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1,204 total results
Comments (1,114)
HAHAHA 😂🤩I love the bus joke !! You are so right ! Thank you for encouraging...
https://connect.mayoclinic.org/comment/1362309/
She stated she had PV WHICH DEVELOPED
I can’t recall where I looked it up. Mostly hospital sites. My main question was how...
https://connect.mayoclinic.org/comment/1271996/
m JAK2 positive and diagnosed with PV
It's been over 2 years on my search for a diagnosis. Started with blood cancer diagnosis...
https://connect.mayoclinic.org/comment/1164055/
cancer diagnosis (polycythemia vera, PV ... Less than 5% of those with PV are Jak2 ... same as first and same diagnosis, PV ... I went in I questioned that I had PV
I’m no Dr. but I believe the HU is prescribed first.. I was almost 67 when...
https://connect.mayoclinic.org/comment/795180/
should say that I never even heard of PV
I am 82 years old, female, widow; I live in a very remote setting near a...
https://connect.mayoclinic.org/comment/711275/
a very small town in Texas; I have PV
I have polycythemia Vera..Cancer is not new to me, I had breast cancer in 2009 with...
https://connect.mayoclinic.org/comment/1093620/
Now PV, I had phlebotomies in the early
Good for you, it is behind you now! I was super anxious for that procedure as...
https://connect.mayoclinic.org/comment/1363654/
my experience, I started out with PV
Long before I was diagnosed with PV I would get those “pimples” on my tongue, very...
https://connect.mayoclinic.org/comment/1320860/
Long before I was diagnosed with PV
I have been diagnosed with PV for over a year now. Initially I did phlebotomies till...
https://connect.mayoclinic.org/comment/826124/
I have been diagnosed with PV for over
I need help! I burn, itch, stinging, biting and crawling skin after a shower. It started...
https://connect.mayoclinic.org/comment/78227/
I have been tested for PV (bone marrow
Diagnosed with PV ( JAK positive).. in April 2021… After 4 phlebotomies, have been on baby...
https://connect.mayoclinic.org/comment/919747/
Diagnosed with PV ( JAK positive)..
You're absolutely right about menopause symptoms and I've got bad allergies and that gives me headaches...
https://connect.mayoclinic.org/comment/896141/
and done with the changes and the PV
68 male, diagnosed just under 2 years ago with PV.. I can’t comment on menopause but...
https://connect.mayoclinic.org/comment/827948/
diagnosed just under 2 years ago with PV
What we put in our bodies, food or onnour skins, is medicine. Food is medicine, when...
https://connect.mayoclinic.org/comment/1010051/
I was misdiagnosed with PV in April ... still felt 2 other markers meant I had PV
Hi @katrink I was diagnosed with PV in July 2024. I had been feeling a bit...
https://connect.mayoclinic.org/comment/1401933/
@katrink
I was diagnosed with PV ... So in July 2024, after my PV diagnosis ... PV is a pretty rare disease and I’m
I can offer my experience/journey with PV so far… I’m female, 58 and was diagnosed in...
https://connect.mayoclinic.org/comment/1495485/
can offer my experience/journey with PV
Sorry you are going through this time of uncertainty, Lisa. The uncertainty is worse than the...
https://connect.mayoclinic.org/comment/1165789/
usually the first line of defense for PV ... Please get online and look at PV diets
Hi @lindakay55 I’m so happy that you’ve joined Connect. It’s truly an amazing forum with people...
https://connect.mayoclinic.org/comment/1464122/
gene, that means you have primary PV ... so many members here who also have PV
raremiracle2 Thanks for sharing your experience. It is so sad. I passed through it the same...
https://connect.mayoclinic.org/comment/809041/
They say there is no cure for PV instead
69 year old male, diagnosed with PV in 2021… I’ve been on HU since April 2021…...
https://connect.mayoclinic.org/comment/1078196/
69 year old male, diagnosed with PV
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