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1,156 total results
Comments (1,069)
I'm thinking about the response above of @loribmt, and wanted to pipe in that the interferon...
https://connect.mayoclinic.org/comment/812976/
the interferon I'm taking for ET/PV
When I first started I was taking seven days a week. I felt severe sensitivity to...
https://connect.mayoclinic.org/comment/1160844/
I was diagnosed at 56 with PV and almost
I was diagnosed with MDS/MPN-RS-T in 2018. I have three mutations -JAK2, SRFS2 and IDH1-R132H. My...
https://connect.mayoclinic.org/comment/1042552/
2024 the MPN component mutated to PV
Hi @margrethe, I can imagine with such a new diagnosis, yet to be confirmed you have...
https://connect.mayoclinic.org/comment/873136/
posts and connect easily with other PV
Thanks for the reply. I am trying to find answers. I am on my second oncologist/hematologist....
https://connect.mayoclinic.org/comment/870455/
But my symptoms are all listed on PV
Hi Sandy I’m happy to read you have found some relief. My stroke was in 2018,...
https://connect.mayoclinic.org/comment/1056559/
My oncologist, who treats me for my PV
Hi, Thank you for your very good information but I had already read it and it...
https://connect.mayoclinic.org/comment/1348639/
I thought I read that you had PV that
I too have PV JAK2 positive on two separate occasions. I'm on hydroxurea and baby asa...
https://connect.mayoclinic.org/comment/1455153/
I too have PV JAK2 positive on two separate
Hi @themyth, with Polycythemia Vera, too many red blood cells are produced resulting in the high...
https://connect.mayoclinic.org/comment/821819/
there a diagnosis given with your PV
Hi Lori My sincere apologies to you, I feel that I have upset you rather than...
https://connect.mayoclinic.org/comment/937696/
A build up of uncertainty since my PV
@jewelfaux and @nypara66, You’re both correct. It is possible to determine if a patient has the...
https://connect.mayoclinic.org/comment/1023538/
ET and PV are myeloproliferative diseases
I got covid in jaunary of 2022 I also have alot of pvcs I was sent...
https://connect.mayoclinic.org/comment/874326/
Except that I have a high percentage of PV
Hi ideachaser1, Thanks for sharing. I guess what I am asking is do you have megakaryocyte...
https://connect.mayoclinic.org/comment/1256239/
ever have prior diagnosis like ET or PV
When given the diagnosis of PV and receiving the news that I will be on Hydroxyurea...
https://connect.mayoclinic.org/comment/948864/
When given the diagnosis of PV and receiving
Hello, I’m on HU for PV for about two and a half years now. Some hair...
https://connect.mayoclinic.org/comment/1307376/
Hello, I’m on HU for PV for about two
Hi @eferret. Sounds like you have a good team behind you with your local hematologist and...
https://connect.mayoclinic.org/comment/1156861/
myeloproliferative disorders in the same group with PV
Dear janemc, Well, you could be right. After I was diagnosed with PV I told two...
https://connect.mayoclinic.org/comment/1284746/
After I was diagnosed with PV I told
I was diagnosed w Polycythemia Vera in 2020 when routine lab work showed HCT of 61.3....
https://connect.mayoclinic.org/comment/737723/
for 1 year and a half prior to my PV ... and not as horrified as I was about PV
Hello, I am currently looking for research for my mother and our family. She was diagnosed...
https://connect.mayoclinic.org/comment/231803/
was diagnosed with Polycythemia Vera/PV ... raises iron levels and that is bad for PV
Hi Sammy, Well, there are two types of polycythemia: polycythemia vera and just plain old polycythemia....
https://connect.mayoclinic.org/comment/837835/
PV is a very VERY slow growth cancer ... symptoms are generally the same for both PV
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