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Comments (768)
@tayleebuzz Hello and welcome to Mayo Clinic Connect. This is a caring community where members share...
https://connect.mayoclinic.org/comment/593973/
sorry your dad is dealing with AL Amyloidosis ... Has your dad’s specific type of Amyloidosis ... the Connect community regarding AL Amyloidosis ... > Diagnosed with AL Amyloidosis. ... ; Mayo Clinic website regarding AL Amyloidosis
Discussion: AL Amyloidosis: Where were you treated?
Support Group: Blood Cancers & Disorders
Posted: Apr 13, 2021
Lori, switched the loading sequence but that caused a problem. It talks about AL Amyloidosis but...
https://connect.mayoclinic.org/comment/738758/
It talks about AL Amyloidosis but I ... to think I might have the hATTA-CM Amyloidosis ... which is the Hereditary Amyloidosis ... AL means light chain Amyloidosis. ... Here’s the Enigma, AL means the Amyloidosis
Discussion: Does anyone else have MGUS?
Support Group: Blood Cancers & Disorders
Posted: Aug 18, 2022
Hi, @larryl - I'd like to add my welcome to Mayo Clinic Connect. Since you mentioned...
https://connect.mayoclinic.org/comment/92594/
Since you mentioned an interest in amyloidosis ... connect.mayoclinic.org/discussion/al-amyloidosis
Discussion: Anyone here dealing with peripheral neuropathy?
Support Group: Neuropathy
Posted: Jan 4, 2019
@cgerwig66 Welcome to Mayo Clinic Connect. I understand you were recently diagnosed with MGUS, and are...
https://connect.mayoclinic.org/comment/842868/
and are now concerned you may have amyloidosis ... what Mayo Clinic has to say about amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
Discussion: Amyloidosis symptoms, negative fat pad biopsy?
Support Group: Blood Cancers & Disorders
Posted: Apr 13, 2023
@brittalisse Hi, friend. Sounds as if your mother has the same stuff I have. We are...
https://connect.mayoclinic.org/comment/188994/
testing for some form of Light Chain Amyloidosis ... , probably Gelsolin, an Amyloidosis ... My lungs, although crowded with Amyloidosis ... weight loss is part of it for many Amyloidosis ... Also search on Mayo for Amyloidosis
Discussion: Difficulty Breathing & Autonomic Dysfunction w/ PD & Congestive Heart
Support Group: Parkinson's Disease
Posted: Mar 7, 2018
A bit over 20 years ago, I called a leading doc in that amyloidosis clinic at...
https://connect.mayoclinic.org/comment/1024092/
ago, I called a leading doc in that amyloidosis ... doc had underestimated his EF and amyloidosis
Discussion: Newly dx with stiff heart
Support Group: MAC & Bronchiectasis
Posted: Feb 28, 2024
luckyme54216 @luckyme54216, I want to welcome you to Connect. I can understand why you have so...
https://connect.mayoclinic.org/comment/88312/
I don't know anything about AL Amyloidosis ... I also read that Amyloidosis is often ... protein disorders of the blood, such as amyloidosis ... www.mayoclinic.org/diseases-conditions/amyloidosis
Discussion: Diagnosed with AL Amyloidosis. What can I expect?
Support Group: Blood Cancers & Disorders
Posted: Feb 21, 2019
Amyloidosis can be tested with a fat pad biopsy. They take a small bit of abdominal...
https://connect.mayoclinic.org/comment/1378108/
Amyloidosis can be tested with a fat ... on a 1/24 test and because kidney amyloidosis ... had a kidney biopsy and it showed no amyloidosis
Discussion: Testing for Amyloids with MGUS
Support Group: Blood Cancers & Disorders
Posted: Aug 24 10:25am
@colleenyoung Colleen, I am new to this form and I am being treated for Amyloidosis with...
https://connect.mayoclinic.org/comment/1041672/
this form and I am being treated for Amyloidosis ... love to connect with others who have Amyloidosis
Discussion: Positive test results for amyloids
Support Group: Blood Cancers & Disorders
Posted: Mar 28, 2024