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joseywales
@joseywales

Posts: 4
Joined: Nov 29, 2018

CRPS of the stomach or abdomen

Posted by @joseywales, Thu, Nov 29 12:25pm

If anyone has any info it would be great My daughter was diagnosed with CRPS years ago and had been doing ok from various treatments , but going back more than 2 yrs ago she got pregnant and started having problems turns out she had gall stones believe it or not over 75 of them (pictures if needed) but ever since having her gall bladder removed and delivering a beautiful healthy baby girl she has had stomach/abdomen troubles with pain so severe that she ends up in emergency where they run the same series of test and of course find nothing, the pain is unbearable and she vomits very frequently she has had some of the best GI Doctors who have given up on her because they can not figure it out in Emergency they give her morphine or dilaudid and once the pain subsides she is able to go home until the next bout or flare comes up, since her last episode she has spoken to a woman whos husband has CRPS AND SHE ACTUALLY FOUND OUT THAT THE HUSBAND HAS THE SAME TROUBLES MASSIVE PAIN, TEST PAINKILLERS, sorry caps, So my question is Is there anyone else out there that is going thru the same troubles and if you have found any relief, what are you getting the relief from, any answers info greatly appreciated, thank you, CONCERNED FATHER

REPLY

I do not know what the letters CRPS stand for, but I am very familiar with the type of attacks your daughter is having. I havehad eight attacks so far, abd I have been diagnosed with residual gallstones. I had my gallbladder removed March 2017 and had my first “attack” September of this year. Felt likea gallbladder attack (INTENSE pain, nausea, vomiting, pain up my right shoulder, etc. I had never heard of residual gallstones, but they exist. I am getting ready to have a procedure where the surgeon will remove mine. I pray I have no more attacks before then.

but are they able to see the residual gallstones and where are they because I am pretty certain she has had numerous ultrasounds and a scope down her throat xrays every test and they haven't found anything, Please tell me how were they able to see them and find them and where are they located, because your pain sounds the same as hers. and thank you for the reply

@joseywales

but are they able to see the residual gallstones and where are they because I am pretty certain she has had numerous ultrasounds and a scope down her throat xrays every test and they haven't found anything, Please tell me how were they able to see them and find them and where are they located, because your pain sounds the same as hers. and thank you for the reply

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Joseywales, I will have more info for you after a “special” MRI they are doing Tuesday. What I can tell you is that they did an upper GI to rule out some other potential causes of my pain. I believe the diagnosis is at least partly based on my symptoms: i kept telling the 911 responders that the pain felt EXACTLY like a gallbladder attack, complete with pain up the right shoulder, nausea, band of steel around my middle, non-relenting pain, etc. The digestive specialist I saw says he is sure it is residual gallstones that can be removed via an endoscopic procedure, even if the stones are lodged in the duct from my liver. To answer your question, they hope to see the stones via this special type of MRI. Please give your daughter my very best wishes, and stay strong.

@capausz

Joseywales, I will have more info for you after a “special” MRI they are doing Tuesday. What I can tell you is that they did an upper GI to rule out some other potential causes of my pain. I believe the diagnosis is at least partly based on my symptoms: i kept telling the 911 responders that the pain felt EXACTLY like a gallbladder attack, complete with pain up the right shoulder, nausea, band of steel around my middle, non-relenting pain, etc. The digestive specialist I saw says he is sure it is residual gallstones that can be removed via an endoscopic procedure, even if the stones are lodged in the duct from my liver. To answer your question, they hope to see the stones via this special type of MRI. Please give your daughter my very best wishes, and stay strong.

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please let me know after tues and thank you

I will update you as soon as I know the results of the test. Stay strong.

unfortunately my daughter was rushed to the hospital at 4am this morning in excruciating abdominal pain no one knows why no one knows what is going on 3 of her doctors have given up because they do not know what is going on this is approximately the 13th time in a calendar year she has been in for pain management just to make her feel better but in no way do they try to figure out what is happening with her, so if you found anything out please update me, more than likely the cases are not related but at this point I will listen to anything, thank you

My doctor’s office called today with a report on my MRI done earlier this week. The MRI showed NO abnormality. Nothing. And even more surprising to me is that the doctor wants to wait six weeks to see me. Very frustrating. The attacks continue and seem to come out of nowhere. Do not appear to be related to eating or not eating, activity or no activity. So I continue to take two pantoprazole 40 mg pills per day, take three or four Tums at the first hint of indigestion (usually not close to meal times), drink a little Diet Coke or other carbonated drink to help me burp up some gas, and hang on to my body while I moan in pain. I try very hard to stay out of ER ($150 copay each time), and my doctor said to NOT take pain medication during an attack. I find once I am nauseous, I soon begin to notice less pain.

I had so hoped to have more information for both myself and your daughter. My last attack about three weeks ago was the longest and the most painful. Wondering if I passed a gallstone? Impossible to know. I am so very sorry I could not help you and your poor daughter. I do empathize with her: the brutal pain, the not knowing what is going on, and the waiting for the next attack. God bless. Please keep me posted, and I will certainly contact you if I learn anything new. I now feel my doctor is clueless and just waiting to see what happens…. Stay strong.

@joseywales

unfortunately my daughter was rushed to the hospital at 4am this morning in excruciating abdominal pain no one knows why no one knows what is going on 3 of her doctors have given up because they do not know what is going on this is approximately the 13th time in a calendar year she has been in for pain management just to make her feel better but in no way do they try to figure out what is happening with her, so if you found anything out please update me, more than likely the cases are not related but at this point I will listen to anything, thank you

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@joseywales Im so sorry to hear this There are so many things it can be even radiating from someplace else ,her head ,her back ,appendix are you close to a Mayo Clinic or any of there sattelites? Im sorry I dont have anything else In my case I had years ago pain in my stomach /chest area Im a big believer in chiropractic treatment ,so I went to mine, at the time he adjusted my back as it was it turned out to be a nerve that was pinched in that stomach nerve as soon as he released it ,my pain left this is my story of abd .pain

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