CMT – search | You searched for comments

To narrow your search, try adding quotation marks around phrases.

Search tips

Search by keywords or complete phrases.
To narrow your search, try adding quotation marks around phrases.
Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.

187 total results

Comments (173)

My maternal Grandfather had it really bad. My mother had it, but mild symptoms....so she had...

https://connect.mayoclinic.org/comment/1353959/

me wondering if it's related to CMT

Discussion: CMT (Charcot-Marie-Tooth Disease) - Genetic Testing

Support Group: Neuropathy

Posted: Jul 22, 2025

I have at least five generations on my mother’s side who were diagnosed with Hereditary Sensory...

https://connect.mayoclinic.org/comment/950638/

Hereditary Sensory Neuropathy (now CMT ... and CMT4B. ... Oldest daughter was negative for CMT ... Youngest daughter positive for CMT2 ... and CMT4B.

Discussion: DNA testing

Support Group: Neuropathy

Posted: Oct 20, 2023

I am a 73-year-old female with a recent diagnosis of MAC along with a history of...

https://connect.mayoclinic.org/comment/62373/

and a neuromuscular disease called CMT ... which can be one of the symptoms of CMT

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jul 7, 2017

Hi, I tried ALA but gave me nausea, so I stopped. Also it was at the...

https://connect.mayoclinic.org/comment/970535/

Doctors thought it is CMT, but it turned

Discussion: Supplements

Support Group: Neuropathy

Posted: Nov 26, 2023

Debbie - I went to Johns Hopkins in Dec of 2021, the neuro doc said that...

https://connect.mayoclinic.org/comment/750976/

I've had blood work done for CMT

Discussion: Can Neuropathy be cured?

Support Group: Neuropathy

Posted: Sep 18, 2022

Chris434, Two very good questions. The diagnosis was made because the symptoms matched and there was...

https://connect.mayoclinic.org/comment/1423333/

told me that a substantial portion of CMT

Discussion: CMT (Charcot-Marie-Tooth Disease) - Genetic Testing

Support Group: Neuropathy

Posted: Oct 25, 2025

Hi, I have CMT -Inherited (Charcot Marie Tooth) and when I was in my 30's, I...

https://connect.mayoclinic.org/comment/1293410/

Hi, I have CMT -Inherited (Charcot

Discussion: polio and triple arthrodesis

Support Group: Bones, Joints & Muscles

Posted: Apr 30, 2025

I had neck muscle spasms so acutely that I wanted to scream. I had numbness in...

https://connect.mayoclinic.org/comment/316476/

I got incredibly lucky to find a CMT ... I visited the CMT if I ever had any

Discussion: What helps spinal stenosis besides surgery?

Support Group: Spine Health

Posted: Aug 11, 2020

Have you considered a genetic test? For example, INVITAE.com offers many genetic tests that can reveal...

https://connect.mayoclinic.org/comment/1138175/

of that test I was diagnosed with CMT2 ... and CMT4B. ... They all inherited the CMT mutations

Discussion: Severe Neuropathy in legs and feet and not a diabetic or alcoholic

Support Group: Neuropathy

Posted: Sep 8, 2024

@dbeshears - When I was first getting tests for PN, my doc sent me to the...

https://connect.mayoclinic.org/comment/913640/

hammer toes but he did blood test for CMT

Discussion: Hammertoe Surgery and Neuropathy

Support Group: Neuropathy

Posted: Aug 15, 2023

Thank you for the very thoughtful post. While science will eventually find out the facts about...

https://connect.mayoclinic.org/comment/186517/

I hav CMT and my CBD contains 11% THC

Discussion: Does CBD oil help you with your depression and/or anxiety?

Support Group: Depression & Anxiety

Posted: Jul 3, 2018

I asked my prior Neurologist, actually from a recommendation you made several months ago. He basically...

https://connect.mayoclinic.org/comment/913655/

we need to know, that it meant no CMT ... No need for CMT testing, no need for

Discussion: Hammertoe Surgery and Neuropathy

Support Group: Neuropathy

Posted: Aug 15, 2023

I told my Oncologist that I would not go through a stem cell transplant after 80....

https://connect.mayoclinic.org/comment/870265/

Sensorimotor Axonal Polyneuropathy, CMT2 ... and CMT4B. ... CMT comes down on the X chromosome. ... Daughter 2 had the CMT2 mutation. ... Daughter 3 has both the CMT2and CMT4B

Discussion: Essential Thrombocythemia: Looking for information and support

Support Group: Blood Cancers & Disorders

Posted: Jun 1, 2023

Benjamin, Good luck to you and anyone else that has this malady. I too have it....

https://connect.mayoclinic.org/comment/1354485/

up yet, a person still might have CMT ... One final note: As many people have CMT

Discussion: CMT (Charcot-Marie-Tooth Disease) - Genetic Testing

Support Group: Neuropathy

Posted: Jul 23, 2025

Sorry to hear about your issues. Follow up on getting DNA checked for the markers for...

https://connect.mayoclinic.org/comment/1197159/

getting DNA checked for the markers for CMT