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832 total results
Comments (762)
Hello @carolynaune. Here is a discussion I think you may enjoy looking at, https://connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa/. It has...
https://connect.mayoclinic.org/comment/196640/
connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa ... It has members discussing both amyloidosis
@cgerwig66 Welcome to Mayo Clinic Connect. I understand you were recently diagnosed with MGUS, and are...
https://connect.mayoclinic.org/comment/842868/
and are now concerned you may have amyloidosis ... what Mayo Clinic has to say about amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
@brittalisse Hi, friend. Sounds as if your mother has the same stuff I have. We are...
https://connect.mayoclinic.org/comment/188994/
testing for some form of Light Chain Amyloidosis ... , probably Gelsolin, an Amyloidosis ... My lungs, although crowded with Amyloidosis ... weight loss is part of it for many Amyloidosis ... Also search on Mayo for Amyloidosis
Thanks for the reminder about videos, @oldkarl! There's a video with Martha Grogan, MD, and hematologist...
https://connect.mayoclinic.org/comment/104698/
Jill, please see:
Video Q&A Amyloidosis ... https://connect.mayoclinic.org/webinar/amyloidosis-what-patients-need-to-know
Hi @flcrakr1, welcome. You'll notice that I moved your message to this existing discussion about amyloidosis....
https://connect.mayoclinic.org/comment/623980/
to this existing discussion about amyloidosis ... , were you recently diagnoses with amyloidosis
I would like to discuss your condition with you if you'd like. Have peripheral neuropathy as...
https://connect.mayoclinic.org/comment/104723/
Have peripheral neuropathy as well as amyloidosis ... Doctors are not familiar with Amyloidosis
Lori, switched the loading sequence but that caused a problem. It talks about AL Amyloidosis but...
https://connect.mayoclinic.org/comment/738758/
It talks about AL Amyloidosis but I ... to think I might have the hATTA-CM Amyloidosis ... which is the Hereditary Amyloidosis ... AL means light chain Amyloidosis. ... Here’s the Enigma, AL means the Amyloidosis
Amyloidosis can be tested with a fat pad biopsy. They take a small bit of abdominal...
https://connect.mayoclinic.org/comment/1378108/
Amyloidosis can be tested with a fat ... on a 1/24 test and because kidney amyloidosis ... had a kidney biopsy and it showed no amyloidosis
Hello Oldkari, Thank you very much for taking time to give me this information. I will...
https://connect.mayoclinic.org/comment/179553/
with my doctor about this condition (Amyloidosis ... ), but i have a question : does Amyloidosis
Fat pad biopsies may be done to look for Amyloidosis - not very definitive or accurate
https://connect.mayoclinic.org/comment/754346/
pad biopsies may be done to look for Amyloidosis
Lupus is a mutation of mis-folded protein, otherwise known as amyloidosis. My sister has it.
https://connect.mayoclinic.org/comment/149850/
mis-folded protein, otherwise known as amyloidosis
Columbia-Pres in NYC and Boston Mass. are two Amyloidosis centers in the NE
https://connect.mayoclinic.org/comment/1062374/
in NYC and Boston Mass. are two
Amyloidosis
I am working through the dX snail route toward a diagnosis of Amyloidosis. I have written...
https://connect.mayoclinic.org/comment/377263/
snail route toward a diagnosis of Amyloidosis ... built around your staff's book on "Amyloidosis
Our experience with gi amyloidosis was different. That said you may want to suggest that a...
https://connect.mayoclinic.org/comment/1174177/
Our experience with gi amyloidosis was ... Congo red the further work up for amyloidosis
A bit over 20 years ago, I called a leading doc in that amyloidosis clinic at...
https://connect.mayoclinic.org/comment/1024092/
ago, I called a leading doc in that amyloidosis ... doc had underestimated his EF and amyloidosis
I had a diagnosis of amyloidosis this year after a bilateral carpal tunnel surgery biopsy done...
https://connect.mayoclinic.org/comment/1323748/
I had a diagnosis of amyloidosis this ... I was referred to a amyloidosis specialist ... back positive for Attr “wild type” amyloidosis ... Chang that my amyloidosis was caught
luckyme54216 @luckyme54216, I want to welcome you to Connect. I can understand why you have so...
https://connect.mayoclinic.org/comment/88312/
I don't know anything about AL Amyloidosis ... I also read that Amyloidosis is often ... protein disorders of the blood, such as amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
Have you tried University of Pennsylvania Hospital? They run clinical trials for some types of amyloidosis....
https://connect.mayoclinic.org/comment/381222/
clinical trials for some types of amyloidosis ... trial at U Penn for Wild Type Cardiac Amyloidosis
Consider getting an abdominal fat pad biopsy (assuming they didn't take that for the carpal tunnel...
https://connect.mayoclinic.org/comment/1323464/
I don't have amyloidosis, but was ... my.clevelandclinic.org/health/diseases/23398-amyloidosis ... /139/19/2918/476883/How-I-treat-AL-amyloidosis
Hello @gala75, Welcome to Connect. I know it's difficult to be in so much pain and...
https://connect.mayoclinic.org/comment/768054/
@oldkarl has discussed amyloidosis in ... Hereditary ATTR Amyloidosis Testing ... www.hattrguide.com/diagnosing-hattr-amyloidosis ... /
Amyloidosis Foundation
— http: ... //amyloidosis.org/facts/al/
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