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181 total results
Comments (160)
Hi this is all new to me any info that I can get will be a...
https://connect.mayoclinic.org/comment/885698/
me for hcm decided to check me ttr amyloidisis ... Now he is checking for Al amyloidisis
@lily2013 Hi, Lily.Your situation is very interesting, but I believe there is hope of some understanding,...
https://connect.mayoclinic.org/comment/182119/
disorders such as hATTRwt (hereditary Amyloidosis ... Hereditary because it is in the blood line, Amyloidosis ... with Lupus, Crohn's, Apolipoprotein, AL ... but it is still the gold standard, "Amyloidosis
@peach414144 Peachy, one very difficult problem we all share on this site is to have patience....
https://connect.mayoclinic.org/comment/96378/
with several years ago, is a Sign of Amyloidosis ... , hATTRwt and some other Amyloidoses ... After all, they might see only one AL
@hollyheinzig Hi, Holly. Sounds like a mess, to me. Sandy and the others who wrote that...
https://connect.mayoclinic.org/comment/77403/
Systemic Hereditary Lite Chain TTRwt Amyloidosis ... cancer, probably prostate, before the AL ... deal with this stuff, whether ESS, or Amyloidosis ... at it at HTTPS://bit.Ly/1w7j4j8 "Amyloidosis
@poojerrt Hi, Poo... I know some folks get a little tired of my insistence, but I...
https://connect.mayoclinic.org/comment/175474/
We have some form of Amyloidosis, probably ... AL, ACys or hATTRwt. ... There are many forms of Amyloidosis, ... Look up Amyloidosis on Mayo, City of
That's a tough row to how, Lisabeans. I have some of the same stuff, but not...
https://connect.mayoclinic.org/comment/137308/
99 % sure) that I have some form of amyloidosis ... , Primary, systemic, hereditary, AL, ... themselves that there is no such thing as amyloidosis
Thank you all for taking the time to put on this webinar. There is no doubt...
https://connect.mayoclinic.org/comment/381206/
a chance to see and interact with Amyloidosis ... familiar with or are not up to date on Amyloidosis ... Please do consider splitting into AL
After the kidney byopsia,I had a diagnostic of Amyloidosis Al, and my gfr go down to...
https://connect.mayoclinic.org/comment/1268984/
kidney byopsia,I had a diagnostic of Amyloidosis ... Al, and my gfr go down to 8.I don'
At this point seems to be NMZL; however when I asked about WM SMM the oncologist...
https://connect.mayoclinic.org/comment/752396/
MZL Mspike1.5
rare combination AL ... heart ( WATTR cardiac amyloidosis and ... AL smaller amount in myocardium confirmed
What is the process for wanting to be evaluated at the Mayo Clinic? How do you...
https://connect.mayoclinic.org/comment/645619/
protein, light chains, wild type cardiac amyloidosis ... and also a small am’t of cardiac AL
Thanks Kay, I was diagnosed with AL amyliodosis on October 9th, now it is Oct 24th....
https://connect.mayoclinic.org/comment/1161982/
Thanks Kay,
I was diagnosed with AL ... amyliodosis on October 9th, now it
I, just like many of you, have had a constant 24/7 twitching across the board. It...
https://connect.mayoclinic.org/comment/938766/
and they wanted to check for myeloma/amyloidosis ... develop a scalloped tongue (a symptom of amyloidosis ... cancer to thinking it was possibly MNS/ALS ... I know logically that ALS has far different
I have goose bumps all over my body and immediately started to cry. I have never...
https://connect.mayoclinic.org/comment/196777/
The first test by doctor did was for Amylidosis ... negative which is crazy because I al ... to not say, "she says she has al
I just noticed something while reading this line. It may be helpful for whomever started it....
https://connect.mayoclinic.org/comment/65216/
obligate positive sign of some forms of Amyloidosis ... Bronchiectasis, and also with various forms of Amyloidosis ... . gelsolin, AL, HATTR, Multiple Myeloma
@knecht and @mommiesboy1 I was diagnosed with HCM as an early teen, probably about 14. I...
https://connect.mayoclinic.org/comment/203839/
what I really have, apparently, is Amyloidosis ... AL, probably Gelsolin or similar.
@ling123 I have not been diagnosed with MAC, but probably should have. I have, however, been...
https://connect.mayoclinic.org/comment/212560/
otherwise related to some form of Amyloidosis ... Gelsolin, Apolipoprotein, Cystatin-C, AL ... Martha Grogan's video on Diagnosing Amyloidosis
@pdsi43one @techi Hi, folks. I am not sure you don't know this, but much encephalopathy, rheumatoid,...
https://connect.mayoclinic.org/comment/182443/
tissues, particularly Light Chain (AL ... paper at https://bit.Ly/1w7j4j8 under Amyloidosis
@bonniecanby You should know that the symptoms you mention, anemia, pvc's and lots of pain, are...
https://connect.mayoclinic.org/comment/74558/
pvc's and lots of pain, are typical amyloidosis ... Morey Gertz of Mayo, and the Amyloidosis ... forms of Amy, incluging MGUS, MM, AL
@lisabeans Perhaps you need to rule out a few things. I would start by ruling out...
https://connect.mayoclinic.org/comment/137327/
deposit disease, or commonly called Amyloidosis ... find a list of many of the common Amyloidosis ... Search for Amyloidosis, then study that ... All possible, and markers of AL Amy.
@brie87144 I have been thinking your issues a lot. After getting into the shower this morning...
https://connect.mayoclinic.org/comment/108562/
trying the work through a diagnosis for amyloidosis ... (probably hATTR or AL of some form) ... me, some great help has come from Amyloidosis.org
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