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902 total results
Comments (821)
Hi Benjamin Hi and welcome to connect, I myself had one of the general conditions that...
https://connect.mayoclinic.org/comment/873897/
The 2 may be related only that amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis ... Have you been Diagnosed with Amyloidosis
Discussion: Anyone have input on living with symptoms from cardiomyopathy?
Support Group: Heart & Blood Health
Posted: Jun 6, 2023
@cemeterygal01 Welcome to Mayo Clinic Connect! Having received a new diagnosis can sure be unsettling, definitely....
https://connect.mayoclinic.org/comment/847766/
Multiple myeloma and amyloidosis are ... multiple-myeloma/multiple-myeloma-with-amyloidosis ... /article/138/17/1514/477397/Why-is-amyloidosis-not-multiple-myeloma
Discussion: Diagnosed with both multiple myeloma and amyloidosis: Anyone else?
Support Group: Blood Cancers & Disorders
Posted: Apr 22, 2023
Hi @jenrico, Welcome to Connect. We hosted a webinar last June called "Amyloidosis – What Patients...
https://connect.mayoclinic.org/comment/88299/
hosted a webinar last June called "Amyloidosis ... /connect.mayoclinic.org/discussion/amyloidosis-what-patients-need-to-know ... Kapoor, MD, provided an overview of amyloidosis ... mvpdda and @tmousetis who also have AL amyloidosis
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Mar 13, 2016
Welcome @mimi4968, I moved your question about new treatments for AL amyloidosis to this existing discussion:...
https://connect.mayoclinic.org/comment/1067446/
question about new treatments for AL amyloidosis ... discussion: ~ Recently diagnosed with AL Amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis ... search=Amyloidosis AL (primary) amyloidosis
Discussion: Recently diagnosed with AL Amyloidosis: Any advice?
Support Group: Blood Cancers & Disorders
Posted: May 13, 2024
Welcome, @victorino, to help you connect with other members like @vmarra @jan44 @jebcyn and others, I...
https://connect.mayoclinic.org/comment/1066152/
discussion: - Recently diagnosed with AL Amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis ... search=Amyloidosis Congratulations
Discussion: Recently diagnosed with AL Amyloidosis: Any advice?
Support Group: Blood Cancers & Disorders
Posted: May 11, 2024
Hi, @larryl - I'd like to add my welcome to Mayo Clinic Connect. Since you mentioned...
https://connect.mayoclinic.org/comment/92594/
Since you mentioned an interest in amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis
Discussion: Anyone here dealing with peripheral neuropathy?
Support Group: Neuropathy
Posted: Jan 4, 2019
@evaxmas, welcome to Connect. You may notice I combined your discussion with an existing one titled,...
https://connect.mayoclinic.org/comment/88325/
one titled, "diagnosed with AL amyloidosis ... posted about facing the diagnosis of amyloidosis ... the following discussions on both AL amyloidosis ... connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Mar 19, 2019
@rhunt47, I'm tagging a few members who have experience with cardiac amyloidosis like @mookiencoco @judithh580 @naiviv...
https://connect.mayoclinic.org/comment/1478473/
members who have experience with cardiac amyloidosis ... - Successful treatment of cardiac amyloidosis ... newsfeed-post/successful-treatment-of-cardiac-amyloidosis-depends-on-early-diagnosis
Discussion: Cardiac Amyloidosis Anyone else diagnosed with this disease?
Support Group: Heart & Blood Health
Posted: Jan 9 8:22pm
Lori, switched the loading sequence but that caused a problem. It talks about AL Amyloidosis but...
https://connect.mayoclinic.org/comment/738758/
It talks about AL Amyloidosis but I ... to think I might have the hATTA-CM Amyloidosis ... which is the Hereditary Amyloidosis ... AL means light chain Amyloidosis. ... Here’s the Enigma, AL means the Amyloidosis
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Aug 18, 2022
@cgerwig66 Welcome to Mayo Clinic Connect. I understand you were recently diagnosed with MGUS, and are...
https://connect.mayoclinic.org/comment/842868/
and are now concerned you may have amyloidosis ... what Mayo Clinic has to say about amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
Discussion: Amyloidosis symptoms, negative fat pad biopsy?
Support Group: Blood Cancers & Disorders
Posted: Apr 13, 2023
@brittalisse Hi, friend. Sounds as if your mother has the same stuff I have. We are...
https://connect.mayoclinic.org/comment/188994/
testing for some form of Light Chain Amyloidosis ... , probably Gelsolin, an Amyloidosis ... My lungs, although crowded with Amyloidosis ... weight loss is part of it for many Amyloidosis ... Also search on Mayo for Amyloidosis
Discussion: Difficulty Breathing & Autonomic Dysfunction w/ PD & Congestive Heart
Support Group: Parkinson's Disease
Posted: Mar 7, 2018
Thanks for the reminder about videos, @oldkarl! There's a video with Martha Grogan, MD, and hematologist...
https://connect.mayoclinic.org/comment/104698/
Jill, please see: Video Q&A Amyloidosis ... https://connect.mayoclinic.org/webinar/amyloidosis-what-patients-need-to-know
Discussion: Current diagnosis is Amyloidosis and multiple myeloma
Support Group: Blood Cancers & Disorders
Posted: Jun 24, 2017