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174 total results

Comments (162)

Hi, I have CMT -Inherited (Charcot Marie Tooth) and when I was in my 30's, I...

https://connect.mayoclinic.org/comment/1293410/

Hi, I have CMT -Inherited (Charcot

Discussion: polio and triple arthrodesis

Support Group: Bones, Joints & Muscles

Posted: Apr 30 10:34am

Thank you for the very thoughtful post. While science will eventually find out the facts about...

https://connect.mayoclinic.org/comment/186517/

I hav CMT and my CBD contains 11% THC

Discussion: Does CBD oil help you with your depression and/or anxiety?

Support Group: Depression & Anxiety

Posted: Jul 3, 2018

I asked my prior Neurologist, actually from a recommendation you made several months ago. He basically...

https://connect.mayoclinic.org/comment/913655/

we need to know, that it meant no CMT ... No need for CMT testing, no need for

Discussion: Hammertoe Surgery and Neuropathy

Support Group: Neuropathy

Posted: Aug 15, 2023

I told my Oncologist that I would not go through a stem cell transplant after 80....

https://connect.mayoclinic.org/comment/870265/

Sensorimotor Axonal Polyneuropathy, CMT2 ... and CMT4B. ... CMT comes down on the X chromosome. ... Daughter 2 had the CMT2 mutation. ... Daughter 3 has both the CMT2and CMT4B

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Sorry to hear about your issues. Follow up on getting DNA checked for the markers for...

https://connect.mayoclinic.org/comment/1197159/

getting DNA checked for the markers for CMT

Discussion: Paraplegic with no diagnosis and multiple test

Support Group: Neuropathy

Posted: Dec 25, 2024

I am fortunate to live in a city that has a research center, and a clinic....

https://connect.mayoclinic.org/comment/950106/

She really felt like I would have CMT

Discussion: DNA testing

Support Group: Neuropathy

Posted: Oct 19, 2023

I have CMT, which is a rare neuropathy and affects my entire body, that was diagnosed...

https://connect.mayoclinic.org/comment/1384527/

I have CMT, which is a rare neuropathy

Discussion: Doe anyone with Myelofibrosis suffer musscle spasm?

Support Group: Blood Cancers & Disorders

Posted: Sep 1 5:41pm

In 2020, being on Medicare, only Mayo in MN would accept me so my wife and...

https://connect.mayoclinic.org/comment/1221855/

In 2018, I did have a CMT test done,

Discussion: Drop foot

Support Group: Neuropathy

Posted: Jan 26 6:56am

Just yesterday I had a routine check-up with my PCP. She suggested genetic testing through their...

https://connect.mayoclinic.org/comment/950144/

this even when I once inquired about CMT

Discussion: DNA testing

Support Group: Neuropathy

Posted: Oct 19, 2023

I am 87 years old Two years ago I was diagnosed with sciatica. I have had...

https://connect.mayoclinic.org/comment/861994/

neuropathy and have concluded that I have CMT ... have two distinct characteristics of CMT

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: May 18, 2023

Welcome @charlie24, I see you also mentioned your husband is struggling with PMR since 2018 and...

https://connect.mayoclinic.org/comment/1257041/

through the comments by other members on CMT

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Mar 13 12:10pm

My daughters and I underwent EMGS, Needle EMGs and genetic testing (whole Exome Sequencing) at Weill...

https://connect.mayoclinic.org/comment/1102095/

because we have a family history of CMT ... have the gene mutations linked to CMT2 ... and CMT4B. ... oldest daughter tested positive for CMT2 ... , and CMT4B.

Discussion: Question: What testing have you had for neuropathy?

Support Group: Neuropathy

Posted: Jul 9, 2024

First, a Neurologist at Stony Brook ordered a saliva test from INVITAE.com which indicated I had...

https://connect.mayoclinic.org/comment/952067/

project based on our family history of CMT

Discussion: DNA testing

Support Group: Neuropathy

Posted: Oct 22, 2023

Hello Colleen (@colleenyoung), John (@johnbishop), and all! My husband John has Peripheral Neuropathy. Initially (approx. 20...

https://connect.mayoclinic.org/comment/156562/

Charcot-Marie-Tooth, type 2A" (CMT2A ... perhaps a "new" subgroup of CMT ... Sumner, a Neurologist in the CMT Department