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Comments (2,484)

Buzz23, You certainly have a plateful. In this world of busyness, there are compassionate people that...

https://connect.mayoclinic.org/comment/925451/

seeing a good rheumatologist for your Lupus

Discussion: Drowning

Support Group: Autoimmune Diseases

Posted: Sep 6, 2023

Talk to another Dr about it. Ivermectin and hydroxychloroquine don’t do anything for Covid but long...

https://connect.mayoclinic.org/comment/892206/

Research how it helps lupus and make

Discussion: Post Covid Symptoms and what has helped me.

Support Group: Post-COVID Recovery & COVID-19

Posted: Jul 8, 2023

Hello does anyone have Erythromelalgia of the face? I have SFN of the hands legs feet...

https://connect.mayoclinic.org/comment/678820/

I do not have the Lupus antibodies in

Discussion: Peripheral Neuropathy vs. Erythromelalgia

Support Group: Autoimmune Diseases

Posted: Feb 8, 2022

@jearanai13 I’ve been on prednisone for about 4 years and last May i started on Mycophenolate...

https://connect.mayoclinic.org/comment/677198/

on using something to control the lupus

Discussion: Anyone with lupus or SLE: How do you manage your condition?

Support Group: Autoimmune Diseases

Posted: Feb 2, 2022

@lauren123 Hi Lauren. Yes, there are two kinds of Raynaud's. There is PRIMARY which is only...

https://connect.mayoclinic.org/comment/197571/

than can accompany Raynaud's are Lupus

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: May 7, 2018

The cortisone shots were not painful. The rheumatologist was quite skilled and placed them both perfectly....

https://connect.mayoclinic.org/comment/1231926/

Also, RA and lupus run in my family.

Discussion: Frozen shoulder symptoms from Avastin what medication helps?

Support Group: Gynecologic Cancers

Posted: Feb 7 11:56pm

I was accepted and waitlisted at Mayo neurology. It was told that it would be a...

https://connect.mayoclinic.org/comment/1184594/

I also have lupus and have been denied

Discussion: Accepted for by Neurology at Mayo Clinic. How to be seen sooner?

Support Group: Visiting Mayo Clinic

Posted: Dec 4, 2024

I saw my PCP yesterday June 20 and told him about my hand and wrist pain...

https://connect.mayoclinic.org/comment/1090841/

Could be PMR, arthritis, lupus, etc.

Discussion: Are painful swollen hands and fingers a PMR flare?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 21, 2024

Hello @twinkie23, I know it must be difficult for you now with your recent symptoms and...

https://connect.mayoclinic.org/comment/1069985/

being diagnosed with Neuropsychiatric Lupus

Discussion: Neuropsychiatric Lupus

Support Group: Autoimmune Diseases

Posted: May 18, 2024

Yes my doctor did because he wasn't convinced it was PMR at first but I've been...

https://connect.mayoclinic.org/comment/973724/

Why do they keep testing me for Lupus

Discussion: PMR flare at a drop from 8 to 7 mg of prednisone?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Dec 2, 2023

My neurologist is awesome and I just had an MRI today. My rheumotologist is not so...

https://connect.mayoclinic.org/comment/722524/

the basic tests for Sjogren's, Lupus

Discussion: Seeking Help for Unknown Medical Issue

Support Group: Autoimmune Diseases

Posted: Jun 30, 2022

Definitely not acceptable. When I was first suffering from PMR, hardly able to walk, felt like...

https://connect.mayoclinic.org/comment/802276/

My first wife had Lupus, we eventually ... when the average life expectancy of Lupus

Discussion: What can I expect with Antiphospholipid Syndrome (APS)?

Support Group: Autoimmune Diseases

Posted: Jan 27, 2023

None of my business but I'll share I an NOT vexed for my Auto Immune I...

https://connect.mayoclinic.org/comment/748819/

in 7/2020 they turned me down bc of Lupus ... from me, and again when I mentioned Lupus

Discussion: Any longhaulers noticing vision changes?

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 12, 2022

Welcome, Chris. You'll notice that I moved your post to this existing discussion of the same...

https://connect.mayoclinic.org/comment/743994/

Connective Tissue Disease turning into Lupus ... undifferentiated-connective-tissue-disease-turning-into-lupus

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Aug 31, 2022

I had a STEMI two years ago and had 5 stents placed. I was on Plavix...

https://connect.mayoclinic.org/comment/1309399/

have a kidney biopsy to check for lupus

Discussion: What is your blood thinners medication?

Support Group: Aortic Aneurysms

Posted: May 21 10:27am

Ha! never tried sneezing on a frog yet! I'm on warfarin and my INR nurse does...

https://connect.mayoclinic.org/comment/299227/

neuropathy and none of the ones for lupus

Discussion: Lyrica - Looking for Patient Experiences

Support Group: Neuropathy

Posted: May 10, 2020

Thank you for your replies! (Sorry for the delay in saying so.) I'm on methotrexate and...

https://connect.mayoclinic.org/comment/308768/

UCTD that's then evolved into lupus

Discussion: Undifferentiated Connective Tissue Disease turning into Lupus?

Support Group: Autoimmune Diseases

Posted: Apr 27, 2020

Diagnosed with tumid lupus in 2007, confirmed via biopsy 3x. Diagnosed with rosacea 1998, yet it...

https://connect.mayoclinic.org/comment/146267/

Diagnosed with tumid lupus in 2007, ... yet it was the butterfly rash from lupus ... Proof it's tumid lupus with SLE ... rheumatologist he doesn't think it's lupus ... more doctors educated to what Tumid Lupus

Discussion: Tumid Lupus with SLE Symptoms?

Support Group: Autoimmune Diseases

Posted: Aug 28, 2019

Hi @fox940 ! Not sure you’ll see this, it looks like you haven’t logged in since...

https://connect.mayoclinic.org/comment/1108367/

I went through Drug Induced Lupus in ... don’t meet all the criteria for a lupus

Discussion: Surgery caused autoimmune disease or Drug Induced Lupus

Support Group: Autoimmune Diseases

Posted: Jul 19, 2024

I can get this red facial flushing from being out in the sun for just a...

https://connect.mayoclinic.org/comment/1058076/

back and forth as to whether I have Lupus ... me as facial flushing is a sign of lupus