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Comments (821)
Good to hear you are faring well and great to hear you have a connection with...
you have a connection with the GBS/CIDP ... There are some other CIDP discussions ... you might find helpful. -- CIDP ... /connect.mayoclinic.org/discussion/cidp ... / -- CIDP and the Covid Vaccine https
Support Group: Neuropathy
Posted: Dec 9, 2022
Welcome, @yvonne111. Good questions. I'm tagging fellow CIDP members like @mabelandlynne @cgrogers @lynn66618 @coachrandy @goldacharna @danawyn...
I'm tagging fellow CIDP members ... their coping strategies of living with CIDP ... around in this related discussion: - CIDP ... /connect.mayoclinic.org/discussion/cidp-support-group ... you might have to consider from pre-CIDP
Support Group: Autoimmune Diseases
Posted: Oct 30 9:34am
Hello @wolfgang, Welcome to Connect. It's good to hear you are searching for answers and learning...
can meet other members discussing CIDP ... CIDP (Chronic Inflammatory Demyelinating ... you might find helpful from the GBS/CIDP ... out your diagnosis and treatment of CIDP ... -- https://www.gbs-cidp.org/cidp/all-about-cidp
Support Group: Neuropathy
Posted: Sep 30, 2021
Welcome @ariadnakushak, I think it may take more than one specific test to diagnose CIDP. Here...
than one specific test to diagnose CIDP ... from Mayo Clinic on the topic. --- CIDP ... condition: https://mcpress.mayoclinic.org/cidp ... /cidp-new-tests-that-help-diagnose-this-rare-condition ... Are you considering being tested for CIDP
Support Group: Neuropathy
Posted: Apr 29 3:51pm
Hello Glenn @cgrogers, Welcome to Connect. You will find members talking about CIDP in the Autoimmune...
You will find members talking about CIDP ... list of the discussions related to CIDP ... : -- Anyone been diagnosed with CIDP ... CIDP? ... What is your CIDP story?
Discussion: CIDP Support Group
Support Group: Autoimmune Diseases
Posted: Dec 18, 2022
FDA JSUT APPROVED NEW MEDICINE FOR CIDP CALLED "VYVGAH HYTRULO WHY NO COMMENTS ON MAYO ORUM...
FDA JSUT APPROVED NEW MEDICINE FOR CIDP ... WHY NO COMMENTS ON MAYO ORUM FIRST CIDP
Discussion: What do I do now?
Support Group: Neuropathy
Posted: Oct 8 7:06pm
Hello @toolman53, I would like to add my welcome to Connect along with @celia16 and others....
answers and help for conditions like CIDP ... you have seen the Shining Through CIDP ... might be helpful to learn more about CIDP ... find it helpful to scan through other CIDP ... search=CIDP.
Support Group: Neuropathy
Posted: Nov 8 7:19am
My diagnosis of CIDP was also combined with a diagnosis of lymphoma so when I started...
My diagnosis of CIDP was also combined ... Rituximab for the lymphoma it cured my CIDP ... My CIDP was gone completely in 2 months
Support Group: Neuropathy
Posted: Apr 12, 2018
The literature for CIDP is at the website for GBS/CIDP foundation.org . I had GBS when...
The literature for CIDP is at the website ... for GBS/CIDP foundation.org . ... I had GBS when I was a child and CIDP
Chronic drinking of alcohol can cause peripheral neuropathy. That said, for members' reference, CIPD is not...
alcohol-related in this definition: CIDP ... CIDP occurs when the immune system attacks ... For this reason, CIDP is thought to ... Health care providers also consider CIDP
Support Group: Autoimmune Diseases
Posted: Sep 6, 2022
correct, I had previously been diagnosed with Lymphoma and CIDP and when I took my treatment...
previously been diagnosed with Lymphoma and CIDP ... for the Lymphoma it also treated the CIDP ... at the same time and the CIDP symptoms
Support Group: Autoimmune Diseases
Posted: Jun 25, 2018
I was immediately diagnosed with CIDP (2 Neurologists). I did one series of 16 IVIG infusions...
I was immediately diagnosed with CIDP ... I apparently have a CIDP variant. ... CIDP has "many" different aspects
Support Group: Autoimmune Diseases
Posted: May 2 5:05am
@patkz Just to get some new info: do you currently have GBS and/or CIDP? What do...
do you currently have GBS and/or CIDP ... There is an on-going discussion about CIDP ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy ... tell me about your journey with GBS/CIDP
Support Group: Autoimmune Diseases
Posted: May 29 12:58pm
Hi @jshdma, I don't have CIDP but I also have to be careful walking downhill with...
Hi @jshdma, I don't have CIDP but ... some clues for you. "Motor CIDP ... motor neuron disorder, while sensory CIDP ... 2020" --- The Misdiagnosis of CIDP ... Neuromuscular Notes: Taking the Mis- out of CIDP
Support Group: Autoimmune Diseases
Posted: Apr 27, 2023
I just saw this upcoming webinar from the Foundation for Peripheral Neuropathy that I think might...
might be helpful for members with CIDP ... FPN Webinar: New Horizons in CIDP Therapy ... patient advocate, Bob L., to talk about CIDP ... first-hand from a patient who has had CIDP ... She will also discuss CIDP treatment
@cmstrachota, you may also wish to connect with other members who have experience with CIDP in...
other members who have experience with CIDP ... in this discussion group: - CIDP ( ... /connect.mayoclinic.org/discussion/cidp-chronic-inflammatory-demylinating-polyneuropathy