Hi to all the wonderful folks who keep me encouraged by your courage to keep going.. with no sleep and unrelenting burning pain and cramping I'm wearing mighty thin! Dr. appt. are hard to come by these days my next neuro appt is in Dec! they talked about Botox injections in my calves for cramping anyone heard of this? The bottoms of my feet seem to be firing off missiles with fire power and throwing my balance off as I try to escape the the pain which appears impossible. Thanks for a place to express my frustration.
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I'm feeling a sense of hope because the recent Nobel Prize shows promise for research in neuropathy: Nobel Prize Awarded for Research About Temperature and Touch
David Julius and Ardem Patapoutian were honored for their discoveries about how heat, cold and touch can initiate signals in the nervous system.
Good afternoon @notborntoburn, Although it was nice to see your name today, your post about cramping in your calves leading to feeling defeated was concerning. So, #1 I have not heard about botox used that way. If it works give it a try. Be careful with botox. If you have never used it before, please get a botox test. I was swept out to the ocean while in the Caribbean and saved myself by hanging onto some coral. Those little creatures did a number on me and the dermatologist wanted to try botox. Good thing he did because my body's response was a resounding NO. In fact, at the time, they send images of my skin to other professionals.
So what might work? My life partner has a bad case of the restless leg which frequently leads to the cramping that wakes both of us up and causes a difficult night for him. I suggested he try medical cannabis. He did and it works for him. He doesn't need much…..just a dropper of tincture (2:1 CBD/THC). Do you use marijuana at all? It just may be worth considering.
May you be free of suffering and the causes of suffering.
Thank you! I also had a glimmer of hopefulness in hearing about their research and Nobel Prize award.
Dear @notborntoburn I’m sorry to hear that you are going through this storm. I know it must be very difficult. I find that listening to Joel Osteen, because of his positive messages, help me to stay positive and trust God to heal and praise Him for his supernatural power. Also watching the various pastors on the TBN channel. (Remove all sugar and processed foods. Eat as much as fruits and vegetables as possible.) I’ll be praying for you.
What works for me is magnesium at night and Hyland's has a leg cramp cream with I think is great. I've used it for years.
I have stopped my leg cramps caused originally from chemo with bisglyinate chelate magnesium 2 tablets a day that I bought on Amazon. I got the Healthy Origins brand. Just this morning it stretched when I woke up and realized I didn't have to jump out of bed to try to stop the cramps. I tried regular magnesium but it gave me diarrhea and it didn't help with it when took this one only once a day. You need the two tablets.
@notborntoburn My brother has had back surgery and he walks with a cane. He has had issues for years with his back and legs. He gets neuropathy in his legs and has been known to fall down at times. The other problem he has had is when he goes to sleep at night and he’s just gets ready to fall asleep his feet cramp so bad. He tried many meds that didn’t work. He is married and has two sons. The three of them did a lot of research and presented it to my brother. They told him that marijuana would work for that. At first he was thinking no he didn’t want to do that. His sons both graduated with honors from Wake Forest. His wife is smart with business matters. He does use marijuana. He vapes it before he goes to bed and it helps with the cramps. Before my brother retired he was taking morphine extended release. He weaned off of that because he didn’t want to be on that forever. As I nurse I use to work in Hospice and one thing I learned about pain meds is that what works for one may not work for another. They have their standard meds. Some people can take a 5 in pain others a 2. My brother does vape a small amount before sleep and it helps him a lot.
Magnesium works for me for those awful leg cramps at night! I take two tablets a day of "Doctor's Best High Absorption 100% Chelated Magnesium," though I suspect there are other effective brands as well. I tried cutting back to one tablet per day, but that didn't work, so I'm back to two. The directions say that one can even take 2 tablets twice daily, so that might be required for some people to get the relief they need.
I have legal homegrown marijuana that I toasted and chopped up to use in edibles. I ordered some CBD gummies and I am going to take a gummy with some marijuana and see if I can land on the proper amount of CBD/THC that will make the neuropathy in my feet feel better. They are numb, not painful. I read that the two used together work best for my situation.
For me, legal cannabis works by taking my mind off the pain allowing me to enjoy other things. It just lightens the day. If you take a sativa strain you should actually have more energy and feel a bit happier & if you do an indica strain you may feel more relaxed and have a better night’s sleep. I now do edibles or tinctures that are slower to feel the effects but are cleaner than smoking & the effects last longer. You’ll know your own tolerance but don’t be afraid to do a little more than less – you’ll always bounce back and your mood will benefit.