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972 total results
Comments (925)
Good evening @sharka, it is wonderful to meet you on Connect. You've been quite busy since...
https://connect.mayoclinic.org/comment/743644/
gather.....you have idiopathic SFN (small ... fiber neuropathy). ... under her wing and started me on a small ... that you make sure that he/she knows what ... medications you are taking and with what
Welcome @hcroom, My PMR is currently in remission. I had neuropathy for almost 20 years before...
https://connect.mayoclinic.org/comment/742366/
fiber peripheral neuropathy six years ... might find the following discussion helpful ... :
-- Small Fiber Neuropathy: What helps ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy ... What symptoms do you have for the neuropathy
Hello @tom01255, Welcome to Connect. It can be a little scary to have a skin punch...
https://connect.mayoclinic.org/comment/740067/
Many of us have idiopathic small fiber ... I think what might be helpful for you ... connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours ... /
-- Small Fiber Neuropathy: What helps ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy
@rhm601, Like you I also feel very fortunate that I don't have associated pain with my...
https://connect.mayoclinic.org/comment/736352/
neurologist diagnosed me with idiopathic small ... fiber neuropathy and offered no treatments ... the neurologist to see if it would help ... pain (my non medical translation of what ... on studies about supplements that help
@frking I'm assuming you mean a cardiac catheterization, used to study the various functions of the...
https://connect.mayoclinic.org/comment/734373/
which came back normal except for Small ... Fiber Neuropathy. ... Anyhow, CSS may help explain your unexplainable ... symptoms such as smelling burning wood ... Do you mind letting me know what you
I would like to join your group. Could you please invite me? Linda Tripp I was...
https://connect.mayoclinic.org/comment/732121/
Tripp I was diagnosed with TS-HDS small ... fiber neuropathy several months ago ... and am trying to find as much about what ... helps as I can.
Good evening @lynndenver, and welcome to Connect. You are definitely someone looking for answers. Your first...
https://connect.mayoclinic.org/comment/731855/
Your first question might be.....what ... find out, knowledge is power e.g. what ... I have (SFN) small fiber neuropathy ... for years and can help you immensely ... To help him a bit, would you be able
Hello @nullz, Thank you for sharing your experience. I've also been diagnosed with idiopathic small fiber...
https://connect.mayoclinic.org/comment/730530/
also been diagnosed with idiopathic small ... fiber peripheral neuropathy but only ... made lifestyle changes to try and help ... Do you mind sharing what brought you ... to Connect, what you were searching
Thank you for your reply. I often used deep breathing to help me fall asleep. Breathing...
https://connect.mayoclinic.org/comment/730186/
I often used deep breathing to help ... Physicians have such few
drugs to use for neuropathic ... When I was initially hospitalized for
what ... I now know as small fiber neuropathy ... They help many
people.
I dont mean to be discouraged. Its my journey, but I can't stop thinking about what...
https://connect.mayoclinic.org/comment/728553/
but I can't stop thinking about what ... I wouldn't have small fiber neuropathy ... Meds will help, I see a counselor and ... time will help too.
Hi there @lubelle. I see that Rachel @rwinney suggested that you visit with the SFN folks....
https://connect.mayoclinic.org/comment/717199/
a go-getter with developing SFN, (small ... fiber neuropathy). ... a daughter older than your son and what ... I hear sometimes when I offer what ... I consider to be helpful information
@hmccarth5 Hello. I’m not very familiar with Raynaud’s. Do you know what type of doctor diagnosed...
https://connect.mayoclinic.org/comment/710808/
Do you know what type of doctor diagnosed ... about it, some of the symptoms mimic small ... fiber neuropathy (SFN) symptoms. ... fibers of the peripheral nervous system ... I hope this information helps.
Hello @issacmrobinson77, Welcome to Connect. I have small fiber peripheral neuropathy but my neurologist diagnosed me...
https://connect.mayoclinic.org/comment/709535/
I have small fiber peripheral neuropathy ... before, no treatment available to help ... The two sites I've found most helpful ... connect.mayoclinic.org/comment/310341/
What ... have you found most helpful?
@lahjuly4 Hi Liz! Welcome to Mayo Connect. I stumbled upon this site several months ago and...
https://connect.mayoclinic.org/comment/709078/
with people who REALLY understand what ... I hope you find it as helpful and comforting ... , I explained I was diagnosed with small ... fiber neuropathy, autonomic dysfunction ... hope the information I provided is helpful
Good afternoon @joypalmer1, I notice that Amanda has reached out to some other SFN (Small Fiber...
https://connect.mayoclinic.org/comment/707948/
has reached out to some other SFN (Small ... Fiber Neuropathy) members. ... (that's what I call them). ... Would you mind sharing what treatments ... That would be helpful.
Welcome @saki, Although I have neuropathy I don't have any experience with scalp neuropathy but did...
https://connect.mayoclinic.org/comment/703431/
in a skin biopsy, suggesting that small-fibre ... manifestation of the DM syndrome." --- Small-fibre ... couple of other sites that might be helpful ... for learning more and what treatments ... mention any treatments that might help
You might find these other discussions helpful also: -- Small Fiber Neuropathy: What helps?: https://connect.mayoclinic.org/discussion/small-fiber-neuropathy/ --...
https://connect.mayoclinic.org/comment/701734/
also:
-- Small Fiber Neuropathy: What ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy ... /
-- Small Fiber Neuropathy burning ... /connect.mayoclinic.org/discussion/small-fiber-neuropathy-burning ... : What's Yours?
Joanne, I’m so sorry you are going through this. A lot of us that have Small...
https://connect.mayoclinic.org/comment/699947/
A lot of us that have Small
Fiber Sensory ... Neuropathy and Autonomic Neuropathy ... had to deal with exactly what your ... a neurologist who deals with just neuropathy ... are probably going to not get the help
Greetings @timcryan, and welcome to Connect. This is a group of patients and caregivers who help...
https://connect.mayoclinic.org/comment/688746/
group of patients and caregivers who help ... I would absolutely call nighttime Neuropathy ... I have had SFN small fiber neuropathy ... What have you tried? ... Where on your body is the neuropathy
Welcome Carlos @carlossierra1287, I was also diagnosed with small fiber peripheral neuropathy in 2016 except I...
https://connect.mayoclinic.org/comment/686492/
carlossierra1287, I was also diagnosed with small ... fiber peripheral neuropathy in 2016 ... I posted my story and what has helped ... Journey Stories: What's Yours? ... if there are others you might find helpful
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