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927 total results
Comments (883)
Hi Michael, Welcome to Connect. I also have small fiber PN but only have the numbness,...
I also have small fiber PN but only ... have the numbness, so no medications help ... I shared my story and what has helped ... thought you might find these sites helpful ... list of treatments that have shown to help
Support Group: Neuropathy
Posted: Jan 19, 2023
Greetings @alfer. As @johnbishop mentioned, nortryptyline was the first medication my neurologist prescribed in hope that...
It was very helpful and I continued ... dosage has been increased as the SFN (small ... fiber neuropathy) symptoms increased ... What else are you using to control the ... effects of neuropathy?
Support Group: Neuropathy
Posted: Nov 26, 2022
Thank you all so much. You helped me. I been watching the group for awhile but,...
You helped me. ... I just didn't know what to expect ... Maybe being able to talk to people helped ... a "small fiber neuropathy" ... lol...people just look at me like...what
Support Group: Neuropathy
Posted: Nov 26, 2022
Hello @barrye, Welcome to Connect. Great advice, I also believe in taking it one day at...
Journey Stories: What's Yours? ... fortunate in that my only symptoms from my small ... fiber peripheral neuropathy is some ... treatments that others have found helpful ... You mentioned acupuncture didn't help
Support Group: Neuropathy
Posted: Nov 22, 2022
@foxauthor good morning. I have been diagnosed with CIDP but not all my doctors agree. Some...
I have small fiber neuropathy by punch ... well as neurologist that that would help ... Does this sound like what you have?
Support Group: Autoimmune Diseases
Posted: Jan 21, 2023
Welcome @rosaliemarie, Similar to what my Mayo neurologist told me after I was diagnosed with idiopathic...
Welcome @rosaliemarie, Similar to what ... after I was diagnosed with idiopathic small ... fiber peripheral neuropathy. ... there are no drugs or topicals that help ... What symptoms do you have with your
Support Group: Neuropathy
Posted: Jan 10, 2023
Good evening @dorth14 and welcome to Connect. Osteoporosis and Bone Health is a new group on...
I have SFN, small fiber neuropathy so ... work on everything together.......what ... I am sure you can help others live a
People, friends and family don’t understand the disease because you look normal to them. If you...
We know what you’re going through. ... there and can give ideas on how to help ... I also have autonomic Neuropathy. ... I have small fiber non length dependent ... neuropathy from the tip of my toes
Support Group: Neuropathy
Posted: Nov 7, 2022
Hello @jt67, Sounds like you have a lot going on. Wished I had some magic bullets...
some magic bullets for you to fix what ... you might find it interesting if not helpful ... Dysautonomia International Conference I: Small ... Fiber Neuropathy, POTS, MCAS and Vagus
Support Group: Neuropathy
Posted: Nov 7, 2022
Good evening @christmastime. Northern Canada...... does get cold. I am in Minnesota. Also gets cold here....
I don't know if I can help with ... After about 5 years with SFN (small ... fiber neuropathy), I developed serious ... episodes and I was at a loss to find out what ... find out it might be called a "neuropathic
Support Group: Neuropathy
Posted: Nov 6, 2022
Thank you for your kind comments. As for CBT tools, I think the most powerful thing...
She is thorough, letting me know what ... He found both small and large fiber ... neuropathy. ... It has helped with some things, which ... The fact that the Baclofen has helped
Support Group: Chronic Pain
Posted: Oct 11, 2022
@usadavidh I’m so sorry to hear you’ve not been able to find any relief. I truly...
I have small fiber neuropathy and autonomic ... neuropathy. ... My doctor says the autonomic neuropathy ... This forum really helps! ... May I ask what medications you’ve tried
Support Group: Neuropathy
Posted: Feb 3, 2022
Good morning @irr4et, OOPS......it looks like you may have gone overboard on the THC. Do you...
That is what THC is supposed to do. ... effective you combine it with THC to get what ... other pain medications to control my small ... fiber neuropathy. ... If you would like me to help you with
Support Group: Chronic Pain
Posted: Jan 25, 2022
Hi Rick @rickhood, Reading your story kind of feels little like my own story. My wife...
Journey Stories: What's Yours? ... Clinic neurologist was idiopathic small ... fiber peripheral neuropathy but since ... are no real answers or treatments to help ... diagnosis, I think I might try seeking help
Support Group: Neuropathy
Posted: Jan 9, 2022
Good evening Chas, @wideawakechas, Yes, my treatments are a form of UVB light delivered to the...
I have episodes of neuropathic itch ... as one element of SFN (small fiber neuropathy ... ) The light treatment helps just like ... sitting on the beach helps. ... Is that what keeps you up all night?
Support Group: Neuropathy
Posted: Nov 25, 2021
@scootwagon, I think it's great that you are doing your own research and learning as much...
That's what brought me to Connect ... and I was diagnosed with idiopathic small ... fiber PN but there were no treatments ... that helped so the neurologist said ... the diet/lifestyle changes myself to help
Support Group: Neuropathy
Posted: Mar 12, 2022
Hello @janineca, Welcome to Connect. I'm happy to see that you have already connected with @trishh....
they have tried and what helps them ... NIH is a good site to learn about small ... fiber neuropathy. ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... found Myofascial Release Therapy (MFR) helpful
Support Group: Neuropathy
Posted: Feb 28, 2022
Hello there @julkun - Do I ever hear you loud and clear! You have your finger...
we continue to let our life box be small ... umbrella over many diagnoses like small ... fiber neuropathy and others: - https ... What is your first personal goal? ... How can I help you further?
Support Group: Neuropathy
Posted: Feb 22, 2022
I have severe constipation. I have always been constipated but this is on a whole different...
I do suffered from automatic small ... fiber neuropathy and I am quite sure ... Not a single one helped, they worked ... They are really small so I don’t mind ... I took the smart pill test to see what
Support Group: Digestive Health
Posted: Dec 27, 2021
Stuff That Works is an online crowdsourcing platform that collects data to help with medical research....
crowdsourcing platform that collects data to help ... https://www.stuffthatworks.health/small-fiber-neuropathy ... far, there are 800 contributors for neuropathy ... s been interesting to read through what ... works and what hasn't worked.
Support Group: Neuropathy
Posted: Feb 16, 2022