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Comments (2,484)

II am a 68 year old woman who tested positive for RA and Lupus. I am...

https://connect.mayoclinic.org/comment/145502/

woman who tested positive for RA and Lupus

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Oct 21, 2019

Hi! Will try to give you my thoughts about this treatment. It was not easy but...

https://connect.mayoclinic.org/comment/1339545/

It turned out that rifampin gave me lupus ... hospital they said rifampin can cause the lupus

Discussion: Finished Antibiotic Treatment - On to Airway Clearance

Support Group: MAC & Bronchiectasis

Posted: Jul 2 8:14am

@pb50, thank you for thinking of me. I am hanging in as best I can as...

https://connect.mayoclinic.org/comment/1060619/

2019 which showed autoantibodies for Lupus ... He said I didn’t have RA/Lupus and sent ... deeper into the anti phospholipid and lupus

Discussion: Anesthesia related cognitive decline, specifically dysnomia

Support Group: Brain & Nervous System

Posted: May 2, 2024

My antiphospholipid syndrome (clotting disorder) is now in remission (yay!) as the lupus anticoagulant antibody is...

https://connect.mayoclinic.org/comment/1199126/

as the lupus anticoagulant antibody

Discussion: Living with LPSVS (long post-COVID vaccination syndrome)

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 28, 2024

I was started on LDN for the horrific pain of Bi-Lateral Trigeminal Neuralgia, in 2019. I...

https://connect.mayoclinic.org/comment/1192722/

I also have Lupus.

Discussion: reaction from LD Naltrexone

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 18, 2024

gracenad, I am just starting out with secondary Sjogren's (I have had relatively mild lupus for...

https://connect.mayoclinic.org/comment/1237453/

's (I have had relatively mild lupus

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 15 10:32am

Thank you for sharing your story! I feel like am I am not alone in the...

https://connect.mayoclinic.org/comment/882773/

Mineis probably secondary to my Lupus

Discussion: My PN? What do you mean it's "progressive"?

Support Group: Neuropathy

Posted: Jun 22, 2023

My sincere thanks for reaching out. It's hard for me to write about my son, so...

https://connect.mayoclinic.org/comment/815808/

do more tests to look for sign of Lupus

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: Feb 23, 2023

I went to 11 doctors the first year, right after my mother died. Even a rheumatologist...

https://connect.mayoclinic.org/comment/689425/

My daughter was diagnosed with lupus

Discussion: Tight Fitting Jeans or Leggings

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 14, 2022

Talk with your ortho - I believe your rheumy's knowledge is not totally current. These days...

https://connect.mayoclinic.org/comment/1163008/

(such as rheumatoid arthritis and lupus

Discussion: Sed Rate still elevated, but pain much improved

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 26, 2024

Google Normalyte. I have pots Sjogrens lupus fibro etc. I was carrying Gatorade around religiously. This...

https://connect.mayoclinic.org/comment/1018310/

I have pots Sjogrens lupus fibro etc

Discussion: Autonomic Dysfunction + POTS + LUPUS + Tachycardia = Rejection Letter

Support Group: Autoimmune Diseases

Posted: Feb 19, 2024

Jim, I too have CIDP with neuropathy (up to my knees). I have lupus which also...

https://connect.mayoclinic.org/comment/1014897/

I have lupus which also causes Raynauds

Discussion: Cold feet due to neuropathy - need help

Support Group: Neuropathy

Posted: Feb 13, 2024

@twinkie23 I was diagnosed with SLE in 1988. It must be a mild case, as I...

https://connect.mayoclinic.org/comment/952819/

Having lupus is not an easy path.

Discussion: Lupus pain

Support Group: Autoimmune Diseases

Posted: Oct 23, 2023

I have the same issue, all on my left side. My pain is right in the...

https://connect.mayoclinic.org/comment/868098/

I also have lupus, RA and Fibromyalgia

Discussion: Pain in the butt - Bilateral Hamstring conjoint tendinosis

Support Group: Chronic Pain

Posted: May 28, 2023

@guera60 I also have lupus and afib. My doc wants to follow my Tymlos with a...

https://connect.mayoclinic.org/comment/769870/

@guera60 I also have lupus and afib.

Discussion: Prolia treatment for osteoporosis: What is your experience?

Support Group: Osteoporosis & Bone Health

Posted: Nov 5, 2022

Has any doctor mentioned Sjogren's Syndrome? Do you have dry eyes or dry mouth? I have...

https://connect.mayoclinic.org/comment/170409/

I was first diagnosed with Lupus and

Discussion: Doctors can't decide on diagnosis

Support Group: Autoimmune Diseases

Posted: Oct 16, 2017

Have you been to a rheumotologist? If so, I would get a second opinion. Some autoimmune...

https://connect.mayoclinic.org/comment/149833/

diseases give you low grade temps (lupus

Discussion: Have a few autoimmune disorders - now have consistent low grade fever

Support Group: Autoimmune Diseases

Posted: May 1, 2017

I have been on Prolia for 3 years as I have severe Osteoporosis at 55. I...

https://connect.mayoclinic.org/comment/1340345/

I tested positive for Lupus SLE last

Discussion: Anyone with autoimmune problems taking Prolia for osteoporosis?

Support Group: Autoimmune Diseases

Posted: Jul 3 10:52am

My daughter was like this 20 years ago. She had type 1 diabetes, an autoimmune disorder,...

https://connect.mayoclinic.org/comment/1187007/

, as well as an early diagnosis of lupus

Discussion: My daughter is slowly dying: severe gastroparesis, MS

Support Group: Digestive Health

Posted: Dec 8, 2024

That is a question for a good neurologist to answer. He would have to rule out...

https://connect.mayoclinic.org/comment/1022524/

one of several other diseases like lupus

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Feb 25, 2024