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155 total results

Comments (141)

No, this is great information. I was interested if the spinal tap showed positive for immune...

https://connect.mayoclinic.org/comment/72024/

Have you ever received plasmapherisis

Discussion: Burning Feet syndrome

Support Group: Neuropathy

Posted: Feb 6, 2020

Hi. I took time to read back through your history of posts and I have a...

https://connect.mayoclinic.org/comment/281853/

Plasmapherisis would be next option

Discussion: Unknown Cause or Idiopathic SFN

Support Group: Neuropathy

Posted: Nov 12, 2019

Amy husband larry is currently in hospital 6 weeks now in critical condition w what they...

https://connect.mayoclinic.org/comment/1024627/

perm .apparently ivig ,rituxan and plasmapharesis

Discussion: Progressive encephalomyelitis with rigidity and myoclonus (PERM): Help

Support Group: Autoimmune Diseases

Posted: Feb 28, 2024

I to had IVIG with no improvement of symptoms, so now my Neurologist wants to try...

https://connect.mayoclinic.org/comment/946444/

It’s very complicated doing plasmaphoresis

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Oct 12, 2023

I have the same condition (small fiber neuropathy). I also don’t take Cymbalta, gabapentin, et. al....

https://connect.mayoclinic.org/comment/904913/

antibody, you may qualify for IVIG or plasmapherisis

Discussion: Non-Length Dependent Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Jul 31, 2023

Hello Elsa I hope this post finds you receiving pain relief. I scrolled back through posts...

https://connect.mayoclinic.org/comment/245944/

;t have an autoimmune disease) and plasmapherisis

Discussion: Infusions for widespread, intense nerve pain, probably due to MS

Support Group: Chronic Pain

Posted: Sep 27, 2019

Hi John, yes after being bounced around for 3 years every test and blood test possible,...

https://connect.mayoclinic.org/comment/156910/

SFN or CIDP, he wants me to go for plasmapherisis

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Jan 20, 2019

I have just been told I have lambda IGG MGUS and small fiber neuropathy determined from...

https://connect.mayoclinic.org/comment/74583/

rejection and was given a week of plasmapharesis

Discussion: MGUS: Please, let me know I not alone

Support Group: Blood Cancers & Disorders

Posted: Oct 28, 2018

Hi, I have MG and I'm a trained MGFA Support leader. I am so sorry to...

https://connect.mayoclinic.org/comment/298236/

I have never needed IVIg or plasmaphersis

Discussion: Unknown Neurological disorder mimics MG

Support Group: Brain & Nervous System

Posted: Mar 2, 2020

Hi. Do you have any knowledge whether insurance requires plasmapherisis be tried prior to seeking IVIG...

https://connect.mayoclinic.org/comment/219608/

knowledge whether insurance requires plasmapherisis

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Jan 8, 2020

What I really don't get is even as good as any pain relievers may be (hydro,...

https://connect.mayoclinic.org/comment/288137/

pursue more aggressive treatment like plasmapherisis

Discussion: Apparatus for Neuropathy

Support Group: Neuropathy

Posted: Jan 4, 2020

It forever remains a challenge, doesn't It? My aching is part but also severe cramping, burning...

https://connect.mayoclinic.org/comment/280340/

I drop my lidocaine infusions, is plasmapherisis

Discussion: Aching legs from Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Nov 1, 2019

I refused plasmaphoresis, IVIG did nothing for me, Gabapentin and other meds did not help me...

https://connect.mayoclinic.org/comment/1064564/

I refused plasmaphoresis, IVIG did nothing

Discussion: Chronic Inflammatory Demyelinating Polyneuropathy and IVIG reactions

Support Group: Neuropathy

Posted: May 9, 2024

I also was diagnosed with CIDP and had 8 mos of IVIG infusions every 2 weeks,...

https://connect.mayoclinic.org/comment/1036139/

I didn’t do plasmaphoresis, because

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Mar 18, 2024

My neurologist has recommended Rituximib infusions for my neuropathy. I went thru several rounds of IVIG...

https://connect.mayoclinic.org/comment/932521/

Any one done plasmaphoresis and what

Discussion: Unbearable Neuropathy

Support Group: Neuropathy

Posted: Sep 19, 2023

Yes please, I too would like to hear your cannibus journey @jmweissler. Chris, I'm really racking...

https://connect.mayoclinic.org/comment/272627/

Including IVIG and plasmapherisis.

Discussion: Feeling at my wits end with Chronic Pain and Fibromyalgia

Support Group: Fibromyalgia

Posted: Sep 13, 2019

Yes it’s nice to interact with others that are in the same situation my hematologist believes...

https://connect.mayoclinic.org/comment/83440/

own immune system he wants to try plasmapherisis

Discussion: After Hep C Treatment

Support Group: Infectious Diseases

Posted: Feb 7, 2019

@johnbishop John, I'm sorry to hear about your PMR. Nerve symptoms are just horrid. It's its...

https://connect.mayoclinic.org/comment/167767/

Have you tried plasmaphoresis, or is

Discussion: What can cause ANA titre of 1:2560?

Support Group: Autoimmune Diseases

Posted: Sep 24, 2017

I have CIDP but mine developed gradually over 10-15 years so I have had plenty of...

https://connect.mayoclinic.org/comment/1238794/

a subcutaneous injection/infusion. plasmaphoresis

Discussion: What are the next steps to take after IVIG has not worked?

Support Group: Autoimmune Diseases

Posted: Feb 17, 2025

Hi newwaldenguy. Yes, I recently found I have Waldenstrom and 2 of the 3 doctors I...

https://connect.mayoclinic.org/comment/1231022/

catheter in my neck and started some plasmaphoresis

Discussion: Anyone have zanubrutinib/Brukinsa denied?

Support Group: Blood Cancers & Disorders

Posted: Feb 6, 2025