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Comments (2,272)

I was Dx with Sjogrens last year, Sjogrens primary-cutanious b-cell lymphoma ?secondary. Also RA and ....,...

https://connect.mayoclinic.org/comment/73358/

I was Dx with Sjogrens last year, Sjogrens ... Sjogrens? Pain? Who knows?

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Apr 13, 2012

I have connective tissue disease (ehlers danlos) with Sjogrens running in my family. Did the plaquinel...

https://connect.mayoclinic.org/comment/1224909/

tissue disease (ehlers danlos) with Sjogrens

Discussion: Burning mouth syndrome (BMS): Is this an autoimmune disease?

Support Group: Autoimmune Diseases

Posted: Jan 29 4:22pm

Hello! You sound like me! That also sounds like Sojgrens and S.F.N. I'm to see my...

https://connect.mayoclinic.org/comment/1225628/

That also sounds like Sojgrens and S.F.N

Discussion: I have S.F.N. and Sojgrens pain moving bowels

Support Group: Autoimmune Diseases

Posted: Jan 30 2:29pm

Go see a neuromuscular neurologist get tested by emg/nerve conduction testing peripheral neuropathy along with biopsy...

https://connect.mayoclinic.org/comment/1231462/

Sjogrens I went to ENT had a biopsy ... for sjogrens they remove four glands ... and the glands tested positive for Sjogrens

Discussion: My wife has had neck pain despite having injections and ACDF surgery.

Support Group: Spine Health

Posted: Feb 7 10:06am

@mazel47 I’ve also been using blink RX with $0 copay until last month so I’m appealing...

https://connect.mayoclinic.org/comment/1211723/

I have Sjogren’s and these are the best

Discussion: Does anyone have any experience with MEIBO (PF) drops for dry eyes?

Support Group: Eye Conditions

Posted: Jan 15 2:13am

I have had joint & muscle pain for as long as I can remember. I had...

https://connect.mayoclinic.org/comment/55392/

IBS, dry eyes & mouth(possibly sjogrens

Discussion: Ankylosing spondylitis: anyone else?

Support Group: Spine Health

Posted: Apr 27, 2012

Penn, I can see that we both have lots of questions. I will try to answer...

https://connect.mayoclinic.org/comment/1147810/

Sjogrens is thought to use B lymphocytes ... mouth and skin that are caused by Sjogrens

Discussion: Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's

Support Group: Autoimmune Diseases

Posted: Sep 26, 2024

Hello Shelly, I was going to Columbia Presbyterian Hospital, NYC, If you live an hour to...

https://connect.mayoclinic.org/comment/1146855/

sent to ENT, lip biopsy, positive for Sjogren

Discussion: Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's

Support Group: Autoimmune Diseases

Posted: Sep 24, 2024

penn, pSS is so much much more than just dryness (SICCA) issues, as you are proof...

https://connect.mayoclinic.org/comment/1146770/

I love Sjögren's Advocate site.

Discussion: Managing Small Fiber Neuropathy, Sjogren's, Hashimoto's

Support Group: Autoimmune Diseases

Posted: Sep 24, 2024

Becky, I have completed the 100% naystin medication where you rinse, gargle, and swallow rather than...

https://connect.mayoclinic.org/comment/857886/

infection in my mouth he suspects Sjogrens ... problems, it is possible that I have Sjogrens

Discussion: Burning mouth syndrome (BMS): Is this an autoimmune disease?

Support Group: Autoimmune Diseases

Posted: May 10, 2023

I have had it for years also. Mine began when I had Lyme disease years ago....

https://connect.mayoclinic.org/comment/854108/

believe it might be connected with Sjogren

Discussion: Burning mouth syndrome (BMS): Is this an autoimmune disease?

Support Group: Autoimmune Diseases

Posted: May 4, 2023

You are not alone! I have Erles Danlos, POTS, RA, Sjorgens syndrome, Fibromyalgia, and peripheral neuropathy....

https://connect.mayoclinic.org/comment/1239943/

I have Erles Danlos, POTS, RA, Sjorgens

Discussion: Invisible illness how do you cope?

Support Group: Autoimmune Diseases

Posted: Feb 18 12:46pm

About five years ago I've lost my taste suddenly, was awful, but got used to it...

https://connect.mayoclinic.org/comment/1237225/

My Dr think I might have Sjogrens syndrome

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 15 6:48am

I have Sojgrens and Small Fiber NEUROPOTHY! Pain is so bad. It also affects bowels and...

https://connect.mayoclinic.org/comment/1279205/

I have Sojgrens and Small Fiber NEUROPOTHY

Discussion: Sjogren's and small fiber neuropathy: Seeing a rheumatologist

Support Group: Autoimmune Diseases

Posted: Apr 11 9:24am

Yes I have had two skin punch biopsies two years apart to see how fast progression....

https://connect.mayoclinic.org/comment/1279293/

lupus, connective tissue disorders, Sjogrens

Discussion: Has anyone found anything that helps constant tingling in the feet and

Support Group: Neuropathy

Posted: Apr 11 10:33am

I am so sorry you went through this. I guess I must have had mono at...

https://connect.mayoclinic.org/comment/1273122/

They thought it was Sjogrens. ... went to Rheumatology to be tested for Sjogrens

Discussion: Does EBV cause Neurological Symptoms?

Support Group: Infectious Diseases

Posted: Apr 3 8:29am

Is there a lab test for Sjogrens? How do they diagnose it?

https://connect.mayoclinic.org/comment/1280105/

Is there a lab test for Sjogrens?

Discussion: Sjogren's and small fiber neuropathy: Seeing a rheumatologist

Support Group: Autoimmune Diseases

Posted: Apr 12 11:42am

I had a terrible rash caused by omeprazole 40. Which my dr prescribed as precautionary. I...

https://connect.mayoclinic.org/comment/1276619/

me to rheumatologist, who diagnosed Sjogrens

Discussion: Allergic reaction!

Support Group: Autoimmune Diseases

Posted: Apr 7 5:29pm

I came across mayo clinic connect as it piped up on my cell phone. Beginning in1998...

https://connect.mayoclinic.org/comment/315656/

I was not diagnosed wit Sjögren’s until ... searched several website dealing with Sjögrens

Discussion: Members list: How do I become a member of a group?

Posted: Jul 5, 2020

My pain is from the SFN. Sjogrens mainly causes dry eyes and dry mouth. https://www.mayoclinic.org/diseases-conditions/sjogrens-syndrome/symptoms-causes/syc-20353216#:~:text=Sjogren's%20(SHOW%2Dgrins)%20syndrome,as%20rheumatoid%20arthritis%20and%20lupus. Sjogrens...

https://connect.mayoclinic.org/comment/1283271/

Sjogrens mainly causes dry eyes and ... www.mayoclinic.org/diseases-conditions/sjogrens-syndrome ... symptoms-causes/syc-20353216#:~:text=Sjogren ... Sjogrens is called the sister disease

Discussion: Sjogren's and small fiber neuropathy: Seeing a rheumatologist

Support Group: Autoimmune Diseases

Posted: Apr 16 11:17am