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Comments (398)

@pip2one, the clinic is busy. To find out more, please contact the Ehlers-Danlos Syndrome Clinic in...

https://connect.mayoclinic.org/comment/783814/

find out more, please contact the Ehlers-Danlos

Newsfeed Post: Research Updates: EDS Clinic Published

Blog: Ehlers-Danlos Syndrome

Posted: Dec 11, 2022

@chefgreg45, welcome to Mayo Clinic Connect. I'm glad you found us and will connect with fellow...

https://connect.mayoclinic.org/comment/217860/

Does anyone in your family have Ehlers-Danlos

Discussion: Possible Ehlers-Danlos Syndrome with craniocervical instability

Support Group: Bones, Joints & Muscles

Posted: Nov 28, 2020

31 year old daughter diagnosed with hyper mobile Ehlers Danlos, Hypothyroid, and seizure activity. Can she...

https://connect.mayoclinic.org/comment/708509/

daughter diagnosed with hyper mobile Ehlers

Discussion: Hypermobile Ehlers Danlos Care Team at Mayo Clinic?

Support Group: Visiting Mayo Clinic

Posted: May 15, 2022

In response to this blog topic suggestion, Dr. Taryn Smith, Mayo Clinic published this blog post:...

https://connect.mayoclinic.org/comment/772101/

https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome

Newsfeed Post: EDS Living and Education

Blog: Ehlers-Danlos Syndrome

Posted: Nov 11, 2022

This article has good info about the hypermobility type of Ehlers Danlos Syndrome: https://www.ncbi.nlm.nih.gov/books/NBK1279/ Note: there...

https://connect.mayoclinic.org/comment/114599/

info about the hypermobility type of Ehlers ... classical just google genereviews and Ehlers

Discussion: Chronic Erythema Nodosum & Ehlers-Danlos Syndrome (EDS)

Support Group: Autoimmune Diseases

Posted: Dec 28, 2016

@mischascookin, you and @lauraf0801 and @cacat may wish to join others talking about living with hEDS...

https://connect.mayoclinic.org/comment/774085/

hEDS in this discussion group: – Ehlers

Newsfeed Post: Movement is Medicine – What’s the secret to healthy, sustainable movement with hEDS & HSD?

Blog: Ehlers-Danlos Syndrome

Posted: Nov 16, 2022

Hi @jyakel14 and welcome to Mayo Clinic Connect. My niece has Ehlers Danlos syndrome and has...

https://connect.mayoclinic.org/comment/658587/

My niece has Ehlers Danlos syndrome ... www.mayoclinic.org/diseases-conditions/ehlers-danlos-syndrome

Discussion: Easily sprain, ligaments stretched, back issues, looking for direction

Support Group: Bones, Joints & Muscles

Posted: Nov 30, 2021

Hello @soteloli, I'm so glad you've joined this group and reached out to the Connect community...

https://connect.mayoclinic.org/comment/56548/

some misconceptions about the link to Ehlers-Danlos ... According to the Ehlers-Danlos Society ... , https://www.ehlers-danlos.com/what-is-hsd ... answers are excluded, such as any of the Ehlers-Danlos ... doctors see hundreds of people with Ehlers-Danlos

Discussion: MCTD (Mixed Connective Tissue Disease)

Support Group: Autoimmune Diseases

Posted: Oct 4, 2018

I had one and it felt good but was actually horrible for me as I then...

https://connect.mayoclinic.org/comment/803790/

horrible for me as I then was diagnosed w Ehlers-Danlos

Discussion: What are people's experience with Inversion tables?

Support Group: Spine Health

Posted: Jan 30, 2023

I would look at 2 areas! Ehlers Danlos Syndrome EDSh and Mast cell Activation MCAS Check...

https://connect.mayoclinic.org/comment/797517/

Ehlers Danlos Syndrome EDSh and Mast

Discussion: Undiagnosed Autoimmune Disease - No one will listen to me

Support Group: Autoimmune Diseases

Posted: Jan 16, 2023

Nerve pain. It helps me quite a bit. I haven’t had an EMG yet so not...

https://connect.mayoclinic.org/comment/1146828/

etiologies and it could be related to my Ehlers-Danlos

Discussion: Gabapentin dosing

Support Group: Neuropathy

Posted: Sep 24 6:01pm

Dysautonomia is an umbrella term for dysfunction of the autonomic nervous system. Small fiber neuropathy is...

https://connect.mayoclinic.org/comment/839803/

with some autoimmune diseases like Ehlers

Discussion: Dramatic small sensory nerve loss -EDS/autoimmune cause? Need ATLrheum

Support Group: Autoimmune Diseases

Posted: Apr 8, 2023

Has he tried Lyrica? I have a lot of nerve pain from my hyper mobility Ehlers...

https://connect.mayoclinic.org/comment/856397/

nerve pain from my hyper mobility Ehlers

Discussion: How did your PMR begin?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 8, 2023

My severe neck muscle spasms began 40+ years ago. I tried PT, anti-inflammatories, biologicals, etc… nothing...

https://connect.mayoclinic.org/comment/1134315/

15 years ago, I was diagnosed with Ehlers

Discussion: Botox injections

Support Group: Bones, Joints & Muscles

Posted: Sep 1 8:33am

Thanks for the follow up information @riddle. If you haven't tried the search function on Connect,...

https://connect.mayoclinic.org/comment/903242/

;s what I found searching for "Ehlers ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome

Discussion: I have been hurting for 10 months and there is no end in sight.

Support Group: Bones, Joints & Muscles

Posted: Jul 27, 2023

@nial1n, to consult with Mayo EDS experts, please submit an appointment request here http://mayocl.in/1mtmR63 Do you...

https://connect.mayoclinic.org/comment/958655/

https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome

Newsfeed Post: Head and Neck Concerns in EDS/HSD

Blog: Ehlers-Danlos Syndrome

Posted: Nov 3, 2023

Are you familiar with Ehlers Danlos Syndrome (EDS)? Summarizing isn’t my strong suit but it’s a...

https://connect.mayoclinic.org/comment/824318/

Are you familiar with Ehlers Danlos

Discussion: Something in my neck is popping out of place

Support Group: Ear, Nose & Throat (ENT)

Posted: Mar 11, 2023

Connective tissue disorder. The most common one is Hypermobile Ehlers Danlos type. Other types are more...

https://connect.mayoclinic.org/comment/1028163/

The most common one is Hypermobile Ehlers ... technically do not have the Hypermobile Ehlers

Discussion: Desperately Trying to Get Diagnosed

Support Group: Autoimmune Diseases

Posted: Mar 5 2:30pm

Hi @zebraspoonie, welcome to the community. I moved your message to this discussion about Ehlers Danlos...

https://connect.mayoclinic.org/comment/217849/

your message to this discussion about Ehlers ... jenniferhunter, who also sought a possible Ehlers-Danlos

Discussion: Possible Ehlers-Danlos Syndrome with craniocervical instability

Support Group: Bones, Joints & Muscles

Posted: Sep 9, 2020

Hi @slip275, while we wait for fellow patients to share their experiences about Mayo Clinic, I...

https://connect.mayoclinic.org/comment/963490/

https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome ... https://connect.mayoclinic.org/blog/ehlers-danlos-syndrome

Newsfeed Post: What to Know about GERD and EDS

Blog: Ehlers-Danlos Syndrome

Posted: Nov 12, 2023