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Comments (398)

Does anyone else have an Ehlers Danlos or connective tissue disorder? Apparently I have hyper-flexibility...no one...

https://connect.mayoclinic.org/comment/275528/

Does anyone else have an Ehlers Danlos

Discussion: POTS - postural orthostatic tachycardia syndrome

Support Group: Heart Rhythm Conditions

Posted: Aug 20, 2020

What did they do to treat it that worked? I took Xifaxin and also did low...

https://connect.mayoclinic.org/comment/989972/

torturous colon, gastric bypass, and Ehlers

Discussion: Herbals for SIBO

Support Group: Digestive Health

Posted: Jan 1 9:53pm

Hello @alanamichaela1 and welcome to Mayo Clinic Connect. I thought this article may be of interest...

https://connect.mayoclinic.org/comment/710646/

https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome

Discussion: Anyone have pelvic floor disorder and pelvic floor physcal therapy?

Support Group: Women's Health

Posted: May 23, 2022

Welcome @candace317, I can imagine that you are very concerned for your daughter. I'm tagging fellow...

https://connect.mayoclinic.org/comment/831902/

https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome

Discussion: How can I help my 15 year olds debilitating migraines from EDS?

Support Group: Bones, Joints & Muscles

Posted: Mar 25, 2023

Hi Mom34eds, I think you will find this clinical research of interest. While the nervous system...

https://connect.mayoclinic.org/comment/608007/

- Neurological manifestations of Ehlers-Danlos ... care of a physician with expertise in Ehlers-Danlos

Discussion: Ehlers Danlos Syndrome - Who is the best doctor to see?

Support Group: Bones, Joints & Muscles

Posted: Jun 9, 2021

@sriddle, I can imagine you are very worried about your daughter, including her mental state as...

https://connect.mayoclinic.org/comment/708532/

existing discussion - Hypermobile Ehlers ... connect.mayoclinic.org/discussion/hypermobile-ehlers-danlos-care-team-in-arizona

Discussion: Hypermobile Ehlers Danlos Care Team at Mayo Clinic?

Support Group: Visiting Mayo Clinic

Posted: May 15, 2022

My daughter is suffering from SMA syndrome and gastroparesis caused by hypermobile Ehlers-Danlos Syndrome. Can anyone...

https://connect.mayoclinic.org/comment/681999/

gastroparesis caused by hypermobile Ehlers-Danlos

Discussion: Ehlers Danlos Syndrome - Who is the best doctor to see?

Support Group: Bones, Joints & Muscles

Posted: Feb 17, 2022

Someone mentioned my symptoms sounded like a collagen issue. Since then my rheumatologist diagnosd an undifferentiated...

https://connect.mayoclinic.org/comment/1102347/

Possible Ehlers-Danlos.

Discussion: Diverticulosis throughout entire colon -anyone?

Support Group: Digestive Health

Posted: Jul 9 12:45pm

I was diagnosed with Central Sensitization a month or so ago by pain medicine. Went to...

https://connect.mayoclinic.org/comment/709533/

from my connective tissue disease, ehlers

Discussion: Central Sensitization - please share your stories

Support Group: Chronic Pain

Posted: May 19, 2022

Some applications of AI, such as machine learning models to assist humans in image analysis, are...

https://connect.mayoclinic.org/comment/1152781/

the high level of ignorance about Ehlers

Newsfeed Post: Patient Experience and AI

Blog: Ehlers-Danlos Syndrome

Posted: Oct 6 8:03am

Your list looks very similar to mine and I’m 37. I am so sorry you’re in...

https://connect.mayoclinic.org/comment/643129/

I was diagnosed with Ehlers Danlos Syndrome

Discussion: Degenerative Disc Disease (DDD)...17 total and counting

Support Group: Spine Health

Posted: Oct 7, 2021

Hi @wittmack, I moved your message to this discussion about Ehlers Danlos syndrome so that you...

https://connect.mayoclinic.org/comment/217847/

your message to this discussion about Ehlers

Discussion: Possible Ehlers-Danlos Syndrome with craniocervical instability

Support Group: Bones, Joints & Muscles

Posted: Feb 29, 2020

Hi there- Have you been diagnosed with Hypermobility Spectrum Disorder (HSD)? Just want to make sure....

https://connect.mayoclinic.org/comment/1005184/

people with HSD or hEDS (hypermobile Ehlers ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome ... find their site helpful: https://www.ehlers-danlos.com

Discussion: I have HSD - has anyone had experiences where something pops out?

Support Group: Autoimmune Diseases

Posted: Jan 28 10:02am

Any Drs in Rochester/MN/WI familiar with Ehlers Danlos (hypermobile)? I have been looking for a Dr...

https://connect.mayoclinic.org/comment/1053895/

Drs in Rochester/MN/WI familiar with Ehlers ... for a Dr that is more familiar with Ehlers

Discussion: Looking for doctor recommendations for Ehlers-Danlos syndrome

Support Group: Bones, Joints & Muscles

Posted: Apr 19 4:20pm

I will see if I can find the article. I was thinking it could be collagen...

https://connect.mayoclinic.org/comment/905452/

having genetic testing next year for Ehlers

Discussion: Diverticulosis throughout entire colon -anyone?

Support Group: Digestive Health

Posted: Jul 31, 2023

Of course- I am sorry for it being months later, though! I'm happy you have an...

https://connect.mayoclinic.org/comment/320394/

deyle-david-r-m-d/bio-20055634 The whole Ehlers-Danlos ... EDS and GI involvement: https://www.ehlers-danlos.com ... eds-classification-non-experts/gastrointestinal-involvement-ehlers-danlos-syndromes

Discussion: Ehlers Danlos Syndrome - Who is the best doctor to see?

Support Group: Bones, Joints & Muscles

Posted: Oct 25, 2020

MAST Cell has been seen with Ehlers-Danlos syndrome. Although I do not understand it completely. There...

https://connect.mayoclinic.org/comment/134287/

MAST Cell has been seen with Ehlers-Danlos

Discussion: Mast Cell Activation

Support Group: Blood Cancers & Disorders

Posted: Jan 17, 2017

I’m taking Effexor time released and love it! Principally used for anxiety/panic. Remember that untreated anxiety...

https://connect.mayoclinic.org/comment/793205/

I also have Ehlers Danlos and I know

Discussion: Depression: What treatment can I try after so many years?

Support Group: Depression & Anxiety

Posted: Jan 6, 2023

Here’s a good article on the vascular type: https://www.ncbi.nlm.nih.gov/books/NBK1494/ This is a great support site for...

https://connect.mayoclinic.org/comment/330154/

support and virtual groups at the Ehlers ... Danlos Society site: https://www.ehlers-danlos.com

Discussion: Ehlers Danlos Syndrome (EDS) & HSD, calling all types!

Support Group: Bones, Joints & Muscles

Posted: Dec 19, 2020

I have no idea, insurance maybe? They always want to go the physical therapy route which...

https://connect.mayoclinic.org/comment/970718/

for me as I have Fibromyalgia and Ehlers

Discussion: Chronic Thoracic Pain

Support Group: Chronic Pain

Posted: Nov 26, 2023