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Comments (2,482)

Hi @kaprizzz, I also have an extremely high ANA with some type of titer. I really...

https://connect.mayoclinic.org/comment/934964/

No RA, lupus, MS, etc. ... is something called sero negative lupus

Discussion: Positive ANA: What might be the cause?

Support Group: Autoimmune Diseases

Posted: Sep 23, 2023

I just wanted to add, though I have mixed connective tissue disease, my primary symptoms are...

https://connect.mayoclinic.org/comment/1197399/

tissue Disease can include sjogrens, lupus

Discussion: Nighttime Dry Mouth

Support Group: Autoimmune Diseases

Posted: Dec 26, 2024

@ rwinney, thanks for your story. I get sick on about everything, but hydrocodone works well...

https://connect.mayoclinic.org/comment/299235/

biopsy so i can know I don't have lupus

Discussion: Lyrica - Looking for Patient Experiences

Support Group: Neuropathy

Posted: May 10, 2020

I was diagnosed with Lupus, Sjogren, and primary biliary Cirrhosis in 2010. I just got diagnosed...

https://connect.mayoclinic.org/comment/235130/

I was diagnosed with Lupus, Sjogren,

Discussion: Primary Biliary Cholangitis and Autoimmune Hepatitis

Support Group: Transplants

Posted: Apr 12, 2019

I’ve had iron checked recently and it was fine, they check my thyroid yearly, a bunch...

https://connect.mayoclinic.org/comment/1057359/

thing that came up positive was the lupus ... anticoagulant but that doesn’t mean i have lupus

Discussion: Pain, tingling and fatigue

Support Group: Brain & Nervous System

Posted: Apr 25, 2024

I have ILC, and Lupus. Diagnosed at NWMH in Chicago, but went to City of Hope...

https://connect.mayoclinic.org/comment/1039228/

I have ILC, and Lupus. ... In addition to ILC, and Lupus-- I have

Discussion: Atypical Ductal Hyperplasia AND Invasive Lobular Carcinoma

Support Group: Breast Cancer

Posted: Mar 24, 2024

Hi Paula, I was diagnosed with Tumid Lupus in April of 2016, two days before my...

https://connect.mayoclinic.org/comment/117609/

Paula, I was diagnosed with Tumid Lupus ... My mother has tumid lupus with positive

Discussion: Tumid Lupus

Support Group: Autoimmune Diseases

Posted: Jul 17, 2017

Not sure about the Lupus connection but I do have hard earned info about Sjogren's. I...

https://connect.mayoclinic.org/comment/1357192/

Not sure about the Lupus connection

Discussion: Cannot Regulate Body Temperature

Support Group: Autoimmune Diseases

Posted: Jul 26 6:31pm

Hi, I've been in your situation too. I was diagnosed with undifferentiated connective tissue disease overlapping...

https://connect.mayoclinic.org/comment/1362670/

connective tissue disease overlapping with lupus

Discussion: ANA test follow up results - anyone else experience this

Support Group: Autoimmune Diseases

Posted: Aug 3 9:10am

Don't be afraid! Lupus is manageable if you do the right things...and know your limits. You...

https://connect.mayoclinic.org/comment/1328367/

Lupus is manageable if you do the right

Discussion: ANA positive for Lupus

Support Group: Autoimmune Diseases

Posted: Jun 16 11:45am

in a bad car accident and after 98 surgeries I lost both legs and have lupus...

https://connect.mayoclinic.org/comment/175908/

surgeries I lost both legs and have lupus

Discussion: Tapering off Lyrica gave me panic, nausea, extreme anxiety

Support Group: Depression & Anxiety

Posted: May 27, 2019

PS-I checked out the links you shared. When I had a sono of my shoulders, the...

https://connect.mayoclinic.org/comment/1179636/

inflammation, blood test showed no lupus

Discussion: Confused on what’s considered “normal”

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Nov 25, 2024

I wanted to try the motility but I was put on regular, xemfaxin? And Zofran, which...

https://connect.mayoclinic.org/comment/955412/

taking cause I also have systemic lupus

Discussion: Gastroparesis with severe symptoms!

Support Group: Digestive Health

Posted: Oct 28, 2023

I have lupus and fibromyalgia and doctors are always pushing gabapentin on me which I categorize...

https://connect.mayoclinic.org/comment/787325/

I have lupus and fibromyalgia and doctors

Discussion: Can gabapentin cause muscle pain and cramps in arms & legs?

Support Group: Chronic Pain

Posted: Dec 21, 2022

@tsc there are several articles on melatonin and autoimmune diseases that suggest it is beneficial, then...

https://connect.mayoclinic.org/comment/730339/

pmc/articles/PMC3709754/ I have lupus

Discussion: Osteoporosis and Melatonin

Support Group: Osteoporosis & Bone Health

Posted: Jul 25, 2022

Hello @pattym, I would like to add my welcome to Connect along with @nikohl7 who has...

https://connect.mayoclinic.org/comment/219670/

search using the phrase drug induced lupus ... as_ylo=2018&q=drug+induced+lupus+list

Discussion: Drug-Induced Lupus from Methotrexate

Posted: Oct 12, 2018

This may sound a little off the beaten path , Could possiblity be the reason for...

https://connect.mayoclinic.org/comment/1273835/

medication in the treatment for the lupus ... food allergies comes with auto amune lupus

Discussion: Autoimmune Inner Ear Disease

Support Group: Autoimmune Diseases

Posted: Apr 4 6:58am

Curious how you know the anti-centromere antibody was low positive. I got a result of >8...

https://connect.mayoclinic.org/comment/871199/

skin biopsy years ago that showed lupus ... tissue disorder but ended up with lupus

Discussion: Need diagnosis! Circulation issues and neuropathy with ANA escalating

Support Group: Autoimmune Diseases

Posted: Jun 2, 2023

Hi Cammie, I was diagnosed with Tumid Lupus last April (two days before my 20th birthday),...

https://connect.mayoclinic.org/comment/117613/

Cammie, I was diagnosed with Tumid Lupus ... Right now my lupus is mimicking dishydrotic

Discussion: Tumid Lupus

Support Group: Autoimmune Diseases

Posted: Aug 11, 2017

I have lupus and did not experience any flares. However, I was, at first, unable to...

https://connect.mayoclinic.org/comment/1121690/

I have lupus and did not experience

Discussion: Does anyone have RA side effects on Tymlos

Support Group: Osteoporosis & Bone Health

Posted: Aug 11, 2024