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355 total results
Comments (305)
@carrnv42, welcome. I moved your question about zanubrutinib (Brukinsa) to this already existing discussion: - Waldenström...
https://connect.mayoclinic.org/comment/1451014/
this already existing discussion:
- Waldenström ... /connect.mayoclinic.org/discussion/waldrenstrom-macroglobulinemia ... can connect with others living with Waldenström ... search=waldrenstrom&index=discussions
Have you had treatment yet? One more chemo treatment for me, next week. Also have diagnosis...
https://connect.mayoclinic.org/comment/1444567/
how this criteria is interfaced with Waldenstorms
I also have MGus. I have had this for at least 15 years, but was just...
https://connect.mayoclinic.org/comment/1427189/
I have either Multiple Myeloma or Waldenstrom
I am so sorry to hear that you are dealing with all of this. You did...
https://connect.mayoclinic.org/comment/1391566/
Lymphomplasmacytic lymphoma (LPL), but not Waldenstrom
@breathernow Hi Michael and welcome to Connect. Shoulder shrugging sure isn’t much of an answer when...
https://connect.mayoclinic.org/comment/1346952/
re not finding much help with your Waldenstrom ... LPL or lymphoplasmacytic lymphoma, Waldenstrom ... connect with other members living with Waldenstrom ... ’s in these discussions:
- Waldenstrom ... ~~~~
- Waldenstrom macroglobulinemia
I'm new to the world of Waldenström's Macroglobulinemia - having been diagnosed last month. I'm on...
https://connect.mayoclinic.org/comment/1246861/
I'm new to the world of Waldenström
I was diagnosed with MGUS approximately 20 years ago and was being regularly monitored every 3...
https://connect.mayoclinic.org/comment/1232582/
this is the same as it would be for Waldenstom
I have been living with cancer for two and a half years. I have Waldenstrom Macroglobulinemia...
https://connect.mayoclinic.org/comment/1166298/
I have Waldenstrom Macroglobulinemia
Since everyone responds differently, I highly recommend joining the IWMF (International Waldenstrom’s Macroglobulinemia Foundation) - either...
https://connect.mayoclinic.org/comment/1074361/
recommend joining the IWMF (International Waldenstrom
Hi @artmulh, I look forward to learning more about you. Having attended two of the IWMF...
https://connect.mayoclinic.org/comment/1026606/
your partner have been dealing with Waldenstrom
@careysuzi Welcome to Mayo Clinic Connect! To get more information about your new diagnosis, I recommend...
https://connect.mayoclinic.org/comment/996792/
in the search criteria box, type in Waldenstrom
I am an active 75 year old and I was diagnosed with anemia, than MGUS 6...
https://connect.mayoclinic.org/comment/996268/
months later and 18 months after, with Waldenstrom
Hi Colleen, I see that you referenced me as “Watch & See” for Waldenstrom disease. I...
https://connect.mayoclinic.org/comment/964298/
referenced me as “Watch & See” for Waldenstrom
Hi @laurinea, I understand what you are going through. My neuropathy started 18 months ago and...
https://connect.mayoclinic.org/comment/945494/
Also found waldenstoms but my oncologist
Hello @mike02041950 @barbdk @lesliemont. Because WM is a type of blood cancer where your bone marrow...
https://connect.mayoclinic.org/comment/922967/
www.mayoclinic.org/diseases-conditions/waldenstrom-macroglobulinemia
My mother-in-law was diagnosed with Waldenstrom's in 1981. She was living here in Arizona and Toledo,...
https://connect.mayoclinic.org/comment/829063/
My mother-in-law was diagnosed with Waldenstrom ... learned of a trial in Seattle for Waldenstrom ... of Washington) had done research on Waldenstrom ... Washington and see where they are with Waldenstrom
Waldenstrom’s Husband diagnosed two years ago and has tried four different oral meds but can’t get...
https://connect.mayoclinic.org/comment/815772/
Waldenstrom’s
Husband diagnosed two
Is there a group / physician currently working on treatments for MYD88 - wild type in...
https://connect.mayoclinic.org/comment/801167/
treatments for MYD88 - wild type in Walderstrom
Well John, my brother and I are proof of what toxins can do to the human...
https://connect.mayoclinic.org/comment/753609/
’s Lymphoma or a rarer form called Waldenstrom
My last sed rate in May was 23 but my MGUS (blood disorder) is progressing into...
https://connect.mayoclinic.org/comment/748762/
form of Non Hodgkin’s Lymphoma called Waldenstrom
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