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1,156 total results
Comments (1,069)
Jakafi helped immensely with my PV side effects.
https://connect.mayoclinic.org/comment/773849/
Jakafi helped immensely with my PV side
Hi @jerrlin. In your case, you have the JAK2 mutation which caused the PV so it’s...
https://connect.mayoclinic.org/comment/870946/
the JAK2 mutation which caused the PV ... but was diagnosed with secondary PV
@simple27 -- Agree that my anemic hematocrit points AWAY from PV. I wish I could convince...
https://connect.mayoclinic.org/comment/231792/
anemic hematocrit points AWAY from PV ... But, in any case you cannot DIAGNOSE PV ... My EPO levels also point away from PV ... brilliant oncologist diagnosed me with PV
Hello, many people choose not to have the bone marrow test. PV can be diagnosed solely...
https://connect.mayoclinic.org/comment/1156731/
PV can be diagnosed solely from your ... phlebotomies are the only known treatment for PV ... I have PV for almost two years now and
I believe PV can be managed without phlebotomies. I know this as I have had PV...
https://connect.mayoclinic.org/comment/1194508/
I believe PV can be managed without ... I know this as I have had PV since 2018 ... lucky in that I have a very low level PV
I was diagnosed yesterday. My journey begins at PV with secondary MF. Looking for any and...
https://connect.mayoclinic.org/comment/1479260/
My journey begins at PV with secondary
Hi @bharty615, I moved your post to this active discussion about PV. - Polycythemia Vera: Just...
https://connect.mayoclinic.org/comment/956979/
post to this active discussion about PV ... connect with other members living with PV ... to find more discussions related to PV
I do not have ET but I do have PV. Your ET is one of the...
https://connect.mayoclinic.org/comment/776954/
I do not have ET but I do have PV. ... Myeloproliferative Neoplasms, ET, PV ... I just call mine PV for short. ... I was diagnosed with PV after having ... Four years later and this PV has not
Anyone have hair loss when taking Hyderabad for PV?
https://connect.mayoclinic.org/comment/766024/
hair loss when taking Hyderabad for PV
Thank you. Best of luck to you in your PV journey.
https://connect.mayoclinic.org/comment/1167292/
Best of luck to you in your PV journey
Did your wife not receive any treatment for her PV at all?
https://connect.mayoclinic.org/comment/1348319/
not receive any treatment for her PV
@mamsgirl1998 Gosh, I wish my Platelet count was in the 400 range. It's now lowered to...
https://connect.mayoclinic.org/comment/1475318/
the lowest since I was told I have PV
@robmcburney6999, despite the title referring to itching not related to bathing, I think you might find...
https://connect.mayoclinic.org/comment/945897/
others in this related discussion:
- PV ... /connect.mayoclinic.org/discussion/pv-itching-not-after-bathing
I’m diagnosed with PV Polycythemia Vera. The phlebotomies are to lower my hematocrit but I’ve noticed...
https://connect.mayoclinic.org/comment/835194/
I’m diagnosed with PV Polycythemia Vera ... slightly elevated red cells from the PV ... figure dosage/phlebotomies to get the PV
I was just diagnosed... You mention that you have a hematologist and a PV specialist. I...
https://connect.mayoclinic.org/comment/819049/
that you have a hematologist and a PV ... When were you referred to a PV specialist
@jacks90 Hello I am JAK2 + and have PV Taking HU 5X a week. I’m curious...
https://connect.mayoclinic.org/comment/1485233/
jacks90 Hello I am JAK2 + and have PV ... Some PV people don’t get the high platelets
Welcome to Connect, @sanjayd. You’re right, that itching from PV is maddening!! I don’t have PV...
https://connect.mayoclinic.org/comment/893486/
You’re right, that itching from PV is ... I don’t have PV but had elevated hemaglobin ... We have quite a few members with PV ... /connect.mayoclinic.org/discussion/pv-itching-not-after-bathing
I have had pv for 3 years dr did a bone marrow biopsy cause red count...
https://connect.mayoclinic.org/comment/1101574/
I have had pv for 3 years dr did a bone ... searched on line for cure and found that pv
PV with Jak2 v617f and Jak2 exon 12-15 and ASXL1 mutations
https://connect.mayoclinic.org/comment/329376/
PV with Jak2 v617f and Jak2 exon 12-
I get that and am on Hydroxyurea but this is something that PV patients experience sadly.
https://connect.mayoclinic.org/comment/909102/
Hydroxyurea but this is something that PV
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