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Comments (966)
Hello @mrsharky28, I would like to add my welcome to Connect along with @aaroncush and @artscaping....
as you can about your condition and what ... treatment options may help. ... discussions helpful: --- What helps ... the symptoms of Small Fiber Neuropathy ... connect.mayoclinic.org/discussion/tingling-from-small-fiber-neurapathy
Support Group: Neuropathy
Posted: Mar 9, 2023
Hi Jordan @sfn, I also have small fiber neuropathy and experience cold feet at night but...
Hi Jordan @sfn, I also have small fiber ... neuropathy and experience cold feet ... - need help: https://connect.mayoclinic.org ... /discussion/cold-feet-need-help// ... the discussion where you can read what
Support Group: Neuropathy
Posted: Mar 7, 2023
When I asked my neurologist about treatments, he said the best treatment was to treat the...
underlying condition that caused the small ... fiber neuropathy. ... left, I asked him to precisely detail what ... When medicine doesn't help, I adjust ... @davelobb12 I hope this helps, and I
Discussion: SFN in feet
Support Group: Neuropathy
Posted: Feb 18, 2023
@kumye, I know it's the pits not knowing the cause of small fiber neuropathy but the...
the pits not knowing the cause of small ... fiber neuropathy but the truth is even ... you find a cure if that is what you ... aaroncush said, the trick is to find what ... but the Foundation for Peripheral Neuropathy
Support Group: Neuropathy
Posted: Jan 27, 2023
@foxauthor good morning. I have been diagnosed with CIDP but not all my doctors agree. Some...
I have small fiber neuropathy by punch ... well as neurologist that that would help ... Does this sound like what you have?
Support Group: Autoimmune Diseases
Posted: Jan 21, 2023
Hi Michael, Welcome to Connect. I also have small fiber PN but only have the numbness,...
I also have small fiber PN but only ... have the numbness, so no medications help ... I shared my story and what has helped ... thought you might find these sites helpful ... list of treatments that have shown to help
Support Group: Neuropathy
Posted: Jan 19, 2023
Welcome @rosaliemarie, Similar to what my Mayo neurologist told me after I was diagnosed with idiopathic...
Welcome @rosaliemarie, Similar to what ... after I was diagnosed with idiopathic small ... fiber peripheral neuropathy. ... there are no drugs or topicals that help ... What symptoms do you have with your
Support Group: Neuropathy
Posted: Jan 10, 2023
Hi @nycami, Thank you for the private message. I thought I would respond in the discussion...
discussion on Ear Tinnitus and Pain with Neuropathy ... share their thoughts or suggestions on what ... has helped them. ... tinnitus or ear pain along with my small ... fiber peripheral neuropathy.
Support Group: Neuropathy
Posted: Dec 26, 2022
Hello @missingnj, Welcome to Connect. You are definitely not alone! You will notice that we moved...
/connect.mayoclinic.org/discussion/small-fiber-neuropathy ... / One thing that helped me was to ... much as I can about my condition and what ... treatments are available that might help ... treatments that some people have found helpful
Support Group: Neuropathy
Posted: Dec 13, 2022
Greetings @alfer. As @johnbishop mentioned, nortryptyline was the first medication my neurologist prescribed in hope that...
It was very helpful and I continued ... dosage has been increased as the SFN (small ... fiber neuropathy) symptoms increased ... What else are you using to control the ... effects of neuropathy?
Support Group: Neuropathy
Posted: Nov 26, 2022
Thank you all so much. You helped me. I been watching the group for awhile but,...
You helped me. ... I just didn't know what to expect ... Maybe being able to talk to people helped ... a "small fiber neuropathy" ... lol...people just look at me like...what
Support Group: Neuropathy
Posted: Nov 26, 2022
Hello @barrye, Welcome to Connect. Great advice, I also believe in taking it one day at...
Journey Stories: What's Yours? ... fortunate in that my only symptoms from my small ... fiber peripheral neuropathy is some ... treatments that others have found helpful ... You mentioned acupuncture didn't help
Support Group: Neuropathy
Posted: Nov 22, 2022
People, friends and family don’t understand the disease because you look normal to them. If you...
We know what you’re going through. ... there and can give ideas on how to help ... I also have autonomic Neuropathy. ... I have small fiber non length dependent ... neuropathy from the tip of my toes
Support Group: Neuropathy
Posted: Nov 7, 2022
Hello @jt67, Sounds like you have a lot going on. Wished I had some magic bullets...
some magic bullets for you to fix what ... you might find it interesting if not helpful ... Dysautonomia International Conference I: Small ... Fiber Neuropathy, POTS, MCAS and Vagus
Support Group: Neuropathy
Posted: Nov 7, 2022
Good evening @christmastime. Northern Canada...... does get cold. I am in Minnesota. Also gets cold here....
I don't know if I can help with ... After about 5 years with SFN (small ... fiber neuropathy), I developed serious ... episodes and I was at a loss to find out what ... find out it might be called a "neuropathic
Support Group: Neuropathy
Posted: Nov 6, 2022
Thank you for your kind comments. As for CBT tools, I think the most powerful thing...
She is thorough, letting me know what ... He found both small and large fiber ... neuropathy. ... It has helped with some things, which ... The fact that the Baclofen has helped
Support Group: Chronic Pain
Posted: Oct 11, 2022
Good evening @dorth14 and welcome to Connect. Osteoporosis and Bone Health is a new group on...
I have SFN, small fiber neuropathy so ... work on everything together.......what ... I am sure you can help others live a
Good afternoon @martyk, Thanks for the post regarding nighttime pain from SFN (small fiber neuropathy). As...
regarding nighttime pain from SFN (small ... fiber neuropathy). ... I have found a new medication for neuropathic ... What have you found helpful that can ... help you have a restful night's
Support Group: Neuropathy
Posted: Sep 10, 2022
First of all you described small fiber sensory neuropathy along with autonomic neuropathy. You are experiencing...
First of all you described small fiber ... sensory neuropathy along with autonomic ... neuropathy. ... What has helped me with the symptoms ... Most physicians don’t have a clue what
Support Group: Brain & Nervous System
Posted: Sep 4, 2022
@tpea, Welcome to Connect. As you noted, this forum is committed to sharing experiences in order...
ourselves with the feedback or help ... Medicare appointment with my PCP, here is what ... test returned a diagnosis of SFN (small ... fiber neuropathy). ... What else would help at this point?
Support Group: Neuropathy
Posted: Aug 2, 2022