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137 total results

Comments (126)

I was diagnosed with AIH in 1985 at the age of 12. I was originally treated...

https://connect.mayoclinic.org/comment/167590/

antibody-mediated rejection and underwent plasmapheresis

Discussion: Autoimmune hepatitis*

Support Group: Autoimmune Diseases

Posted: May 29, 2019

Hi Martha my name is Darlene, I live in Tampa, FL and I was diagnosed with...

https://connect.mayoclinic.org/comment/49564/

that would help me and she came up to Plasmapheresis

Discussion: Stiff Person Syndrome: Want to connect with others

Support Group: Brain & Nervous System

Posted: Mar 4, 2018

I do and I've had it for about 16 years. it progressed very slowly over the...

https://connect.mayoclinic.org/comment/81500/

for the last 7 months I've had Plasmapheresis

Discussion: Anyone been diagnosed with CIDP? It's very rare

Support Group: Autoimmune Diseases

Posted: May 28, 2018

Hi, Sorry for the delayed response. I hope your husband feels better and that the treatment...

https://connect.mayoclinic.org/comment/987320/

The first treatment was plasmapheresis

Discussion: Has anyone been diagnosed with GFAP

Support Group: Autoimmune Diseases

Posted: Dec 27, 2023

I have a new doctor lined up, but wow, 3 months to get in and then...

https://connect.mayoclinic.org/comment/676479/

opinion to see if an MRI, IVIG, Or plasmapheresis

Discussion: Has anyone had IVIG Infusions for Neuropathy?

Support Group: Neuropathy

Posted: Jan 31, 2022

From what I’ve read there’s a lot of overlap in symptoms reported for long Covid and...

https://connect.mayoclinic.org/comment/701178/

Corticosteroids, plasmapheresis and ... compared to IVIg and (to some extent) plasmapheresis ... anyone received steroid, IVIg and/or plasmapheresis

Discussion: COVID vaccines and neuropathy

Support Group: Neuropathy

Posted: Apr 21, 2022

@roslyn2314 When I look up plasma treatment, it seems it is tied to peripheral neuropathy, not...

https://connect.mayoclinic.org/comment/1135942/

doctors may recommend a procedure called plasmapheresis

Discussion: Has anyone been prescribed plasma exchange for small fiber neuropathy.

Support Group: Neuropathy

Posted: Sep 4, 2024

On March 18, 2017, at 50 years of age, I was diagnosed with vasculitis - GPA....

https://connect.mayoclinic.org/comment/167497/

I had 8 Plasmapheresis, numerous dialysis

Discussion: GPA granulomatosis with polyangiitis

Support Group: Autoimmune Diseases

Posted: Jan 13, 2018

I am 41 and have been on PD for the past 5 years and on the...

https://connect.mayoclinic.org/comment/380846/

I have been reading abt plasmopheresis ... My questions are 1) Is plasmapheresis

Event: Webinar: What Patients and Donors Need to Know About Living-Donor Kidney Transplant

Posted: Apr 14, 2015

Studies show that IVIg may slow the progression of SPS. My neurologist recently published a study...

https://connect.mayoclinic.org/comment/911777/

, doctors may try Rituximab and/or Plasmapheresis

Discussion: Stiff Person Syndrome: Want to connect with others

Support Group: Brain & Nervous System

Posted: Aug 12, 2023

@rramsey @johnbishop...I am doing a little research on this issue of compression socks as people were...

https://connect.mayoclinic.org/comment/92903/

which might be treatable with iVIG or Plasmapheresis

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Oct 5, 2019

@uncledrew Hi Tracy, many things about your experience ring true also with our daughter’s. She also...

https://connect.mayoclinic.org/comment/1061133/

hospitalized for several weeks and given plasmapheresis ... hospitalizations and treatments with the plasmapheresis

Discussion: Anti-Dppx Autoimmune Encephalopathy

Support Group: Autoimmune Diseases

Posted: May 2, 2024

Hi Marita my name is Darlene, I live in Tampa, FL and I was diagnosed with...

https://connect.mayoclinic.org/comment/49565/

that would help me and she came up to Plasmapheresis

Discussion: Stiff Person Syndrome: Want to connect with others

Support Group: Brain & Nervous System

Posted: Mar 4, 2018

I have read these stories with much interest, as my journey overlaps with many of yours....

https://connect.mayoclinic.org/comment/646769/

many of you talk about skin biopsies, plasmapheresis

Discussion: Member Neuropathy Journey Stories: What's Yours?

Support Group: Neuropathy

Posted: Oct 20, 2021

Hey @rwinney! I’ll be saying this 100 times but that’s okay. I truly appreciate your kind...

https://connect.mayoclinic.org/comment/300486/

these tests, I did five treatments of plasmapheresis

Discussion: Axonal Sensorimotor Polyneuropathy: Looking for someone to relate

Support Group: Neuropathy

Posted: Mar 17, 2020

Dear wolfbauer, I did not realize that the problems I experienced prior to my diagnosis (2010)...

https://connect.mayoclinic.org/comment/156982/

I haven't tried plasmapheresis.

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Feb 5, 2019

I am on IVIG right now. Started at a dose of 150 g every 4 weeks....

https://connect.mayoclinic.org/comment/210968/

My doctor is now talking about plasmapheresis

Discussion: Looking to connect with people who have non-diabetic neuropathy

Support Group: Neuropathy

Posted: Apr 5, 2019

@ericvnelson @elained I'm sorry to hear you both are having such a hard time and are...

https://connect.mayoclinic.org/comment/156979/

Have either of you tried IVIG, plasmapheresis

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Feb 4, 2019

Hi @johnbishop , I've worked in pharmacy since I was 16 (31 now) and studied to...

https://connect.mayoclinic.org/comment/201229/

dehydrated, I'm going to start plasmapheresis ... #39;m curious to what extent IVIG, plasmapheresis

Discussion: Small Fiber Neuropathy

Support Group: Neuropathy

Posted: Feb 1, 2019

Hi @gonefishinmt, I'm new to this site & first must say how good it feels to...

https://connect.mayoclinic.org/comment/82973/

Therapeutic Plasma Exchange (TPE) or plasmapheresis

Discussion: Treatment options for Livedoid Vasculopathy (LV)

Support Group: Skin Health

Posted: Feb 4, 2016