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161 total results
Comments (142)
Idiopathic sensory and motor neuropathy. 52 YO male. Diagnosed w/sensory motor idiopathic neuropathy (N) at 51....
Idiopathic sensory and motor neuropathy ... Diagnosed w/sensory motor idiopathic neuropathy ... says he’s confident I do not have ALS
Support Group: Neuropathy
Posted: Mar 1, 2023
Gardiner, Thanks for the further clarification. There are quite a few discussions about managing the side...
managing the side effect of peripheral neuropathy ... study about Bortezomib-induced painful neuropathy ... for enhancement in the incidence of neuropathy ... study performed by Stubblefied et al ... about ways to reduce the effect of neuropathy
Posted: Dec 14, 2021
Hi. This is new for me, but here goes... I am 49 and had been very...
I, too, was concerned about ALS. ... husband was initially diagnosed with ALS ... condition called multi-focal motor neuropathy
Support Group: Brain & Nervous System
Posted: Aug 23, 2021
@bowerstx Our stories & symptoms sound remarkably similar. I also experience mild twitching in the arch...
frequently makes me concerned about ALS ... have told me to stop worrying about ALS ... know that twitching can be part of neuropathy
Support Group: Neuropathy
Posted: Jul 13, 2021
I appreciate my doctors telling me what's going to happen - I kept after them until...
out, or brain (Alzheimer's et al ... asked the pain doctor if people with neuropathy ... company who is looking for a cure for neuropathy
Support Group: Neuropathy
Posted: Aug 7, 2019
@kgoodwin9 Yes to all you said. One thing you should know is that that there over...
seems to be a combination of hATTRwt, AL ... As for medicines for such as neuropathy
Support Group: Neuropathy
Posted: Jan 2, 2018
@mehlisue Sorry you feel you did not get any support here. I respond to every note...
on line for medicines, and fought neuropathy ... Amyloidosis of some kind, probably AL
Posted: Nov 25, 2017
Thanks. I have no doubt that it may help. I've looked into b vitamins for neuropathy...
I've looked into b vitamins for neuropathy ... recurrence of prostate cancer so the neuropathy ... By Hanberry BS , et al.
Support Group: Neuropathy
Posted: Apr 15, 2016
I was told by my neurologist that ALS is about weakness not numbness. I have read...
I was told by my neurologist that ALS ... I was tested for ALS about 10 months ... I have read stories of ALS patients ... I still am dealing with neuropathy in ... spinal stenosis or cmpression and neuropathy
Support Group: Neuropathy
Posted: Nov 6, 2024
Good morning Bonnie and thank you for your reply and for sharing your information. My name...
angiogram became the “thing to see” by Al ... fibromyalgia with occipital headaches, neuropathy
Posted: Jul 27, 2024
@nsnipes11 (Nan), I just had another thought. It's quite possible that your primary care doctor just...
weird chronic unexplained problem like neuropathy ... that showed why I was concerned about AL ... multiple myeloma, higher risk for AL
Posted: Jan 10, 2024
Hi, @pmm - what to do if the hematologists/oncologists at your clinic "don't treat MGUS"? I...
to my concerns about progressing to AL ... length-dependent axonal peripheral neuropathy ... But what about the peripheral neuropathy
Now having a diagnosis, I just filled out my Bio and will repost here, because it...
Peripheral neuropathy was the presenting ... with no current way to address the neuropathy ... alarmed at the prospect of having AL ... Thus neuropathy isn't a "symptom ... to disorders OTHER than MM, such as AL
Posted: Dec 16, 2023