ME/CFS – search | You searched for comments

@colleenyoung I decided to post here since there isn't a separate group for Myalgic myeloencephalitis/CFS. Was...

https://connect.mayoclinic.org/comment/612350/

group for Myalgic myeloencephalitis/CFS ... appropriate provider to diagnose and treat ME ... /CFS.

Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments

Posted: Jun 28, 2021

@gcranor, I don't believe there is a single test for chronic fatigue. Here's some information on...

https://connect.mayoclinic.org/comment/740294/

Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments: https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments

Discussion: How is Chronic Fatigue Diagnosed?

Support Group: Chronic Pain

Posted: Aug 22, 2022

Don’t go to Mayo for ME/CFS. They are way behind on the research. They still believe...

https://connect.mayoclinic.org/comment/212594/

Don’t go to Mayo for ME/CFS.

Discussion: Desperately Trying to Get Diagnosed

Support Group: Autoimmune Diseases

Posted: Aug 22, 2018

Hello @clarer3aney, welcome to Connect. I'm happy you found us. I am not aware of any...

https://connect.mayoclinic.org/comment/156816/

Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments -- https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 19, 2018

I know just how you feel. Perhaps we have to form our own group somehow. Perhaps...

https://connect.mayoclinic.org/comment/690052/

Perhaps we have to reach out to other ME ... /CFS patients. ... ME/CFS may be a post-viral syndrome ... very Mayo Clinic site, there is no ME ... /CFS Connect site.

Discussion: Do other long haulers suffer with brain changes? Seen any improvement?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 16, 2022

Hi Janet @jada, You definitely are not wasting anyone's time! Connect is a patient to patient...

https://connect.mayoclinic.org/comment/315657/

Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments — https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments

Discussion: Members list: How do I become a member of a group?

Support Group: Autoimmune Diseases

Posted: Jul 5, 2020

It absolutely does. Anyone who denies this should get mono and then have their life ruined...

https://connect.mayoclinic.org/comment/774249/

and then have their life ruined by CFS ... Please go to Solve ME/CFS and donate

Discussion: Diseases caused by Epstein-Barr Virus

Support Group: Infectious Diseases

Posted: Nov 17, 2022

Hey- Can u maybe give us a past medical history of any pertinent virus or infections...

https://connect.mayoclinic.org/comment/234523/

a RN n have a MPH pre-illnesses ie ME ... /CFS, fibro, 6 sets steel

Discussion: Hypogammaglobulinemia

Support Group: Autoimmune Diseases

Posted: Feb 18, 2021

Dizziness caused by ME/CFS, neuropathies from the stenosis and having to take a medicine that adds...

https://connect.mayoclinic.org/comment/1004648/

Dizziness caused by ME/CFS, neuropathies

Discussion: Is a wheelchair my ultimate fate?

Support Group: Spine Health

Posted: Jan 27 9:48am

I too applied to SS disability and was denied. Long hauler since April 2021 but my...

https://connect.mayoclinic.org/comment/1005881/

2021 but my official diagnosis is ME ... /CFS because I was not able to get a ... my evaluation Social Security sent me ... doctor, who had never heard of LC or CFS

Discussion: Any longhaulers successful getting Social Security Disability or SSI?

Support Group: Post-COVID Recovery & COVID-19

Posted: Jan 29 11:21am

@colleenyoung , Yes, several years ago, when it was my first attempt to get a Mayo...

https://connect.mayoclinic.org/comment/613910/

She basically told me they were not ... guidelines for diagnosis and treatment of ME ... /CFS.

Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments

Support Group: Just Want to Talk

Posted: Jul 4, 2021

My experience with the ME/CFS/LC clinic at Stanford University, California was life changing. They carefully gave...

https://connect.mayoclinic.org/comment/1026006/

My experience with the ME/CFS/LC clinic ... They carefully gave me and set levels

Discussion: Anyone have any success with going to an LC clinic?

Support Group: Post-COVID Recovery & COVID-19

Posted: Mar 2 10:05am

Hi @samsam3030, it can be long and exhausting road to find a diagnosis. While members of...

https://connect.mayoclinic.org/comment/613611/

Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments

Discussion: Constant twitching 24/7

Support Group: Brain & Nervous System

Posted: Jul 3, 2021

Colleen, Thank you for your recommendations. However, what I think those of us who have ME/CFS...

https://connect.mayoclinic.org/comment/691122/

what I think those of us who have ME ... /CFS are looking for is an ME/CFS connect

Discussion: Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) treatments

Support Group: Just Want to Talk

Posted: Mar 19, 2022

Hi @venki welcome back to the group. I wished I had some answers for you and...

https://connect.mayoclinic.org/comment/156711/

Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments -- https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Oct 1, 2018

@phoenixlion, welcome to Mayo Clinic Connect. I'm sorry to hear about your fruitless search (so far)...

https://connect.mayoclinic.org/comment/650103/

encephalomyelitis/chronic fatigue syndrome (ME ... /CFS) is a serious, long-term illness

Discussion: Have Had Mono-Like/CFS Symptoms for 15 Months: Need Help

Support Group: Infectious Diseases

Posted: Oct 31, 2021

My daughter was diagnosed with CFS in 2012 after a viral infection. She is alot better...

https://connect.mayoclinic.org/comment/1020982/

My daughter was diagnosed with CFS in ... I think its ME/CFS.

Discussion: Has anyone gone to Mayo Clinic to see a CFS specialist?

Support Group: Visiting Mayo Clinic

Posted: Feb 23 8:42am

Welcome @mindfulness, I can't imagine how difficult it must be to have thermal allodynia and not...

https://connect.mayoclinic.org/comment/686813/

underlying mechanism of fibromyalgia, ME ... /CFS, and several other conditions.1 ... Distinct Type of Pain in Fibromyalgia and ME ... /CFS: https://www.verywellhealth.com

Discussion: Allodynia: Anyone else sensitive to touch?

Support Group: Neuropathy

Posted: Mar 5, 2022

Hello Nikki @nicoletta8, welcome to Connect. I also have idiopathic small fiber peripheral neuropathy but I...

https://connect.mayoclinic.org/comment/156813/

Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments — https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Nov 17, 2018

@z4pper as a last resort, it is not uncommon for people to post to online communities,...

https://connect.mayoclinic.org/comment/313558/

Encephalomyelitis/Chronic Fatigue Syndrome (ME ... /CFS) treatments https://connect.mayoclinic.org ... myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-treatments ... months-and-doctors-dont-know-whats-wrong/ - IBS, CFS ... / Let me know if you'd like your

Discussion: My Mysterious Illness

Support Group: Heart & Blood Health

Posted: Jun 17, 2020