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832 total results
Comments (762)
@cgerwig66 Welcome to Mayo Clinic Connect. I understand you were recently diagnosed with MGUS, and are...
and are now concerned you may have amyloidosis ... what Mayo Clinic has to say about amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
Posted: Apr 13, 2023
@brittalisse Hi, friend. Sounds as if your mother has the same stuff I have. We are...
testing for some form of Light Chain Amyloidosis ... , probably Gelsolin, an Amyloidosis ... My lungs, although crowded with Amyloidosis ... weight loss is part of it for many Amyloidosis ... Also search on Mayo for Amyloidosis
Thanks for the reminder about videos, @oldkarl! There's a video with Martha Grogan, MD, and hematologist...
Jill, please see: Video Q&A Amyloidosis ... https://connect.mayoclinic.org/webinar/amyloidosis-what-patients-need-to-know
Lori, switched the loading sequence but that caused a problem. It talks about AL Amyloidosis but...
It talks about AL Amyloidosis but I ... to think I might have the hATTA-CM Amyloidosis ... which is the Hereditary Amyloidosis ... AL means light chain Amyloidosis. ... Here’s the Enigma, AL means the Amyloidosis
Posted: Aug 18, 2022
Amyloidosis can be tested with a fat pad biopsy. They take a small bit of abdominal...
Amyloidosis can be tested with a fat ... on a 1/24 test and because kidney amyloidosis ... had a kidney biopsy and it showed no amyloidosis
Posted: Aug 24 10:25am
I am working through the dX snail route toward a diagnosis of Amyloidosis. I have written...
snail route toward a diagnosis of Amyloidosis ... built around your staff's book on "Amyloidosis
Posted: Aug 5, 2017
A bit over 20 years ago, I called a leading doc in that amyloidosis clinic at...
ago, I called a leading doc in that amyloidosis ... doc had underestimated his EF and amyloidosis
Support Group: MAC & Bronchiectasis
Posted: Feb 28, 2024
I had a diagnosis of amyloidosis this year after a bilateral carpal tunnel surgery biopsy done...
I had a diagnosis of amyloidosis this ... I was referred to a amyloidosis specialist ... back positive for Attr “wild type” amyloidosis ... Chang that my amyloidosis was caught
Support Group: Autoimmune Diseases
Posted: Jun 9 1:40pm
luckyme54216 @luckyme54216, I want to welcome you to Connect. I can understand why you have so...
I don't know anything about AL Amyloidosis ... I also read that Amyloidosis is often ... protein disorders of the blood, such as amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
Posted: Feb 21, 2019
Consider getting an abdominal fat pad biopsy (assuming they didn't take that for the carpal tunnel...
I don't have amyloidosis, but was ... my.clevelandclinic.org/health/diseases/23398-amyloidosis ... /139/19/2918/476883/How-I-treat-AL-amyloidosis
Support Group: Autoimmune Diseases
Posted: Jun 9 8:25am
Hello @gala75, Welcome to Connect. I know it's difficult to be in so much pain and...
@oldkarl has discussed amyloidosis in ... Hereditary ATTR Amyloidosis Testing ... www.hattrguide.com/diagnosing-hattr-amyloidosis ... / Amyloidosis Foundation — http: ... //amyloidosis.org/facts/al/ Diagnosis
Support Group: Autoimmune Diseases
Posted: Nov 1, 2022