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963 total results

Comments (917)

My Fiance was diagnosed with cidp 20 pluss years ago his first hospitalization was a couple...

https://connect.mayoclinic.org/comment/667560/

My Fiance was diagnosed with cidp 20

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 3, 2022

Hello Yes, I was diagnosed with CIDP about 10 months ago and have been receiving IgG...

https://connect.mayoclinic.org/comment/730428/

Hello Yes, I was diagnosed with CIDP ... great group to follow or join GIB-CIDP.org

Discussion: CIDP and concerns about treatment risk factors

Support Group: Neuropathy

Posted: Jul 25, 2022

I had a trial (80% relief!), and an implant of an Abbott SCS (75% relief for...

https://connect.mayoclinic.org/comment/1077976/

on just in case it's helping my CIDP ... CIDP is the pits!

Discussion: Spinal Cord Stimulator Removal

Support Group: Chronic Pain

Posted: May 30, 2024

Hi Cindylb, I saw your post referencing your Brother-in-law having Gillian Barre Syndrome from Epstein Barr...

https://connect.mayoclinic.org/comment/135300/

GBS/CIDP Foundation › variants Miller ... Fisher Syndrome - GBS/CIDP Foundation

Discussion: Treatment for chronic Epstein-Barr virus (EBV)

Support Group: Infectious Diseases

Posted: Feb 25, 2020

There are several blood tests that can be helpful in addition to the EMG test. All...

https://connect.mayoclinic.org/comment/1046520/

levels but normal levels can occur in CIDP

Discussion: Has anyone really gotten over CIDP?

Support Group: Autoimmune Diseases

Posted: Apr 6, 2024

This has been a very interesting discussion for me for several reasons. I was diagnosed with...

https://connect.mayoclinic.org/comment/1145191/

finally got diagnosed with a cause, CIDP ... problem of swallowing is related to the CIDP

Discussion: Swallowing difficulties

Support Group: Neuropathy

Posted: Sep 21, 2024

@jimhd Hi Jim, I am so concerned about you. I hope my input is helpful! First,...

https://connect.mayoclinic.org/comment/324201/

First, if you do have CIDP, it sounds ... There are so many more, but perhaps, CIDP

Discussion: Now what! Neuropathy in feet and ankles.. Numbness in hands and arms

Support Group: Neuropathy

Posted: Oct 16, 2020

I was in the same condition as you when diagnosed in late 2015. My doc started...

https://connect.mayoclinic.org/comment/1225319/

Btw my friend was diagnosed with CiDp

Discussion: CIDP diagnosis

Support Group: Autoimmune Diseases

Posted: Jan 30 9:27am

I was diagnosed with CIDP in 2022. Did weekly IVIG of Octagam and was back to...

https://connect.mayoclinic.org/comment/1322023/

I was diagnosed with CIDP in 2022.

Discussion: Anyone on VYVGART Hytrulo, a new treatment for CIDP?

Support Group: Autoimmune Diseases

Posted: Jun 7 5:05am

I have CIDP DADS M. In 2022 and 2023 I had four infusions of Rituximab. My...

https://connect.mayoclinic.org/comment/970853/

I have CIDP DADS M.

Discussion: DADS-M - anyone else with this diagnosis I’d love to hear from you

Support Group: Neuropathy

Posted: Nov 26, 2023

re: burning feet. My pain started as burning feet and progressed to stabbing pain and other...

https://connect.mayoclinic.org/comment/72017/

he thought it is most likely to be CIDP

Discussion: Burning Feet syndrome

Support Group: Neuropathy

Posted: Feb 6, 2020

I opted for trying physical therapy first. After that it was gabapentin, which made me sick....

https://connect.mayoclinic.org/comment/81517/

The pain I have from the CIDP on top

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: Jan 31, 2019

This has been going on for 11 yrs now, and I forget sometimes what the timeline...

https://connect.mayoclinic.org/comment/914350/

etc, it was them that gave me the CIDP

Discussion: Questions on IVIg treatment for what I have: Axonal sensory-motor

Support Group: Neuropathy

Posted: Aug 17, 2023

@cgrogers hello, My name is Kim and I also have been diagnosed with CIDP about 18...

https://connect.mayoclinic.org/comment/892822/

and I also have been diagnosed with CIDP

Discussion: CIDP Support Group

Support Group: Autoimmune Diseases

Posted: Jul 9, 2023

Welcome @bjbates53, The protocol of supplements I take for my neuropathy include - R-ALA which some...

https://connect.mayoclinic.org/comment/758804/

They also have members with CIDP that

Discussion: Alpha lipoic acid for Neuropathy

Support Group: Neuropathy

Posted: Oct 8, 2022

Thx again for your answer… I have a very able-bodied husband who is absolutely zero help...

https://connect.mayoclinic.org/comment/643857/

well.I have Sjogren’s along with the CIDP

Discussion: feeling defeated

Support Group: Neuropathy

Posted: Oct 10, 2021

I have CIDP, with burning pain in my feet and ankles. My feet are always cold...

https://connect.mayoclinic.org/comment/1028432/

I have CIDP, with burning pain in my

Discussion: Seeking support, new to this nightmare

Support Group: Neuropathy

Posted: Mar 6, 2024

I was diagnosed with CIDP after my bout with Covid 2 years ago The tingling in...

https://connect.mayoclinic.org/comment/1209720/

I was diagnosed with CIDP after my bout

Discussion: CIDP (Chronic Inflammatory Demyelinating Polyneuropathy)

Support Group: Autoimmune Diseases

Posted: Jan 12 9:21am

Not all will help with the neuropathy it’s not their specialty. He is starting me on...

https://connect.mayoclinic.org/comment/1143822/

It is used for CIDP.

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Sep 19, 2024

sb4ca, I have all sorts of neuropathy, pins and needles, just about everywhere. But not my...

https://connect.mayoclinic.org/comment/1131471/

me lol How were you diagnosed with CIDP

Discussion: Anyone ever had face and limb sensory symptoms?

Support Group: Brain & Nervous System

Posted: Aug 27, 2024