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109 total results

Comments (99)

Hello @mhr31, Welcome to Connect. The weather affects my neuropathy also but I just have the...

https://connect.mayoclinic.org/comment/806500/

. -- CMT=Charcot Marie Tooth Disease

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Feb 5, 2023

Thanks for your reply @elained . My neurologist diagnosed mine as moderate to severe, but provided...

https://connect.mayoclinic.org/comment/247984/

neurologist, he asked questions related to Charcot-Marie-Tooth

Discussion: Just diagnosed....continue testing for causes

Support Group: Neuropathy

Posted: Feb 20, 2019

Have just been dx with Cavovarus foot deformity, which often results from an imbalance of muscle...

https://connect.mayoclinic.org/comment/70717/

mother, her cousin, and aunt all had Charcot

Discussion: CMT=Charcot Marie Tooth Disease Type 2 Neurological Disorder form of MD

Support Group: Neuropathy

Posted: Feb 5, 2020

A funny thing happened on the way to surgery. Actually, it was during the pre-surgery conference...

https://connect.mayoclinic.org/comment/319799/

Charcot Marie Tooth, (3 Doctors back

Discussion: Tough diagnosis: Anyone else diagnosed with Recruitment?

Support Group: Hearing Loss

Posted: Dec 20, 2020

@lydiamay1 I'm so sorry you are so young and caring for a child through such worry...

https://connect.mayoclinic.org/comment/275576/

The other thing to look into is Charcot

Discussion: Unexplained Severe weakness, losing hope

Support Group: Brain & Nervous System

Posted: Oct 16, 2019

Hi @grandmar -- Ronnie. My husband John has dealt with Sensory Periphery Neuropathy for 20 years....

https://connect.mayoclinic.org/comment/157253/

neuropathy is due to a genetic disease -- Charcot-Marie-Tooth

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: May 12, 2019

I am a 73-year-old female with a recent diagnosis of MAC along with a history of...

https://connect.mayoclinic.org/comment/62373/

neuromuscular disease called CMT (Charcot

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jul 7, 2017

Hey all! Dad Root from Arvada, Colorado here. Five Grandkids and counting. Like my Dad before...

https://connect.mayoclinic.org/comment/1158585/

My symptoms seemed congruent with Charcot-Marie-Tooth

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Oct 17, 2024

I have severe PN in both feet up my legs to just below my knees. I...

https://connect.mayoclinic.org/comment/896169/

I also have Charcot feet adding to my

Discussion: Have you tried DRG dorsal root ganglion therapy for PN?

Support Group: Neuropathy

Posted: Jul 15, 2023

Hello Colleen (@colleenyoung), John (@johnbishop), and all! My husband John has Peripheral Neuropathy. Initially (approx. 20...

https://connect.mayoclinic.org/comment/156562/

years ago), it was diagnosed as "Charcot-Marie-Tooth

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Aug 10, 2018

I'm 38 going into a two year relationship with a 50 year old man. For the...

https://connect.mayoclinic.org/comment/1286303/

diabetic, has been hospitalized for charcot

Discussion: Sexless Marriage (when one partner is ill)

Support Group: Men's Health

Posted: Apr 20 5:55pm

Hi Sheila, One possibility that could explain peripheral neuropathy in legs/feet and eyes could be a...

https://connect.mayoclinic.org/comment/844763/

neurologist preferably one listed on the Charcot-Marie-Tooth

Discussion: Nerve damage and pain that isn’t neuropathy but feels like it.

Support Group: Neuropathy

Posted: Apr 17, 2023

Sept 17th meeting for the 20 Year Celebration for the MN Neuropathy Association (www.neuropathy-mn.org). If others...

https://connect.mayoclinic.org/comment/91617/

Minnesota's multidisciplinary ALS and Charcot-Marie-Tooth ... and other motor neuron disorders, Charcot-Marie-Tooth

Discussion: Anyone here dealing with peripheral neuropathy?

Support Group: Neuropathy

Posted: Aug 31, 2016

My neurologist thought I had erythromelalgia until I pointed out that my SCN9A gene is normal....

https://connect.mayoclinic.org/comment/1113474/

;fit the profile" of any known Charcot-Marie-Syndrome

Discussion: Idiopathic Neuropathy started with Erythromelalgia

Support Group: Neuropathy

Posted: Jul 28, 2024

You need to get a neuromuscular neurologist who will order DNA testing, preferably whole genome sequencing...

https://connect.mayoclinic.org/comment/802431/

Also CMTA.org (Charcot-Marie-Tooth Association

Discussion: Frustrated and tired, every test came back normal

Support Group: Neuropathy

Posted: Jan 27, 2023

Hi, I am new to this support blog due to my 2nd cancer I just was...

https://connect.mayoclinic.org/comment/874873/

condition of severe neuropathy and Charcot

Discussion: How do you cope with chronic pain?

Support Group: Chronic Pain

Posted: Jun 8, 2023

Good morning Celia, Thank you so much for your response and information and all of the...

https://connect.mayoclinic.org/comment/1071448/

serious neuromuscular disorder called charcot

Discussion: 3 1/2 years of chronic pain~ Still looking for solutions~please help

Support Group: Polymyalgia Rheumatica (PMR)

Posted: May 20, 2024

Hello all! My husband John received the diagnosis of Polymyalgia Rheurmatica last week. I researched every...

https://connect.mayoclinic.org/comment/211379/

cause was first thought to be "Charcot-Marie-Tooth

Discussion: New Diagnosis of Polymyalgia Rheumatica (Husband)

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 9, 2018

@ronoejello1, @SusanEllen66 - I would be interested to hear how your appointment went with Dr. David...

https://connect.mayoclinic.org/comment/921906/

trialbulletin.com/lib/entry/ct-02260388 • CMT – Charcot-Marie-Tooth

Discussion: Living with Neuropathy - Welcome to the group

Support Group: Neuropathy

Posted: Aug 31, 2023

@jula73, Jula .. I am assuming that is your first name .. PLEASE correct me if...

https://connect.mayoclinic.org/comment/62366/

neuromuscular disease called CMT (Charcot

Discussion: (MAC/MAI) Mycobacterium Avium Complex Pulmonary Disease: Join us

Support Group: MAC & Bronchiectasis

Posted: Jul 7, 2017