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Comments (10,000+)

Hello @tojk, I combined your discussion with an existing discussion titled: "Side Effects of Mavacamten (Camzyos)"...

https://connect.mayoclinic.org/comment/1229070/

Hello @tojk, I combined your discussion ... with an existing discussion titled: ... - https://connect.mayoclinic.org/discussion ... to get the results of your MRI and discuss

Discussion: Side Effects of Mavacamten (Camzyos)

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Feb 4 7:15am

Welcome to Connect, @utravelone8671 Currently it looks as though @indyellen is the only member listed as...

https://connect.mayoclinic.org/comment/1240438/

rec Has your husband’s oncologist discussed

Discussion: Anyone had CAR-T therapy for solid tumors? (pancreatic cancer)

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Feb 19 7:15am

This is an important topic to discuss that isn’t, likely due to embarrassment (as if it’s...

https://connect.mayoclinic.org/comment/1248460/

This is an important topic to discuss

Discussion: aquablation and retro ejaculation

Support Group: Men's Health

Posted: Mar 2 7:26am

I discussed with Medicare who transferred me to my Pharmacy Insurance provider, who said the medication...

https://connect.mayoclinic.org/comment/1248947/

I discussed with Medicare who transferred

Discussion: Suzetrigine - a novel drug for pain

Support Group: Chronic Pain

Posted: Mar 2 6:33pm

Hi @clock456. I’ve only found one other BMT member who has mentioned Rezurock for GVHD but...

https://connect.mayoclinic.org/comment/1246521/

after a note from my BMT team and discussion

Discussion: Anyone taking Rezurock?

Support Group: Bone Marrow Transplant (BMT) & CAR-T Cell Therapy

Posted: Feb 27 10:07am

In a video from one of the conferences Dr. Wintrop in discussing airway clearance said, if...

https://connect.mayoclinic.org/comment/1240614/

Wintrop in discussing airway clearance

Discussion: Bronchiectasis with a side of asthma

Support Group: MAC & Bronchiectasis

Posted: Feb 19 10:15am

I take the supplements from here - https://theprotocolworks.com/faq/. They have the ingredients listed under the frequently...

https://connect.mayoclinic.org/comment/1228485/

why the protocol document in another discussion

Discussion: Tens machine for numbness

Support Group: Neuropathy

Posted: Feb 3 10:06am

@kimba@help2025 Hopefully others who have been on this Bronchiectasis and MAC (infection health problem) journey will...

https://connect.mayoclinic.org/comment/1250124/

health problem) journey will begin to discuss

Discussion: Talk to me about your MAC journey please

Support Group: MAC & Bronchiectasis

Posted: Mar 4 8:52am

Thanks for sharing. We don’t know yet for sure from MAYO at what diameter they would...

https://connect.mayoclinic.org/comment/1249528/

was 4.0 in 2023, that they would discuss

Discussion: Aortic Root Aneurysm treatment/ advice

Support Group: Aortic Aneurysms

Posted: Mar 3 12:53pm

Good morning @tiateacake may I ask if you are asking -" IS or ISN't a flare...

https://connect.mayoclinic.org/comment/1250063/

https://connect.mayoclinic.org/discussion

Discussion: Is it? Or isn’t it?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Mar 4 7:54am

I'm with https://connect.mayoclinic.org/member/00-6018ad2132cc535a416722/, I have never seen a PSA of 0.00. Different institutions have different ways...

https://connect.mayoclinic.org/comment/1250207/

There is some discussion that when there

Discussion: Salvage radiation therapy with ADT

Support Group: Prostate Cancer

Posted: Mar 4 10:10am

If you don't mind me asking, what are your IgA/M/G numbers? I am considered a MGUS...

https://connect.mayoclinic.org/comment/1250774/

Discuss IVIG therapy → To address low

Discussion: Waldenstroms Macroglobulemia

Support Group: Blood Cancers & Disorders

Posted: Mar 5 7:45am

So, my experience... I've done ADT twice, first was as part of triplet therapy staring in...

https://connect.mayoclinic.org/comment/1250853/

I pushed back discussing studies that

Discussion: PSA Nadir main deciding factor when one can start on Intermittent ADT?

Support Group: Prostate Cancer

Posted: Mar 5 9:14am

A lot of people take vit k to counter any problems with calcium being depostited in...

https://connect.mayoclinic.org/comment/1245704/

Below is a discussion post on what Inspire ... groups/bone-health-and-osteoporosis/discussion

Discussion: Strontium citrate (Algaecal) and fractures

Support Group: Osteoporosis & Bone Health

Posted: Feb 26 7:27am

My story. There might have been things lost in translation (as we know a doctors time...

https://connect.mayoclinic.org/comment/1233641/

a greater amount of time to truly discuss ... With all that reviewed and discussed

Discussion: 7% Saline Success Story that warmed my heart.

Support Group: MAC & Bronchiectasis

Posted: Feb 10 10:44am

@laree, I moved your question about cabozantinib to this existing discussion in the NETs groups so...

https://connect.mayoclinic.org/comment/1245566/

about cabozantinib to this existing discussion ... https://connect.mayoclinic.org/discussion

Discussion: Anyone have experience with cabozantinib (Cabometyx)?

Support Group: Neuroendocrine Tumors (NETs)

Posted: Feb 25 8:35pm

I am VERY interested in this procedure. Please let me know which location of Advanced Ortho...

https://connect.mayoclinic.org/comment/1234192/

are Facebook groups with plenty of discussion

Discussion: Lateral Approach Total Knee Replacement

Support Group: Joint Replacements

Posted: Feb 11 7:44am

I suffered quite a lot before I managed to get a visit with my doctor who...

https://connect.mayoclinic.org/comment/1246415/

Plenty of strategies discussed on this

Discussion: Are specialists necessary?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Feb 27 8:17am

Welcome @pgcwash, While you wait for members with experience to respond, you might want to scan...

https://connect.mayoclinic.org/comment/1247803/

drugs-skyrizi-side-effects Have you discussed

Discussion: Anyone taking Skyrizi

Support Group: Autoimmune Diseases

Posted: Mar 1 7:17am

Welcome, @gayglenn. You might be interested in this related discussion: - Kaposi’s Sarcoma: Just want to...

https://connect.mayoclinic.org/comment/1247806/

might be interested in this related discussion ... talk https://connect.mayoclinic.org/discussion

Discussion: Diagnosed with sarcoma? Let's share

Support Group: Sarcoma

Posted: Mar 1 7:19am