Clear Search

To narrow your search, try adding quotation marks around phrases.

Search tips
  • Search by keywords or complete phrases.
  • To narrow your search, try adding quotation marks around phrases.
  • Example: "predictable behavior" will narrow the search results to only include content that has the exact phrase "predictable behavior" in it.
181 total results
Comments (160)
I've just got my diagnosis of AL amyloidosis today after having a bunch of testing and...
https://connect.mayoclinic.org/comment/88311/
I've just got my diagnosis of AL ... amyloidosis today after having a bunch ... radiation in the area that I had my amyloidosis ... said she's never seen Cutaneous Amyloidosis
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Feb 20, 2019
@jstpeachy Thank you in advanced for including my husband in your prayers warriors. I will do...
https://connect.mayoclinic.org/comment/903397/
before he was diagnosed with Cardiac Amyloidosis ... diagnostic tests to find out if he has the AL ... Amyloidosis which if found, then he ... Heart Failure caused by the Cardiac Amyloidosis
Discussion: My Autologous Stem Cell Transplant Journey - Mayo, Phoenix
Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy
Posted: Jul 28, 2023
I had IgA kappa MGUS for 8 years, diagnosed this summer with SMM. They tested me...
https://connect.mayoclinic.org/comment/1158835/
They tested me for amyloidosis (fat ... I need a kidney biopsy to rule out amyloidosis ... number of peer-reviewed papers on AL ... amyloidosis treatment, including in
Discussion: Just diagnoised with Amyloidosis, kappa light chain restricted.
Support Group: Blood Cancers & Disorders
Posted: Oct 18, 2024
Hi, Larry. @crashnam Are you sure you wrote this? And not me? First, I quit metroprolol...
https://connect.mayoclinic.org/comment/161998/
learning that I have some form of Cardiac AL ... Amyloidosis, which does cause the AFib ... Flag Warnings for hATTR and other Amyloidoses
Discussion: Afib & PVC's
Support Group: Heart Rhythm Conditions
Posted: Aug 4, 2017
@nsnipes11 (Nan), I just had another thought. It's quite possible that your primary care doctor just...
https://connect.mayoclinic.org/comment/995165/
that showed why I was concerned about AL ... amyloidosis, and kept wangling my way ... multiple myeloma, higher risk for AL ... amyloidosis and other light chain-related
Discussion: MGUS I need help understanding my lab report.
Support Group: Blood Cancers & Disorders
Posted: Jan 10, 2024
Now having a diagnosis, I just filled out my Bio and will repost here, because it...
https://connect.mayoclinic.org/comment/981394/
alarmed at the prospect of having AL ... amyloidosis and most of my reading ... to disorders OTHER than MM, such as AL ... amyloidosis, Waldenström macroglobulinemia
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Dec 16, 2023
I know I say this a lot on these groups. "Stiff heart." and other such issues...
https://connect.mayoclinic.org/comment/102948/
instance, mine is apparently part of my AL ... Amyloidosis, Or another sort of Amyloidosis ... have found many MDs who will say "All amyloidosis
Discussion: Stiff Heart - diastolic heart failure
Support Group: Heart & Blood Health
Posted: Jan 14, 2017
@gbiffart Cranial Amyloid Angioplasty I suspect you mean "Cerebral Amyloid Angiopathy" I could not find anything...
https://connect.mayoclinic.org/comment/68664/
part of my Primary Familial Systemic AL ... Amyloidosis in the cerebral cortex. ... It is a form of Amyloidosis. ... (see www.amyloidosis.org).
Discussion: Cerebral amyloid angiopathy
Support Group: Stroke & Cerebrovascular Diseases
Posted: Sep 10, 2017
Lori, switched the loading sequence but that caused a problem. It talks about AL Amyloidosis but...
https://connect.mayoclinic.org/comment/738758/
It talks about AL Amyloidosis but I ... forgot the definition of AL. ... AL means light chain Amyloidosis. ... Here’s the Enigma, AL means the Amyloidosis ... being AL and/or hATTR-CM.
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Aug 18, 2022
Hi, @2012can - I'm so glad that you were able to get your neuropathy and other...
https://connect.mayoclinic.org/comment/987954/
sure about potential development into AL ... amyloidosis, nor how risk factors for ... cell level are somewhat in line with AL ... And AL can also affect nerves.
Discussion: MGUS and quite high Free Kappa Light Chain and Kappa Lambda Ratio
Support Group: Blood Cancers & Disorders
Posted: Dec 28, 2023
I have learned much about this, some of it at Mayo. First, never tell Mayo what...
https://connect.mayoclinic.org/comment/129622/
have various cancers (some are named AL ... Amyloidosis) in or on my blood, urine
Discussion: Depression in Heart Disease
Support Group: Heart & Blood Health
Posted: Dec 11, 2016
Hi Edda, One can get scared reading about symptoms, side effects and diagnoses on the Internet....
https://connect.mayoclinic.org/comment/182462/
Amyloidosis (OldKarl's diagnosis) is ... www.mayoclinic.org/diseases-conditions/amyloidosis ... Nearly 70 percent of people with AL ... amyloidosis are men. ... you're still worried about having amyloidosis
Discussion: First degree av block
Support Group: Heart Rhythm Conditions
Posted: Feb 7, 2018
@njcarolnjn Hi, my friend. Just read your note, and recognize myself in it. I knew I...
https://connect.mayoclinic.org/comment/72263/
learned a lot about various forms of Amyloidosis ... I have some form of FreeLiteChain Amyloidosis ... I may have such things as AL (Amyloidosis ... at HTTPS://bit.Ly/1w7j4j8, titled Amyloidosis ... Series 13 or Amyloidosis Series 12.
Discussion: Brachioradial pruritus. (severe itching on forearms and neck, no rash).
Support Group: Skin Health
Posted: Dec 8, 2017