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Comments (1,973)

marmymoomy, Referral's are a big pain. You mentioned dry eyes, skin, what about a dry mouth?...

https://connect.mayoclinic.org/comment/1161863/

"sicca" manifestations of Sjögren ... There is SO MUCH MORE to Sjögren&#39 ... The website: Sjögren's Advocate ... A doctor who has Sjögren's along ... There is also, pSS, Primary Sjögren&

Discussion: Endocrinology question ; need help; Dr won’t give referral

Support Group: Diabetes & Endocrine System

Posted: Oct 24 6:41am

Than You Becky,soooo much! I will contact both rare diseases. No one that I know had...

https://connect.mayoclinic.org/comment/1146769/

Between the Small Fiber Neuropathy Sojgrens

Discussion: Rheumatoid Arthritis (RA) - Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: Sep 24 3:33pm

penn, pSS is so much much more than just dryness (SICCA) issues, as you are proof...

https://connect.mayoclinic.org/comment/1146770/

I love Sjögren's Advocate site.

Discussion: Small Fiber Neuropathy, Sjogrens, Hashimoto's

Support Group: Autoimmune Diseases

Posted: Sep 24 3:34pm

Hello Shelly, I was going to Columbia Presbyterian Hospital, NYC, If you live an hour to...

https://connect.mayoclinic.org/comment/1146855/

sent to ENT, lip biopsy, positive for Sjogren

Discussion: Small Fiber Neuropathy, Sjogrens, Hashimoto's

Support Group: Autoimmune Diseases

Posted: Sep 24 7:17pm

That’s a lot to deal with. I test negative for Celiac and Sjogren’s, but was still...

https://connect.mayoclinic.org/comment/1134268/

I test negative for Celiac and Sjogren

Discussion: What help is available for very slow motility?

Support Group: Digestive Health

Posted: Sep 1 6:50am

I am having a MRI of my lumbar spine soon (among other tests). I have a...

https://connect.mayoclinic.org/comment/1157125/

have a complicated picture incuding Sjogren ... But there is the Sjogren's and it

Discussion: Connection between Neuropathy and L4,L5 Issues

Support Group: Neuropathy

Posted: Oct 14 5:22pm

Chris, have you had Sjögren’s syndrome confirmed? The most effective products I’ve found personally are xylimelts...

https://connect.mayoclinic.org/comment/1158544/

Chris, have you had Sjögren’s syndrome ... I also take one RX designed for Sjrogrens

Discussion: Nighttime Dry Mouth

Support Group: Autoimmune Diseases

Posted: Oct 17 1:12pm

katgusman, Yep! My dentist is the one that commented that the dryness in my mouth was...

https://connect.mayoclinic.org/comment/1159254/

Primary Sjögren's Syndrome affects

Discussion: Severe dry tongue and mouth, burning lips, cheeks, and nose

Support Group: Brain & Nervous System

Posted: Oct 19 1:51am

You can be seronegative and still have Sjogren's Disease. I was diagnosed based on a lip...

https://connect.mayoclinic.org/comment/1160073/

can be seronegative and still have Sjogren ... Sjogren's is systemic, and usually ... Inflammation from Sjogren's led

Discussion: Sjogren's Syndrome?

Support Group: Autoimmune Diseases

Posted: Oct 20 3:47pm

HI, SHELLY, PLEASE BARE WITH ME, MY COMPUTER IS GONE, BUYING A NEW SO I'LL DO...

https://connect.mayoclinic.org/comment/1162334/

SOJGRENS RHUM. ... SO, NOW SOJGRENS SYNDROME I GET IVIG ... IS STARTING INFUSION FOR SOJGRENS,

Discussion: Sojgrens Syndrome, Infusion

Support Group: Autoimmune Diseases

Posted: Oct 24 9:33pm

penn, This is horrible!!! I have Primary Sjögren's, but am seronegative with biopsy positive, 4 years...

https://connect.mayoclinic.org/comment/1160184/

I have Primary Sjögren's, but am

Discussion: Sojgrens Syndrome, Infusion

Support Group: Autoimmune Diseases

Posted: Oct 20 7:53pm

suetex,, THANK YOU!!!, MY Rheumatologist did not want me to have the IVIG and the Retuximab,...

https://connect.mayoclinic.org/comment/1148425/

Retuximab, she concerned because my Sjogren

Discussion: Small Fiber Neuropathy, Sjogrens, Hashimoto's

Support Group: Autoimmune Diseases

Posted: Sep 27 8:45pm

Just FYI-I had a drug interaction with Plaquenil and Paxlovid that you may want to be...

https://connect.mayoclinic.org/comment/1150101/

The Plaquenil works well for my Sjogren

Discussion: Paxlovid and Autoimmune Disease

Support Group: Autoimmune Diseases

Posted: Oct 1 7:35am

I wondered about that too. I also have Sjogren's disease which is for sure autoimmune. Pain...

https://connect.mayoclinic.org/comment/1156954/

I also have Sjogren's disease which

Discussion: Fibromyalgia..Is It an autoimmune disease?

Support Group: Fibromyalgia

Posted: Oct 14 11:32am

kacey1, Dry mouth is such a big crummy thing. People who don't have it, really can't...

https://connect.mayoclinic.org/comment/1157240/

I have pSS- primary Sjögren's syndrome

Discussion: Nighttime Dry Mouth

Support Group: Autoimmune Diseases

Posted: Oct 15 2:16am

P.S. I start infusion for sojgrens, forgot the name Starts with R.

https://connect.mayoclinic.org/comment/1159991/

I start infusion for sojgrens, forgot

Discussion: Sojgrens Syndrome, Infusion

Support Group: Autoimmune Diseases

Posted: Oct 20 12:32pm

Agree with all the above comments about being seronegative, and still have Sjogren’s. In my case...

https://connect.mayoclinic.org/comment/1160342/

being seronegative, and still have Sjogren ... and my lip biopsy was positive for Sjogren ... My Rheumatologist ran an early Sjogren ... testing and found that along with the Sjogren ... and when she was tested for early Sjogren

Discussion: Sjogren's Syndrome?

Support Group: Autoimmune Diseases

Posted: Oct 21 8:46am

I read your story and yours is a lot like mine. I’m still playing the testing...

https://connect.mayoclinic.org/comment/1139112/

Sjogren's lung (pulmonary) disease ... The symptoms I have match the Sjogren

Discussion: Living with LPSVS (long post-COVID vaccination syndrome)

Support Group: Post-COVID Recovery & COVID-19

Posted: Sep 9 7:27pm

Celia16 Yep, Celiac disease, primary Sjögren's syndrome-it affects so much more than just dry mouth, drs...

https://connect.mayoclinic.org/comment/1134225/

Celia16 Yep, Celiac disease, primary Sjögren