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Comments (1,069)
Your transition from ET to PV--was that new diagnosis from symptoms, blood tests or bone marrow...
Your transition from ET to PV--was that ... test results that might show probable PV ... this possibility of transition to PV ... long from your diagnosis of probable PV ... Did HU work ok for a long time with PV
Posted: Jun 10, 2025
Hi, @cmchesh. Welcome to Connect. I understand your line of thought, thinking maybe your husband’s PV...
thought, thinking maybe your husband’s PV ... There are two forms of PV. ... One is secondary PV caused by conditions ... Primary PV is caused by an acquired ... husband has been diagnosed with primary PV
Posted: Dec 3, 2025
I woud like to reply to the 26 year old who believes she/he has pylocythemia Jak2...
;m 77 been treated for 2 years for PV ... mutation your far better off with PV ... if you only test for PV..I should ... becomes the cause of death instead of PV ... very involved in this research for PV