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129 total results

Comments (112)

Slightly different topic, but I have started having (mild) jerking and twitching in my hands, but...

https://connect.mayoclinic.org/comment/765589/

I think it might be myoclonus, but my

Discussion: Muscle Spams and Neuropathy

Support Group: Neuropathy

Posted: Oct 26, 2022

@bill54321 Hi Bill, I developed Exaggerated Sleep Myoclonus 10 years ago, as a reaction to a...

https://connect.mayoclinic.org/comment/270899/

Bill, I developed Exaggerated Sleep Myoclonus ... Also, there are 8 different types of Myoclonus

Discussion: Periodic Limb Movement Disorder

Support Group: Sleep Health

Posted: Jan 16, 2020

@caprice123. I am newly diagnosed but I've had "it" over a year. I thought it was...

https://connect.mayoclinic.org/comment/182523/

may have a second dx: diaphragmatic myoclonus ... research described my symptoms as d. myoclonus

Discussion: Camptocormia (bent spine syndrome or BSS): Looking for others

Support Group: Spine Health

Posted: Oct 15, 2019

@mikemcbroom I'm sorry to hear about your wife’s episodes of myoclonus. I've had Epilepsy for almost...

https://connect.mayoclinic.org/comment/1050134/

hear about your wife’s episodes of myoclonus ... know there are numerous causes of myoclonus

Discussion: Severe myoclonus for yr when lying down. Epileptic? Diagnosis?

Support Group: Epilepsy & Seizures

Posted: Apr 13, 2024

I’m currently going through this as well. It started out of nowhere. I have a fast...

https://connect.mayoclinic.org/comment/1213542/

I was told it’s called middle ear myoclonus

Discussion: Middle Ear Myoclonus and Neuropathy

Support Group: Ear, Nose & Throat (ENT)

Posted: Jan 15 9:36am

Yes in regards to vibrations and jolts and twitches especially when laying down the other day...

https://connect.mayoclinic.org/comment/790275/

toe, I read about it it’s called “MYOCLONUS

Discussion: Post Covid internal vibrations & hair loss

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 30, 2022

Mine is the same in that if I yawn, stretch, burp or hiccup, it can trigger...

https://connect.mayoclinic.org/comment/811026/

an ENT who knows about Middle Ear Myoclonus

Discussion: Thumping/drumming in one ear

Support Group: Ear, Nose & Throat (ENT)

Posted: Feb 13, 2023

You should see your doctor asap. What I learned in the process of getting my diagnosis...

https://connect.mayoclinic.org/comment/720316/

getting my diagnosis for Middle Ear Myoclonus

Discussion: Thumping/drumming in one ear

Support Group: Ear, Nose & Throat (ENT)

Posted: Jun 23, 2022

My 22 year old son was diagnosed with Lance Adam's syndrome in September 2024 after cardiac...

https://connect.mayoclinic.org/comment/1177891/

He started myoclonus jerking and seizers ... the primary medication treatment for myoclonus

Discussion: Lance-Adams Syndrome aka Chronic Post Hypoxic Myoclonus

Support Group: Brain & Nervous System

Posted: Nov 22, 2024

I also have Middle Ear Myoclonus for a little over 5 years. I read it only...

https://connect.mayoclinic.org/comment/929355/

I also have Middle Ear Myoclonus for

Discussion: Middle Ear Myoclonus and Neuropathy

Support Group: Ear, Nose & Throat (ENT)

Posted: Sep 13, 2023

Hi . Thanks for replying . Well …, he was promoted in his job so trying...

https://connect.mayoclinic.org/comment/1159231/

What did your doctor Said about the myoclonus

Discussion: Benign fasciculation syndrome (BFS)

Support Group: Brain & Nervous System

Posted: Oct 18, 2024

@ @krissyelkins07 I haven't read this entire thread but I didn't think people with PLMD knew...

https://connect.mayoclinic.org/comment/270908/

re not suffering from some type of Myoclonus

Discussion: Periodic Limb Movement Disorder

Support Group: Sleep Health

Posted: Jan 17, 2020

@rjmcb. I've got questions. What testing did you do to get that diagnosis? Is the cause...

https://connect.mayoclinic.org/comment/182525/

have diaphragmatic or respiratory myoclonus

Discussion: Camptocormia (bent spine syndrome or BSS): Looking for others

Support Group: Spine Health

Posted: Oct 17, 2019

Hi @fela0218 . Thanks for asking . His follow up on Monday went well !! Thank...

https://connect.mayoclinic.org/comment/1173097/

involuntary movements that seem to be myoclonus

Discussion: Benign fasciculation syndrome (BFS)

Support Group: Brain & Nervous System

Posted: Nov 13, 2024

Yes please let me know how it goes! I'm scheduling to see another ENT soon. I...

https://connect.mayoclinic.org/comment/807046/

I suspect I may have middle ear myoclonus

Discussion: Thumping/drumming in one ear

Support Group: Ear, Nose & Throat (ENT)

Posted: Feb 6, 2023

Lizzy, so sorry to hear about all the symptoms you are experiencing and wish I could...

https://connect.mayoclinic.org/comment/753745/

I have middle ear myoclonus, but all

Discussion: Middle Ear Myoclonus and Neuropathy

Support Group: Ear, Nose & Throat (ENT)

Posted: Sep 25, 2022

Finally! Someone else like me on here! Yes, I’m 55 and have the same. The myoclonus...

https://connect.mayoclinic.org/comment/1158905/

The myoclonus finally went away after

Discussion: Benign fasciculation syndrome (BFS)

Support Group: Brain & Nervous System

Posted: Oct 18, 2024

I have been having similar vibrations daily for the last 6 months, almost always when I...

https://connect.mayoclinic.org/comment/802135/

It is not sleep myoclonus because it

Discussion: Body vibrations when falling asleep or waking?

Support Group: Sleep Health

Posted: Jan 26, 2023

Look at Myoclonus Dystonia disorder. Like me, you may need another diagnosis. Suggtest EEG and an...

https://connect.mayoclinic.org/comment/270910/

Look at Myoclonus Dystonia disorder.

Discussion: Periodic Limb Movement Disorder

Support Group: Sleep Health

Posted: Feb 10, 2020

I know how you feel. A few months after having my colon removed due to cancer,...

https://connect.mayoclinic.org/comment/1237044/

normal so he diagnosed me with me with Myoclonus

Discussion: Benign fasciculation syndrome (BFS)

Support Group: Brain & Nervous System

Posted: Feb 14 6:33pm