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2,134 total results

Comments (1,973)

I’m in an area that is very short on Rheumatologists. Therefore, the only bloodwork and diagnosis...

https://connect.mayoclinic.org/comment/939873/

Sjögrens. ... the immense fatigue that goes with Sjögrens ... the depth of issues that come with Sjögrens ... you all manage the fatigue part of Sjögrens ... Do your doctors understand Sjögrens?

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Oct 1, 2023

hello seniormed, I learned something new I was not aware it is available as an eye...

https://connect.mayoclinic.org/comment/944655/

better not go there since with the sjogrens

Discussion: Voltaren gel

Support Group: Bones, Joints & Muscles

Posted: Oct 9, 2023

I've been on Rinvoq for about 3 weeks now and I would have to say that...

https://connect.mayoclinic.org/comment/945374/

diagnosis) and don't think my Sjogren

Discussion: Rinvoq for PMR and GCA - What's your experience?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Oct 10, 2023

This was just flagged low on my bloodwork. Was on rituxin but off for a year...

https://connect.mayoclinic.org/comment/946937/

Sle Sjogrens fibro small fiber nueropathy

Discussion: Treatment for (low) IgA deficiency

Support Group: Blood Cancers & Disorders

Posted: Oct 13, 2023

I was diagnosed with RA and secondary Sjogren's in June 2023. I have been ill since...

https://connect.mayoclinic.org/comment/929227/

was diagnosed with RA and secondary Sjogren

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Sep 13, 2023

Blurriness is usually due to dry eyes and dehydration, not the medication itself. I use Systane...

https://connect.mayoclinic.org/comment/926066/

(I have MCTD/Sjogrens)

Discussion: Plaquenil eye problems

Support Group: Autoimmune Diseases

Posted: Sep 7, 2023

My scalp has been doing this for over a year now red, flaky and hair falling...

https://connect.mayoclinic.org/comment/926260/

I’ve just thought it was part of sjogrens

Discussion: Rare scalp Autoimmune disease… lichen planopilaris

Support Group: Autoimmune Diseases

Posted: Sep 8, 2023

Hello. My mom is currently in the hospital, not Mayo; although we would love her to...

https://connect.mayoclinic.org/comment/929070/

She has systemic lupus and sjogrens.

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Sep 12, 2023

Have you had the test through a rheumatologist? I have had it for years unaware but...

https://connect.mayoclinic.org/comment/796034/

was diagnosed with auto immune and sjogrens

Discussion: Undiagnosed Autoimmune Disease - No one will listen to me

Support Group: Autoimmune Diseases

Posted: Jan 13, 2023

I do have cats. I lost my dog in January too old age. I work as...

https://connect.mayoclinic.org/comment/884607/

sun and heat with my raynauds and sjogrens

Discussion: How do u deal with the depression?

Support Group: Autoimmune Diseases

Posted: Jun 25, 2023

I just watched a neuro immunologist speak named Aaron Boster on some of the invisible symptoms...

https://connect.mayoclinic.org/comment/885614/

I have Sjogrens Disease and it affects

Discussion: Trigeminal Neuralgia, Sjogrens Disease or something else?

Support Group: Autoimmune Diseases

Posted: Jun 26, 2023

I was just diagnosed by my new rheumatologist Thusday (2nd visit, going over labs) with Sjogren's....

https://connect.mayoclinic.org/comment/888699/

(2nd visit, going over labs) with Sjogren

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jul 2, 2023

Looks like a classic butterfly rash found in Lupus if ever I saw one. Did you...

https://connect.mayoclinic.org/comment/888135/

Lupus but I remained seronegative for Sjögrens

Discussion: Can I have an autoimmune disease with perfect lab results?

Support Group: Autoimmune Diseases

Posted: Jul 1, 2023

Thank you everyone for your helpful and supportive comments and suggestions. To answer a few questions:...

https://connect.mayoclinic.org/comment/904643/

rheumatologist diagnosed me with RA and sjogren

Discussion: Is this an autoimmune rash?

Support Group: Autoimmune Diseases

Posted: Jul 30, 2023

I am reporting back in on my 1444 CAC score from December of 2022, and my...

https://connect.mayoclinic.org/comment/904881/

For me, Celiac Disease and Sjogrens ... But it is the Sjogrens and its inflammatory

Discussion: High Coronary Calcium Score: How do others feel emotionally?

Support Group: Heart & Blood Health

Posted: Jul 30, 2023

Hi Cindylb, Sometimes Sjogrens doesn't show up in your SSA or SSB blood work. But you...

https://connect.mayoclinic.org/comment/908113/

Hi Cindylb, Sometimes Sjogrens doesn ... other diseases that can be a result of Sjogrens

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Aug 5, 2023

Please tell me what the AIP diet is. I also have Sjogrens, Schlerderma and have an...

https://connect.mayoclinic.org/comment/892667/

I also have Sjogrens, Schlerderma and

Discussion: Plant-based diet for autoimmune?

Support Group: Autoimmune Diseases

Posted: Jul 9, 2023

I just had a consultation today, leading up to my byopsis for small fiber neuropathy next...

https://connect.mayoclinic.org/comment/950442/

we have met since my diagnosis of Sjogren ... the neurologist agreed. "Seems Sjogren

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Oct 19, 2023

Hi, The docs have me on Lasix and Lipitor and a very strict salt control with...

https://connect.mayoclinic.org/comment/989563/

Since I have Sjogrens, the liquid is

Discussion: Stiff Heart - diastolic heart failure

Support Group: Heart & Blood Health

Posted: Jan 1 8:26am

Thanks for your reply. Some of the notes I have read have said this. I suck...

https://connect.mayoclinic.org/comment/990275/

suck on peppermint mints as I have Sjogrens

Discussion: Constant feeling of needing to clear my throat

Support Group: Digestive Health

Posted: Jan 2 11:20am