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Comments (776)
Thanks for the reminder about videos, @oldkarl! There's a video with Martha Grogan, MD, and hematologist...
https://connect.mayoclinic.org/comment/104698/
Jill, please see:
Video Q&A Amyloidosis ... https://connect.mayoclinic.org/webinar/amyloidosis-what-patients-need-to-know
thank you Jackie but the low blood pressure is caused by his Amyloidosis
https://connect.mayoclinic.org/comment/213104/
low blood pressure is caused by his Amyloidosis
There are some great videos by cardiologists at Mayo that explain cardiac amyloidosis.
https://connect.mayoclinic.org/comment/173895/
cardiologists at Mayo that explain cardiac amyloidosis
I only have two. Amyloidosis and smoldering multiple myeloma.
https://connect.mayoclinic.org/comment/655975/
Amyloidosis and smoldering multiple
@evaxmas, welcome to Connect. You may notice I combined your discussion with an existing one titled,...
https://connect.mayoclinic.org/comment/88325/
one titled, "diagnosed with AL amyloidosis ... posted about facing the diagnosis of amyloidosis ... the following discussions on both AL amyloidosis ... connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa
@brittalisse Hi, friend. Sounds as if your mother has the same stuff I have. We are...
https://connect.mayoclinic.org/comment/188994/
testing for some form of Light Chain Amyloidosis ... , probably Gelsolin, an Amyloidosis ... My lungs, although crowded with Amyloidosis ... weight loss is part of it for many Amyloidosis ... Also search on Mayo for Amyloidosis
Hello @carolynaune. Here is a discussion I think you may enjoy looking at, https://connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa/. It has...
https://connect.mayoclinic.org/comment/196640/
connect.mayoclinic.org/discussion/treatment-for-amyloidosis-and-multiple-mylemoa ... It has members discussing both amyloidosis
Lupus is a mutation of mis-folded protein, otherwise known as amyloidosis. My sister has it.
https://connect.mayoclinic.org/comment/149850/
mis-folded protein, otherwise known as amyloidosis
Hi @flcrakr1, welcome. You'll notice that I moved your message to this existing discussion about amyloidosis....
https://connect.mayoclinic.org/comment/623980/
to this existing discussion about amyloidosis ... , were you recently diagnoses with amyloidosis
I would like to discuss your condition with you if you'd like. Have peripheral neuropathy as...
https://connect.mayoclinic.org/comment/104723/
Have peripheral neuropathy as well as amyloidosis ... Doctors are not familiar with Amyloidosis
Lori, switched the loading sequence but that caused a problem. It talks about AL Amyloidosis but...
https://connect.mayoclinic.org/comment/738758/
It talks about AL Amyloidosis but I ... to think I might have the hATTA-CM Amyloidosis ... which is the Hereditary Amyloidosis ... AL means light chain Amyloidosis. ... Here’s the Enigma, AL means the Amyloidosis
Hello Oldkari, Thank you very much for taking time to give me this information. I will...
https://connect.mayoclinic.org/comment/179553/
with my doctor about this condition (Amyloidosis ... ), but i have a question : does Amyloidosis
I am working through the dX snail route toward a diagnosis of Amyloidosis. I have written...
https://connect.mayoclinic.org/comment/377263/
snail route toward a diagnosis of Amyloidosis ... built around your staff's book on "Amyloidosis
Fat pad biopsies may be done to look for Amyloidosis - not very definitive or accurate
https://connect.mayoclinic.org/comment/754346/
pad biopsies may be done to look for Amyloidosis
For individuals who are immunocompromised and also have cardiac amyloidosis is this drug contraindicated due to...
https://connect.mayoclinic.org/comment/673967/
immunocompromised and also have cardiac amyloidosis
Sounds like some form of Amyloidosis to me, perhaps Gelsolin. That is what I went through.
https://connect.mayoclinic.org/comment/334485/
Sounds like some form of Amyloidosis
Our experience with gi amyloidosis was different. That said you may want to suggest that a...
https://connect.mayoclinic.org/comment/1174177/
Our experience with gi amyloidosis was ... Congo red the further work up for amyloidosis
A bit over 20 years ago, I called a leading doc in that amyloidosis clinic at...
https://connect.mayoclinic.org/comment/1024092/
ago, I called a leading doc in that amyloidosis ... doc had underestimated his EF and amyloidosis
Columbia-Pres in NYC and Boston Mass. are two Amyloidosis centers in the NE
https://connect.mayoclinic.org/comment/1062374/
in NYC and Boston Mass. are two
Amyloidosis
I'm tagging @robertreidrx @jam5 and others who have experience with Wild-type ATTR Amyloidosis (ATTRwt) to join...
https://connect.mayoclinic.org/comment/1265110/
have experience with Wild-type ATTR Amyloidosis
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