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181 total results
Comments (160)
@lily2013 Hi, Lily.Your situation is very interesting, but I believe there is hope of some understanding,...
disorders such as hATTRwt (hereditary Amyloidosis ... Hereditary because it is in the blood line, Amyloidosis ... with Lupus, Crohn's, Apolipoprotein, AL ... but it is still the gold standard, "Amyloidosis
Support Group: Autoimmune Diseases
Posted: Jan 23, 2018
@peach414144 Peachy, one very difficult problem we all share on this site is to have patience....
with several years ago, is a Sign of Amyloidosis ... , hATTRwt and some other Amyloidoses ... After all, they might see only one AL
Support Group: Chronic Pain
Posted: Dec 29, 2017
@hollyheinzig Hi, Holly. Sounds like a mess, to me. Sandy and the others who wrote that...
Systemic Hereditary Lite Chain TTRwt Amyloidosis ... cancer, probably prostate, before the AL ... deal with this stuff, whether ESS, or Amyloidosis ... at it at HTTPS://bit.Ly/1w7j4j8 "Amyloidosis
Support Group: Brain & Nervous System
Posted: Dec 12, 2017
@poojerrt Hi, Poo... I know some folks get a little tired of my insistence, but I...
We have some form of Amyloidosis, probably ... AL, ACys or hATTRwt. ... There are many forms of Amyloidosis, ... Look up Amyloidosis on Mayo, City of
Support Group: Sleep Health
Posted: Nov 21, 2017
That's a tough row to how, Lisabeans. I have some of the same stuff, but not...
99 % sure) that I have some form of amyloidosis ... , Primary, systemic, hereditary, AL, ... themselves that there is no such thing as amyloidosis
Support Group: Autoimmune Diseases
Posted: May 13, 2017
Thank you all for taking the time to put on this webinar. There is no doubt...
a chance to see and interact with Amyloidosis ... familiar with or are not up to date on Amyloidosis ... Please do consider splitting into AL
At this point seems to be NMZL; however when I asked about WM SMM the oncologist...
MZL Mspike1.5 rare combination AL ... heart ( WATTR cardiac amyloidosis and ... AL smaller amount in myocardium confirmed
What is the process for wanting to be evaluated at the Mayo Clinic? How do you...
protein, light chains, wild type cardiac amyloidosis ... and also a small am’t of cardiac AL
Posted: Oct 16, 2021
I, just like many of you, have had a constant 24/7 twitching across the board. It...
and they wanted to check for myeloma/amyloidosis ... develop a scalloped tongue (a symptom of amyloidosis ... cancer to thinking it was possibly MNS/ALS ... I know logically that ALS has far different
Support Group: Brain & Nervous System
Posted: Sep 29, 2023
I have goose bumps all over my body and immediately started to cry. I have never...
The first test by doctor did was for Amylidosis ... negative which is crazy because I al ... to not say, "she says she has al
Support Group: Brain & Nervous System
Posted: Sep 19, 2018
I just noticed something while reading this line. It may be helpful for whomever started it....
obligate positive sign of some forms of Amyloidosis ... Bronchiectasis, and also with various forms of Amyloidosis ... . gelsolin, AL, HATTR, Multiple Myeloma
@ling123 I have not been diagnosed with MAC, but probably should have. I have, however, been...
otherwise related to some form of Amyloidosis ... Gelsolin, Apolipoprotein, Cystatin-C, AL ... Martha Grogan's video on Diagnosing Amyloidosis
Support Group: MAC & Bronchiectasis
Posted: Aug 21, 2018
@bonniecanby You should know that the symptoms you mention, anemia, pvc's and lots of pain, are...
pvc's and lots of pain, are typical amyloidosis ... Morey Gertz of Mayo, and the Amyloidosis ... forms of Amy, incluging MGUS, MM, AL
Posted: Jan 16, 2018
@lisabeans Perhaps you need to rule out a few things. I would start by ruling out...
deposit disease, or commonly called Amyloidosis ... find a list of many of the common Amyloidosis ... Search for Amyloidosis, then study that ... All possible, and markers of AL Amy.
Support Group: Autoimmune Diseases
Posted: Oct 22, 2017
@brie87144 I have been thinking your issues a lot. After getting into the shower this morning...
trying the work through a diagnosis for amyloidosis ... (probably hATTR or AL of some form) ... me, some great help has come from Amyloidosis.org
Support Group: Autoimmune Diseases
Posted: Jul 28, 2017