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248 total results

Comments (230)

Hi Patrick, (@drwill) Please accept my delayed welcome to Connect. I see you were recently diagnosed...

https://connect.mayoclinic.org/comment/890524/

see you were recently diagnosed with WM ... is also used for forms other than WM ... @jam5 ~whose husband has WM received ... xfe0f; @ejrquast is a member in the WM ... shares very helpful information about WM

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jul 5, 2023

I apologize for not responding today but I will have the specialist info for you tomorrow....

https://connect.mayoclinic.org/comment/692009/

: https://iwmf.com/newly-diagnosed-wm

Discussion: Waldenstroms and amyloidosis

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2022

Hi @travelmom4 , [I was dx'd with SMZL, WM, and CLL.] I have an IgM of...

https://connect.mayoclinic.org/comment/1341472/

travelmom4 , [I was dx'd with SMZL, WM ... Other WM-specific test - my Kappa FLCs

Discussion: Waldenstrom macroglobulinemia: What can I expect with chemo?

Support Group: Blood Cancers & Disorders

Posted: Jul 5 9:42am

Linda, I was diagnosed with WM in 2014. I posted recently and included my connection with...

https://connect.mayoclinic.org/comment/663061/

Linda, I was diagnosed with WM in 2014

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Dec 16, 2021

Hi @vgdmayo. Just thought I would check in with you to see if your husband was...

https://connect.mayoclinic.org/comment/1179615/

able to get a second opinion with his WM

Discussion: Second Opinions: How do I get one at Mayo Clinic out-of state?

Support Group: Blood Cancers & Disorders

Posted: Nov 25, 2024

Is Torsemide and Farxiga, good or bad in your treatment. My daughter has been diagnosed with...

https://connect.mayoclinic.org/comment/884620/

daughter has been diagnosed with WM

Discussion: Understanding GFR and kidney disease: What's normal?

Support Group: Kidney & Bladder

Posted: Jun 25, 2023

What is your plan to treat WM? Do you live near a good hospital rather than...

https://connect.mayoclinic.org/comment/845456/

What is your plan to treat WM?

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Apr 18, 2023

I have the similar symptoms and have gotten 12 infusions of Rituxan over the course of...

https://connect.mayoclinic.org/comment/898509/

WM is better (reduced from bone marrow

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jul 19, 2023

@donnado Welcome to Mayo Clinic Connect? I’m so glad you found the group and that you...

https://connect.mayoclinic.org/comment/1166358/

Can i ask what WM stands for?

Discussion: Free Autoimmune Virtual Support Group

Support Group: Autoimmune Diseases

Posted: Nov 1, 2024

Good Afternoon, I am new to the group, so I have much to learn from all...

https://connect.mayoclinic.org/comment/1166305/

I have WM for two and a half years, ... cancers are one of the side effects of WM

Discussion: Free Autoimmune Virtual Support Group

Support Group: Autoimmune Diseases

Posted: Nov 1, 2024

I am an 83 yr old female and an 11 yr breast cancer survivor. I was...

https://connect.mayoclinic.org/comment/911620/

I was recently diagnosed with WM.

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Aug 12, 2023

It's so frustrating to not have specific information especially on the Wait and Watch MGUS. I...

https://connect.mayoclinic.org/comment/1317122/

was the same until diagnosed with WM ... and so I am considered Smoldering WM

Discussion: Waldenstrom macroglobulinemia (WM) 3 years: Might I be in remission?

Support Group: Blood Cancers & Disorders

Posted: May 31 9:50am

Like your husband, I was diagnosed with Wm this past March. I experience the tingling and...

https://connect.mayoclinic.org/comment/860899/

your husband, I was diagnosed with Wm ... How much of this is Wm or my aging?

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 16, 2023

Hi @pysullivan, welcome to Connect. Here a few previous discussions in the community about Waldenstrom macroglobulinemia...

https://connect.mayoclinic.org/comment/256246/

about Waldenstrom macroglobulinemia (WM ... Have you been recently diagnosed with WM

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: Mar 24, 2019

I have Wm as well. Currently my doctor says it is not attacking my internal organs...

https://connect.mayoclinic.org/comment/1256344/

I have Wm as well. ... but not because of the blood cancer(WM

Discussion: Waldenstroms: What to expect immunoglobulin infusions with rutuxan?

Support Group: Blood Cancers & Disorders

Posted: Mar 12 1:46pm

It sounds like it could be your heart. I had the same symptoms and was diagnosed...

https://connect.mayoclinic.org/comment/989398/

diagnosed in 2009 and have no symptoms of WM

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Dec 31, 2023

Hi Paul, I’m going to tag @ejrquast for you. She is a support group leader for...

https://connect.mayoclinic.org/comment/1022709/

Was WM the final conclusion?

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Feb 25, 2024

This is my first time on this site. I was recently diagnosed with WM also ....

https://connect.mayoclinic.org/comment/794092/

I was recently diagnosed with WM also

Discussion: Waldenström's Macroglobulinemia

Support Group: Blood Cancers & Disorders

Posted: Jan 8, 2023

I am inclined to think my bad back pain, fatigue, and numbness in finger tips is...

https://connect.mayoclinic.org/comment/860828/

numbness in finger tips is due to WM

Discussion: Waldenstrom macroglobulinemia: What to expect during watch & wait?

Support Group: Blood Cancers & Disorders

Posted: May 16, 2023

Back after being diagnosed in Dec. ‘24 with WM, my insurance also denied my doctors request...

https://connect.mayoclinic.org/comment/1349114/

after being diagnosed in Dec. ‘24 with WM

Discussion: Insurance denied petscan? All research shows it sb done, what next?

Support Group: Blood Cancers & Disorders

Posted: Jul 15 7:56pm