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Comments (1,323)

Hi, I feel for you and the constant pain you are in. I know firsthand how...

https://connect.mayoclinic.org/comment/1272050/

Especially for patients with CRPS.

Discussion: Complex Regional Pain Syndrome

Support Group: Chronic Pain

Posted: Apr 1 6:25pm

Hope I'm writing in the right space! I just looked at my first You Tube of...

https://connect.mayoclinic.org/comment/1134687/

I've heard of CRPS, all the letters

Discussion: Gabapentin and Cymbalta side effects

Support Group: Chronic Pain

Posted: Sep 1, 2024

I was born with scoliosis (adopted). I fell about 15 yrs ago & fractured my left...

https://connect.mayoclinic.org/comment/149466/

in 1996 % developed RSD/now called CRPS

Discussion: Scoliosis - Introduce yourself and meet others

Support Group: Spine Health

Posted: Feb 5, 2018

Sorry to hear about your condition. As you explained, it sounds like you dont have a...

https://connect.mayoclinic.org/comment/1376126/

Now they call it CRPS complex regional

Discussion: Lymphedema chronic ankle issues?

Support Group: Lymphedema

Posted: Aug 21 3:32pm

Curious, because it was an MD at a hospital, did your insurance pay? (For general info...

https://connect.mayoclinic.org/comment/1199855/

Like with CRPS, I basically keep it

Discussion: Oral LP - first upcoming periodontist cleaning

Support Group: Autoimmune Diseases

Posted: Dec 29, 2024

I have POTS from having long COVID. I can't imagine having it prior to having long...

https://connect.mayoclinic.org/comment/978969/

about falling and have neuropathy and CRPS

Discussion: POTS, Pre- or Post-COVID: Where did you find treatment and what helps?

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 12, 2023

I was diagnosed with CRPS after total knee replacement. The pain was so bad I am...

https://connect.mayoclinic.org/comment/903085/

I was diagnosed with CRPS after total

Discussion: CRPS/pain syndrome. is it time for a mobility device. Embarrassed.

Support Group: Chronic Pain

Posted: Jul 27, 2023

Nearly 21 years with CRPS. Original injury: oilfield accident slipped and fell dislocating my R knee...

https://connect.mayoclinic.org/comment/741782/

Nearly 21 years with CRPS.

Discussion: Complex regional pain syndrome (CRPS) and feeling blank

Support Group: Chronic Pain

Posted: Aug 25, 2022

@rsnowflake @barbbie I live in New York. I was pretty healthy before my ankle fracture. But...

https://connect.mayoclinic.org/comment/254847/

I’ve been reading that people with CRPS

Discussion: CRPS Question: Itching

Support Group: Chronic Pain

Posted: Mar 14, 2019

My name is Kathy Vienna( I believe my on line tag is #kvienna) I haven't been...

https://connect.mayoclinic.org/comment/156220/

if there is any new information on CRPS

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Sep 19, 2017

I look into acupuncture in our area we do not have no one and same with...

https://connect.mayoclinic.org/comment/89092/

Doctor's think it might be CRPS but

Discussion: Complex regional pain syndrome or reflex sympathetic dystrophy

Support Group: Chronic Pain

Posted: Apr 10, 2017

I have POTS from Long COVID which attacked my autonomic nervous system causing several life long...

https://connect.mayoclinic.org/comment/984372/

#39;t wear compression socks due to CRPS ... pressure impacts my neuropathy and CRPS

Discussion: Some possible answers: Diagnosed with POTS

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 21, 2023

fibromyalgia is totally different then CRPS or the original name Reflex Sympathetic Dystrophy. It dates back...

https://connect.mayoclinic.org/comment/1090649/

fibromyalgia is totally different then CRPS ... If anyone has CRPS with spasms especially ... so many doctors have no idea what CRPS

Discussion: CRPS - anyone suffering with complex regional pain syndrome

Support Group: Chronic Pain

Posted: Jun 20, 2024

Hi, reviving old thread. I've had 4 surgeries, last one in 1987. My back has been...

https://connect.mayoclinic.org/comment/1059122/

(I live with CRPS from the hips down ... With CRPS anything invasive is a no-no ... I've lived witg crps pain for 45

Discussion: Pain on right upper buttock cheek that does not radiate

Support Group: Bones, Joints & Muscles

Posted: Apr 29, 2024

I was dx by a trip to the ER with burning foot pain. I was at...

https://connect.mayoclinic.org/comment/1013039/

specialist who was very familiar with CRPS

Discussion: CRPS - anyone suffering with complex regional pain syndrome

Support Group: Chronic Pain

Posted: Feb 10, 2024

Very sorry this happened to you. Yes the medical field and judicial system in this country...

https://connect.mayoclinic.org/comment/886106/

the question bc I would end up with crps

Discussion: Anyone been diagnosed with arachnoiditis after spine surgery?

Support Group: Spine Health

Posted: Jun 27, 2023

Born premature, massive stroke at 6 months old gave me right sided mild cerebral palsy with...

https://connect.mayoclinic.org/comment/812184/

related to the CP), diagnosed with CRPS

Discussion: A Neurological Cocktail , Anyone Else?

Support Group: Brain & Nervous System

Posted: Feb 15, 2023

Hi, I'm doing well. Thank you for the update! Remember, the settings on your implant can...

https://connect.mayoclinic.org/comment/797223/

welcomed and helpful to those with CRPS

Discussion: RSD/CRPS

Support Group: Brain & Nervous System

Posted: Jan 15, 2023

Hi John, Thanks for the links to the rare disorder/ disease of CRPS. I’ve been dealing...

https://connect.mayoclinic.org/comment/157617/

links to the rare disorder/ disease of CRPS

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Aug 9, 2019

@faithwalker007 Renee, You are in the worst place to get pain management. If you do find...

https://connect.mayoclinic.org/comment/160017/

therapy, and gets good results with CRPS

Discussion: CRPS - anyone suffering with complex regional pain syndrome

Support Group: Chronic Pain

Posted: Nov 9, 2020