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158 total results
Comments (147)
Just yesterday I had a routine check-up with my PCP. She suggested genetic testing through their...
https://connect.mayoclinic.org/comment/950144/
this even when I once inquired about CMT
God bless you thanks for sharing I take 1800 mg of Gabapentin and it's seems to...
https://connect.mayoclinic.org/comment/846806/
anything about it I got that from CMT
Hello Colleen (@colleenyoung), John (@johnbishop), and all! My husband John has Peripheral Neuropathy. Initially (approx. 20...
https://connect.mayoclinic.org/comment/156562/
Charcot-Marie-Tooth, type 2A" (CMT2A ... perhaps a "new" subgroup of CMT ... Sumner, a Neurologist in the CMT Department
Hi Becky. Thank you for your positive reply! Although my CMT symptoms have been there mildly...
https://connect.mayoclinic.org/comment/615099/
Although my CMT symptoms have been there ... nerve conduction test which confirmed CMT ... I found braces made by CMT’er in Canada
Look into multiple sclerosis or myasthenia gravis as possibilities. Try a different neurologist maybe at Mayo...
https://connect.mayoclinic.org/comment/1093882/
suspected ALS, MS, MG and my son for CMT
Ed - Thanks for the well wishes. Nobody in my family shares anything that ails me....
https://connect.mayoclinic.org/comment/974733/
couldn’t hurt to test markers for CMT
John - just noticed a post you did where you mentioned the hammer toes. In 2016...
https://connect.mayoclinic.org/comment/783254/
hammer toes, as you know, a symptom of CMT
Hi, @artmom78 – I would like to add my welcome along with @lisalucier and others. Like...
https://connect.mayoclinic.org/comment/70715/
Treatments for Charcot–Marie–Tooth Disease (CMT
@bob1946 - My symptoms match yours - numbness, no pain, poor balance, I have bi-lateral drop...
https://connect.mayoclinic.org/comment/1157025/
I did get a test for CMT, negative.
Thanks for your response and you are correct, those symptoms I described are related to long...
https://connect.mayoclinic.org/comment/92877/
have a neuromuscular disease called CMT
I was tested for Charcot-Marie-Tooth. They fully expected me to have it, but I didn’t. My...
https://connect.mayoclinic.org/comment/911127/
I’m not sure that it has to be CMT.
Welcome @cmt to Connect. As you have already discovered we are a sharing group. We can...
https://connect.mayoclinic.org/comment/713052/
Welcome @cmt to Connect.
Yes and mine is caused by a rare neurological disorder called Hereditary Nerve Pressure Palsy, it...
https://connect.mayoclinic.org/comment/676636/
also falls under Charcot-Marie Tooth (CMT
I was diagnosed with MGUSand CMT (Charcot-Marie-Tooth Disease), which is a rare peripheral neuropathy in 2022...
https://connect.mayoclinic.org/comment/1245363/
I was diagnosed with MGUSand CMT (Charcot-Marie-Tooth
In February I was tested and confirmed to have CMT. Since, I have notified cousins to...
https://connect.mayoclinic.org/comment/876587/
I was tested and confirmed to have CMT
If you can, get whole genome sequencing - all your chromosomes in the nucleus plus the...
https://connect.mayoclinic.org/comment/950120/
about culprit mutations that cause CMT
Thanks John. My sister and I have been diagnosed with polyneuropathy -- that is as far...
https://connect.mayoclinic.org/comment/305153/
Anyway, I'm not sure we are CMT
I was diagnosed with chronic Sensorimotor Axonal Polyneuropathy three years ago at Weill Cornell. My three...
https://connect.mayoclinic.org/comment/850198/
genetic test came back and I have CMT2 ... and CMT4B. ... Daughter 1 has no CMT mutations. ... Daughter 2 has the CMT2 mutation. ... Daughter 3 has both the CMT2 and CMT4B
Becky, I have seen 5 neurologist in both private to large hospital settings . I go...
https://connect.mayoclinic.org/comment/615189/
not supported by neuro ultrasound
Cmt
Hi @rivermaya34. So sorry to hear you have been diagnosed with HNPP. This is such a...
https://connect.mayoclinic.org/comment/1070799/
can get the medication list from the CMT ... inherited neuropathies) and HNPP/CMT ... Join the facebook group for HNPP and CMT ... of information out there about HNPP/CMT ... We do fall under CMT1 that's why
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