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Comments (1,973)

I’m super late but currently my ana is 1:2560 I have sle, Sjögren’s syndrome. I was...

https://connect.mayoclinic.org/comment/795924/

currently my ana is 1:2560 I have sle, Sjögren

Discussion: What can cause ANA titre of 1:2560?

Support Group: Autoimmune Diseases

Posted: Jan 12, 2023

I’m also getting a Sjogrens work up. I had a salivary nuc med scan that showed...

https://connect.mayoclinic.org/comment/795905/

I’m also getting a Sjogrens work up.

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Jan 12, 2023

I had my gallbladder out January 17. 2022. Then a emergency ercp four days later. Prior...

https://connect.mayoclinic.org/comment/795823/

Possible sjorgens.

Discussion: Post-cholecystectomy or gallbladder removal surgery

Support Group: Digestive Health

Posted: Jan 12, 2023

Sjögren’s Disease is challenging. I have had it for over 30 years. I could manage it...

https://connect.mayoclinic.org/comment/795458/

Sjögren’s Disease is challenging. ... Dealing with Sjögren’s is time consuming

Discussion: How do you deal with dry eyes?

Support Group: Eye Conditions

Posted: Jan 11, 2023

I've been on two different biologics that needed to be infused. I went once a month...

https://connect.mayoclinic.org/comment/773851/

second one I was on caused such severe Sjodrens

Discussion: New to biologics and need advice

Support Group: Autoimmune Diseases

Posted: Nov 16, 2022

Boy I am in the same group. I am 74 & it has been a struggle....

https://connect.mayoclinic.org/comment/779495/

I was diag. with sjogrens with pica ... 've lost almost all teeth from sjogrens

Discussion: Many medical issues: How do you manage multiple chronic conditions?

Support Group: Aging Well

Posted: Dec 1, 2022

Oh, I was diagnosed with Sjögren’s four years ago and I came down with a horrible...

https://connect.mayoclinic.org/comment/830263/

Oh, I was diagnosed with Sjögren’s four ... One of my symptoms of Sjogren’s is also

Discussion: Question about Sjogrens and discomfort in legs. Also skin feels itchy

Support Group: Autoimmune Diseases

Posted: Mar 22, 2023

I too have Sjogren's and have been experiencing "heat flashes". It comes on suddenly with sweating...

https://connect.mayoclinic.org/comment/828453/

I too have Sjogren's and have been ... much research on dysautonomia with sjogren

Discussion: Question about Sjogrens and discomfort in legs. Also skin feels itchy

Support Group: Autoimmune Diseases

Posted: Mar 19, 2023

Hi small fiber neuropathy (SFN) and dysautonomia due to Sjogren's Disease has me living in a...

https://connect.mayoclinic.org/comment/826372/

neuropathy (SFN) and dysautonomia due to Sjogren

Discussion: Question about Sjogrens and discomfort in legs. Also skin feels itchy

Support Group: Autoimmune Diseases

Posted: Mar 15, 2023

all kinds of eyedrops, Restasis, prescription, plus over the counter, be careful to check preservative free...

https://connect.mayoclinic.org/comment/825324/

not sjogren's. my eye doctor says

Discussion: How do you deal with dry eyes?

Support Group: Eye Conditions

Posted: Mar 13, 2023

For me, exercise helps reduce the pain of inflammation. At the beginning of my healing process...

https://connect.mayoclinic.org/comment/823920/

I've been living with Primary Sjogren

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Mar 10, 2023

I agree with the possible sjogrens. I have that and it causes a lot of the...

https://connect.mayoclinic.org/comment/823359/

I agree with the possible sjogrens. ... My doctor said sjogrens is the number

Discussion: Autonomic nervous system disorder: No diagnosis or help yet

Support Group: Stroke & Cerebrovascular Diseases

Posted: Mar 9, 2023

Methotrexate maybe lowering your immune system to fight infection. Treat the anemia to strengthen your suppress...

https://connect.mayoclinic.org/comment/820731/

Then you could develop Sjorgens syndrome

Discussion: RA, methotrexate and Anemia recently diagnosed

Support Group: Autoimmune Diseases

Posted: Mar 4, 2023

You can have a negative ANA and still have Sjogren’s. Ask your rheumatologist for a lip...

https://connect.mayoclinic.org/comment/819206/

have a negative ANA and still have Sjogren ... symptoms alone, I would say you have Sjogren

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Mar 1, 2023

If your pain is Sjögren’s related I doubt whether imaging will show up anything specific, unless...

https://connect.mayoclinic.org/comment/819103/

If your pain is Sjögren’s related I

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Mar 1, 2023

It’s actually spelled Sjogren’s. You may be able to get more information by googling that.

https://connect.mayoclinic.org/comment/817665/

It’s actually spelled Sjogren’s.

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Feb 26, 2023

Hi @mzbea71, I'd like to add my welcome. I moved your message to this existing discussion...

https://connect.mayoclinic.org/comment/817641/

- Sjögren’s Syndrome: how do you manage ... /connect.mayoclinic.org/discussion/sjorgens-syndrome ... connect.mayoclinic.org/discussion/dry-eyes-1 - Sjogren ... /connect.mayoclinic.org/discussion/sjogrens

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Feb 26, 2023

I had a pressure points exam by my rheumatologist, who was treating me for Sjogren’s.

https://connect.mayoclinic.org/comment/817238/

rheumatologist, who was treating me for Sjogren

Discussion: Sjögren’s Syndrome: how do you manage the symptoms?

Support Group: Autoimmune Diseases

Posted: Feb 25, 2023

WOW! mattymatilda @mattymatilda, https://www.mayoclinic.org/diseases-conditions/mixed-connective-tissue-disease/symptoms-causes/syc-20375147 Just( PV-MF and several other diagnosis) That's so hard and frustrating. My...

https://connect.mayoclinic.org/comment/816334/

cold urticaria group; deals with Sjogren