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Comments (2,582)

Can you tell us what conditions you are contending with? I am fighting low IgG and...

https://connect.mayoclinic.org/comment/941791/

fighting low IgG and neuropathy caused by Sjogren

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Oct 4, 2023

I have weight bearing loss of balance from either my feet and/or my legs. I go...

https://connect.mayoclinic.org/comment/940479/

new rheumatologist who recognised my Sjogren

Discussion: Axonal peripheral neuropathy: Finally, a diagnosis!

Support Group: Neuropathy

Posted: Oct 2, 2023

@ebinca Welcome to Mayo Clinic Connect! I’m sorry you’re having problems with sjogrens and that doctors...

https://connect.mayoclinic.org/comment/940020/

sorry you’re having problems with sjogrens

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Oct 1, 2023

@ebinca Welcome to Connect! We do have quite a few members that have been posting about...

https://connect.mayoclinic.org/comment/939993/

members that have been posting about Sjogren

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Oct 1, 2023

I have dry eyes, dry mouth, swollen and dry nasal passages, and clogged ears. My skin...

https://connect.mayoclinic.org/comment/939243/

I have been tested for sjogrens three

Discussion: Lingering dry nasal passageways

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 30, 2023

I also have Sjogren's and it's a pain -literally. I take 2 Gabapentin 3 times a...

https://connect.mayoclinic.org/comment/939214/

I also have Sjogren's and it&#39

Discussion: My wife has autoimmune disease. She has inflammation in legs and arms.

Support Group: Autoimmune Diseases

Posted: Sep 30, 2023

Rotator cuff injury Sjogren’s Lymphedema Hip X2 replacement Balance These are just a few :)

https://connect.mayoclinic.org/comment/939068/

Rotator cuff injury Sjogren’s Lymphedema

Discussion: Has aquatherapy helped you with chronic pain?

Support Group: Chronic Pain

Posted: Sep 29, 2023

ANA cascade includes Sjogren's test. All negative. I will do the test you recommend. Thank you...

https://connect.mayoclinic.org/comment/935743/

ANA cascade includes Sjogren's test

Discussion: Positive ANA: What might be the cause?

Support Group: Autoimmune Diseases

Posted: Sep 24, 2023

You can go to many commercial labs and get a HLAB27 test. Also, please reserch Sjogren's...

https://connect.mayoclinic.org/comment/935722/

Also, please reserch Sjogren's Syndrome

Discussion: Positive ANA: What might be the cause?

Support Group: Autoimmune Diseases

Posted: Sep 24, 2023

Love this Greek saying! I was diagnosed with Schleraderma (and MCTD) in 1996. Come to find...

https://connect.mayoclinic.org/comment/934075/

dry skin/eyes/mouth, which also is Sjogrens

Discussion: One Minute of Patience, Ten Years of Peace. Greek Proverb

Support Group: Just Want to Talk

Posted: Sep 21, 2023

Been awhile since I posted on this section since things have been quiet with the PMR...

https://connect.mayoclinic.org/comment/932534/

I think it is back, along with my Sjogren

Discussion: Polymyalgia Rheumatica (PMR): Meet others & Share Your Story

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Sep 19, 2023

I have sjogren’s and osteoarthritis.

https://connect.mayoclinic.org/comment/931420/

I have sjogren’s and osteoarthritis.

Discussion: Would like to know people's experience using Fosamax

Support Group: Osteoporosis & Bone Health

Posted: Sep 17, 2023

I had leg weakness too. Sjogrens I thought was the easiest. Can come with some interesting...

https://connect.mayoclinic.org/comment/931287/

Sjogrens I thought was the easiest.

Discussion: Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Sep 17, 2023

I also have SFN with autonomic dysfunction. Have you been tested for rheumatology issues? You may...

https://connect.mayoclinic.org/comment/929254/

the same issue and found I have RA, Sjogren

Discussion: Chronic Fatigue Syndrome and Small Fiber Neuropathy: What helps?

Support Group: Neuropathy

Posted: Sep 13, 2023

The Sjogren's Advocate and Smart Patients are two very good websites for information. Smart Patients is...

https://connect.mayoclinic.org/comment/928099/

The Sjogren's Advocate and Smart ... Patients is a blog that others with Sjogren ... So many doctors think Sjogren's

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Sep 11, 2023

I was diagnosed with Sjogrens many years ago and was treated with methotrexate. I said was...

https://connect.mayoclinic.org/comment/922588/

I was diagnosed with Sjogrens many years ... attributed to PN are really coming from Sjogrens

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Sep 1, 2023

I have Sjogerns also. I had horrible joint pain at the beginning of my diagnosis (about...

https://connect.mayoclinic.org/comment/922315/

I have Sjogerns also.

Discussion: Would like to hear from people with Sjogrens

Support Group: Autoimmune Diseases

Posted: Sep 1, 2023

I have been checked for Sjorgens three times and nothing turns up. My eyes nose and...

https://connect.mayoclinic.org/comment/918882/

I have been checked for Sjorgens three

Discussion: Anyone experiencing dry eyes and vision changes?

Support Group: Post-COVID Recovery & COVID-19

Posted: Aug 25, 2023

Sjogrens & numerous auto-immune. My go-to is ACT lozenges. I have experimented w/everything on the market....

https://connect.mayoclinic.org/comment/916481/

Sjogrens & numerous auto-immune.

Discussion: Cotton mouth?

Support Group: Autoimmune Diseases

Posted: Aug 21, 2023

I am newly diagnosed with AIED and Sjogren's Syndrome. I finally got a diagnosis for the...

https://connect.mayoclinic.org/comment/915510/

I am newly diagnosed with AIED and Sjogren ... I finally got a diagnosis for the Sjogrens ... I am to start Methotrexate for the Sjogrens ... Not sure if Sjogren's, AIED, the

Discussion: Anyone out there with Autoimmune inner ear disease (AIED)?

Support Group: Autoimmune Diseases

Posted: Aug 19, 2023