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1,156 total results
Comments (1,069)
Your transition from ET to PV--was that new diagnosis from symptoms, blood tests or bone marrow...
https://connect.mayoclinic.org/comment/1324133/
Your transition from ET to PV--was that ... test results that might show probable PV ... this possibility of transition to PV ... long from your diagnosis of probable PV ... Did HU work ok for a long time with PV
@roughanne I have the burning and stinging also in my shin bones from the top of...
https://connect.mayoclinic.org/comment/1454936/
I honestly think it’s the PV not the ... people who just had a conversation with PV
I also read that Jakafi increases chances of blood clots in PV patients.
https://connect.mayoclinic.org/comment/751786/
increases chances of blood clots in PV
Hi, @cmchesh. Welcome to Connect. I understand your line of thought, thinking maybe your husband’s PV...
https://connect.mayoclinic.org/comment/1451963/
thought, thinking maybe your husband’s PV ... There are two forms of PV. ... One is secondary PV caused by conditions ... Primary PV is caused by an acquired ... husband has been diagnosed with primary PV
@1pearl Hello friends! Thank you for your posts ! I am battling rare MPN CALLED MYELOFIBROSIS!!...
https://connect.mayoclinic.org/comment/1433127/
I endured PV POLYCYTHEMIA VERA PRIOR ... It Angelatransformed from PV TO MF !
@charliebriggs1godforall, I'm tagging you to make sure that you saw the helpful posts that you received...
https://connect.mayoclinic.org/comment/793638/
may also wish to connect with other PV-ers ... discussion/fatigue-2/
Charlie, is PV ... Are you on treatment for PV?
I have been diagnosed with PV and an early complaint before having. 2 mild strokes leading...
https://connect.mayoclinic.org/comment/277361/
I have been diagnosed with PV and an ... After the PV diagnosis when I had 2 ... nothing to do with the diagnosis of PV
I am on keto for almost 2years. I don't drink that much water just lots of...
https://connect.mayoclinic.org/comment/738188/
don't believe dehydration causes pv ... , pv is caused by the mutation of bone
Yes I'm taking Jackifi I've had pv for over 10 years
https://connect.mayoclinic.org/comment/887719/
'm taking Jackifi I've had pv
With PV? What treatment are you on for your MPN? Losing hair is so hard!
https://connect.mayoclinic.org/comment/1316078/
With PV?
@lindakay55 Most of us PV Peeps are staying at 45 for hematocrit. As soon as it...
https://connect.mayoclinic.org/comment/1468790/
@lindakay55 Most of us PV Peeps are
I'm wondering if anyone has found an impact on their sense of smell. I have for...
https://connect.mayoclinic.org/comment/1477282/
for over a year now after a dx of PV
Jakafi stopped the itching for me as well as many other PV side effects.
https://connect.mayoclinic.org/comment/943008/
itching for me as well as many other PV
I was diagnosed with PV three years ago. Started Jakafi 8 months ago.
https://connect.mayoclinic.org/comment/699312/
I was diagnosed with PV three years
Yes you can just donate blood. My hematologist said that’s what he tells his PV patients...
https://connect.mayoclinic.org/comment/851479/
hematologist said that’s what he tells his PV ... Just go donate w/out mention of your PV
I woud like to reply to the 26 year old who believes she/he has pylocythemia Jak2...
https://connect.mayoclinic.org/comment/1471523/
;m 77 been treated for 2 years for PV ... mutation your far better off with PV ... if you only test for PV..I should ... becomes the cause of death instead of PV ... very involved in this research for PV
I have pv and when first diagnosed was oh HU every day developed anemia and was...
https://connect.mayoclinic.org/comment/1087164/
I have pv and when first diagnosed was ... Pv is a rare blood cancer was told no
Are you on meds? I’m on hydroxyurea for my PV and also have terrible joint pain.
https://connect.mayoclinic.org/comment/826125/
I’m on hydroxyurea for my PV and also
Just wondering if anyone has checked into stem cell therapy/transplant to treat PV??
https://connect.mayoclinic.org/comment/893167/
stem cell therapy/transplant to treat PV
@nypara66 hi thanks for that info because like you I had those burning and nerve issues...
https://connect.mayoclinic.org/comment/1455529/
issues long before I got diagnosed with PV ... m totally confused, maybe I’ve had PV
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