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Comments (2,128)

After dealing with neurological issues for 13 years, I was just diagnosed with FND by a...

https://connect.mayoclinic.org/comment/248357/

I have sjogren, raynauds, asthma, GERD

Discussion: Functional Neurological Disorder (FND)

Support Group: Brain & Nervous System

Posted: Jun 24, 2019

I was diagnosed with Covid end of February, 2020. I was extremely sick for two months,...

https://connect.mayoclinic.org/comment/1095406/

Sjogren testing was normal.

Discussion: PMR after COVID

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jun 27, 2024

The diagnosis came in the late ‘90’ s when I was filing for the Dow Corning...

https://connect.mayoclinic.org/comment/325520/

and yes, I was also diagnosed with Sjogren

Discussion: Anyone diagnosed with “atypical connective tissue disorder"?”

Support Group: Autoimmune Diseases

Posted: Oct 21, 2020

@lisalucier Lisa Lucier, Connect Moderator My first symptom of sjogren ’s was 23 years ago. One...

https://connect.mayoclinic.org/comment/111308/

Connect Moderator My first symptom of sjogren ... Sjogren’s was the second autoimmune ... I will write more about sjogrens ,my

Discussion: Sjogren’s Syndrome – Introduce yourself and meet others

Support Group: Autoimmune Diseases

Posted: May 5, 2018

I replied on the other tread..I tried Hydroxyzine as well and it just dries me out...

https://connect.mayoclinic.org/comment/1229194/

well and it just dries me out (I have sjogrens

Discussion: Any positive stories about Benzo tapering? I need hope

Support Group: Depression & Anxiety

Posted: Feb 4 9:38am

marpar123, I am going to be tested for secondary Sjogrens soon (blood test). At my early...

https://connect.mayoclinic.org/comment/1231633/

am going to be tested for secondary Sjogrens

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 7 1:53pm

I know this doesn’t answer your question but, have you tried Biotene and avocado oil? You...

https://connect.mayoclinic.org/comment/1231254/

at the stage in my progression of Sjorgren

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 7 6:50am

I have Sjogren's also and am taking IvIg for over a year. I have recently lost...

https://connect.mayoclinic.org/comment/1232183/

I have Sjogren's also and am taking ... Small Fiber) has a family member with Sjogren

Discussion: I have Sjogrens and dryness is progressively getting worse.

Support Group: Autoimmune Diseases

Posted: Feb 8 11:03am

I have had a speckled ANA positive A speckled ANA pattern indicates the presence of antibodies...

https://connect.mayoclinic.org/comment/1244932/

Systemic lupus erythematosus (SLE), Sjögren ... and the test by the eye doctor for Sjogrens

Discussion: Persistent Positive ANA, Now DFS70 – Does This Indicate Recovery?

Support Group: Autoimmune Diseases

Posted: Feb 24 8:05pm

I've had Sjogren's for 30 years and in 2023, I was diagnosed with Extranodal Marginal Zone...

https://connect.mayoclinic.org/comment/1241539/

I've had Sjogren's for 30 years ... So yes, if you have Sjogren's, ... Disease which is also associated with Sjogren

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 20 12:39pm

@SusanEllen66 I was thought to have been diabetic back in 2016 now a few years later...

https://connect.mayoclinic.org/comment/1234101/

armrest full on my recliner ) With Sjögren

Discussion: Can’t seem to stay awake throughout the day!

Support Group: Brain & Nervous System

Posted: Feb 11 12:46am

I have posted alot about my SFN caused by Sjogren's and Its effect on my balance...

https://connect.mayoclinic.org/comment/1235220/

posted alot about my SFN caused by Sjogren

Discussion: Leg Weakness! And how to recover? And success with movement

Support Group: Neuropathy

Posted: Feb 12 11:10am

Hi Do you have sjorgrens?

https://connect.mayoclinic.org/comment/1235449/

Hi Do you have sjorgrens?

Discussion: Low Level Light Therapy - BMS - Any Success

Support Group: Skin Health

Posted: Feb 12 4:43pm

I have had Sjögren’s syndrome for at least 20 years. How did you know you had...

https://connect.mayoclinic.org/comment/1239947/

I have had Sjögren’s syndrome for at

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 18 12:49pm

I ask because I came at it the other way, with negative EMG and then (very)...

https://connect.mayoclinic.org/comment/1241396/

I had Sjogren's Disease (determined ... Some progress on the Sjogren's,

Discussion: Living With Large-Fiber Neuropathy

Support Group: Neuropathy

Posted: Feb 20 10:17am

I can relate to the loss of taste, it takes the joy out of life. It...

https://connect.mayoclinic.org/comment/1249310/

nights sweats are early menopause or Sjögren

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: 13 hours ago

That’s what’s happening to me. The rheumatologist said I have fibromyalgia, but I have every symptom...

https://connect.mayoclinic.org/comment/1249656/

fibromyalgia, but I have every symptom of Sjogren

Discussion: Which autoimmune disease?

Support Group: Eye Conditions

Posted: 7 hours ago

Go see a neuromuscular neurologist get tested by emg/nerve conduction testing peripheral neuropathy along with biopsy...

https://connect.mayoclinic.org/comment/1231462/

Sjogrens I went to ENT had a biopsy ... for sjogrens they remove four glands ... and the glands tested positive for Sjogrens

Discussion: My wife has had neck pain despite having injections and ACDF surgery.

Support Group: Spine Health

Posted: Feb 7 10:06am

You are not alone! I have Erles Danlos, POTS, RA, Sjorgens syndrome, Fibromyalgia, and peripheral neuropathy....

https://connect.mayoclinic.org/comment/1239943/

I have Erles Danlos, POTS, RA, Sjorgens

Discussion: Invisible illness how do you cope?

Support Group: Autoimmune Diseases

Posted: Feb 18 12:46pm

Hello @lorrielynn, Welcome to Connect. I'm sure there are other members that can relate to your...

https://connect.mayoclinic.org/comment/1236228/

. -- Sjögren’s Syndrome: how do you ... /connect.mayoclinic.org/discussion/sjorgens-syndrome

Discussion: Sjögren’s syndrome severe dry mouth with loss of taste. Also dry eyes

Support Group: Autoimmune Diseases

Posted: Feb 13 5:12pm