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Comments (2,335)

Ed - My vision changed too almost immediately. 6 months later (at age 52) I suddenly...

https://connect.mayoclinic.org/comment/904300/

I know you once suggested Sjogren&#39 ... sensory whatever that it can't be Sjogren

Discussion: Learning Past Cause vs. Quality of Present Life?

Support Group: Neuropathy

Posted: Jul 29, 2023

To Michc: Please have them look hard for Sjogren's Syndrome. I have just been diagnosed with...

https://connect.mayoclinic.org/comment/897900/

Michc: Please have them look hard for Sjogren

Discussion: IVIg Infusions for autoimmune neuropathy

Support Group: Autoimmune Diseases

Posted: Jul 18, 2023

I too am switching to Plaquenil and tapering of pred (at the moment on 4 mg...

https://connect.mayoclinic.org/comment/896731/

also found something that indicates Sjogren

Discussion: Shifting from Prednisone to Hydroxychloroquine

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jul 16, 2023

I have Sjogrens also with the same odor problems. I wash and wash and the odor...

https://connect.mayoclinic.org/comment/890465/

I have Sjogrens also with the same odor

Discussion: Body odor without sweat -- Sjogren's Syndrome?

Support Group: Autoimmune Diseases

Posted: Jul 5, 2023

Hello @bri85, Welcome to Connect. Since you mentioned Sjögrens Syndrome and having lots of issues with...

https://connect.mayoclinic.org/comment/889497/

Since you mentioned Sjögrens Syndrome ... of interest. --- Dry eyes from Sjogrens ... connect.mayoclinic.org/discussion/dry-eyes-from-sjogrens ... connect.mayoclinic.org/discussion/dry-eyes-1/ --- Sjögren ... /connect.mayoclinic.org/discussion/sjorgens-syndrome

Discussion: Eyes and Neuropathy

Support Group: Eye Conditions

Posted: Jul 3, 2023

Hello @abhishek80. You will notice that I have moved your post into an existing discussion that...

https://connect.mayoclinic.org/comment/883742/

autoimmune-illness-and-small-fiber-neuropathy/ Do you have Sjogren

Discussion: Autoimmune illness and small fiber neuropathy

Support Group: Neuropathy

Posted: Jun 23, 2023

I’m in need a knee replacement due to having osteoarthritis in all my joints and it...

https://connect.mayoclinic.org/comment/881453/

having Raynauds, Fibromyalgia and Sjorgens

Discussion: How do u deal with the depression?

Support Group: Autoimmune Diseases

Posted: Jun 19, 2023

I had the ANA and ANCA test too and it was normal- the ANA was normal...

https://connect.mayoclinic.org/comment/876693/

I’ve been tested for Sjorgens too.

Discussion: Numbness, twitching, weakness but clean EMG and MRI

Support Group: Brain & Nervous System

Posted: Jun 11, 2023

Hi I have Sjogrens disease and yes it can cause muscular, bone, and joint pain and...

https://connect.mayoclinic.org/comment/875775/

Hi I have Sjogrens disease and yes it ... www.sjogrensadvocate.com/ It is run by an MD with SJogrens

Discussion: My wife has autoimmune disease. She has inflammation in legs and arms.

Support Group: Autoimmune Diseases

Posted: Jun 10, 2023

Hi, I was diagnosed with MCTD, Raynauds, and primary biliary cholangitis in the same year. Also...

https://connect.mayoclinic.org/comment/847564/

I might also have Sjogren’s.

Discussion: How do you cope with Mixed Connective Tissue Disease (MCTD)?

Support Group: Autoimmune Diseases

Posted: Apr 22, 2023

My rheumatologist didn’t want me taking Stronium. She said it was like putting shellac on the...

https://connect.mayoclinic.org/comment/841887/

restrictive diet due to me having Sjogerns

Discussion: Tymlos for two years and then Prolia - what are your experiences?

Support Group: Osteoporosis & Bone Health

Posted: Apr 12, 2023

Dysautonomia is an umbrella term for dysfunction of the autonomic nervous system. Small fiber neuropathy is...

https://connect.mayoclinic.org/comment/839803/

autoimmune diseases like Ehlers Danlos, Sjögren

Discussion: Dramatic small sensory nerve loss -EDS/autoimmune cause? Need ATLrheum

Support Group: Autoimmune Diseases

Posted: Apr 8, 2023

I have but I had to use Lomotil as well. I was diagnosed with CVID 30...

https://connect.mayoclinic.org/comment/838966/

I was also diagnosed with Sjögren’s

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Apr 6, 2023

So my understanding about UCTD is it’s for patients who don’t quite fit the full criteria...

https://connect.mayoclinic.org/comment/837993/

I do have blood markers for Sjogrens

Discussion: Undifferentiated Connective Tissue Disease

Support Group: Autoimmune Diseases

Posted: Apr 5, 2023

I always wondered if all the chronic fatigue joint pain brain fog dry eyes ys mouth...

https://connect.mayoclinic.org/comment/835031/

Sjogrens Syndrome popped up as an “8

Discussion: Any Adhesive Arachnoiditis members here?

Support Group: Spine Health

Posted: Mar 31, 2023

@lilymol I checked out the sjogrens advocate like you suggested. Excellent resource!

https://connect.mayoclinic.org/comment/829187/

@lilymol I checked out the sjogrens

Discussion: Question about Sjogrens and discomfort in legs. Also skin feels itchy

Support Group: Autoimmune Diseases

Posted: Mar 20, 2023

Shortly after I was diagnosed with Sjogren's I developed an allergy to SLS - sodium lauryl...

https://connect.mayoclinic.org/comment/827912/

Shortly after I was diagnosed with Sjogren ... It looks like an extreme version of Sjogren ... started using toothpaste without SLS my Sjogren

Discussion: Question about Sjogrens and discomfort in legs. Also skin feels itchy

Support Group: Autoimmune Diseases

Posted: Mar 18, 2023

So that is interesting and I'm sorry you are going through so much grief. I wondered...

https://connect.mayoclinic.org/comment/827595/

I also have Sjogrens, and I wonder if

Discussion: Positive Dysphotopsia after Cataract Surgery

Support Group: Eye Conditions

Posted: Mar 17, 2023

Good morning, when first ill I saw a grief counselor which I found very helpful. I...

https://connect.mayoclinic.org/comment/826370/

Oh yes Sjogren's advocate is a great ... education and support as well as the Sjogren ... with autoimmune diseases especially Sjogren