=af840aa3999719b61a6f6e9d319388e8

Discussion: Thrombocythemia - GP can’t find the cause

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

I am several months into B Cell lymphoma treatment. R-Chop, six rounds. Scan after 3 rounds...

https://connect.mayoclinic.org/comment/844515/

I am several months into B Cell lymphoma ... Scan after round 6 was not as positive

Discussion: The Financial Burden of Cancer: Are you willing to share your story?

Support Group: Cancer: Managing Symptoms

Posted: Apr 17, 2023

Hi @ronniem, I'm sorry to hear that you're going through this. I had a stage 1B...

https://connect.mayoclinic.org/comment/844026/

I had a stage 1B grade 3 endometrioid ... results for MLH1, PMS2, MSH2, and MSH6.

Discussion: Is it better to be proactive or reactive with cancer treatments?

Support Group: Gynecologic Cancers

Posted: Apr 16, 2023

I suffered with a trigger thumb for a long time. It came on slowly and kept...

https://connect.mayoclinic.org/comment/843594/

That lasted about 6 months and then ... It did come back after another 6 months ... That was 6 or 7 years ago. ... suggested surgery over steroid shot b/

Discussion: Trigger thumb: What helps?

Support Group: Breast Cancer

Posted: Apr 15, 2023

Hi all. I am new to this venue and just feel I need closure to work...

https://connect.mayoclinic.org/comment/841697/

still have about my Dad who passed 6 ... months ago, age 83, exactly 6 months ... post dx of pancreatic cancer, stage 2 B.

Discussion: Pancreatic Cancer Group: Introduce yourself and connect with others

Support Group: Pancreatic Cancer

Posted: Apr 11, 2023

Things are coming together. I now know what buildings my appointments are at. Thank you to...

https://connect.mayoclinic.org/comment/839262/

Outdoor parking is free and parking lot B ... The Valet closes at 6PM at the Davis