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1,156 total results
Comments (1,069)
@lindakay55 Hello! I was diagnosed with PV/JAK2 about five years ago. I had my regular soot...
https://connect.mayoclinic.org/comment/1463627/
I was diagnosed with PV/JAK2 about five ... scared and then I started reading up on PV ... I love this forum because PV is rare
Discussion: Polycythemia Vera: Just been diagnosed
Support Group: Blood Cancers & Disorders
Posted: Dec 18, 2025
Ive just been diagnosed with the JK2 gene mutation a few months ago. I'm 75 ....
https://connect.mayoclinic.org/comment/836250/
I had never heard of PV and after reading ... Dr.s have never had a pt with the PV ... they have specialist who deal with PV ... diagnose however my experience is PV
Discussion: Blood Cancer - JAK2 - Autoimmune- Confusion
Support Group: Blood Cancers & Disorders
Posted: Apr 2, 2023
I’d like to share my story, tho this may be a bit lengthy; I hope you...
https://connect.mayoclinic.org/comment/1416063/
I was diagnosed with PV around 5 years ... , that in addition to the PV, that I ... recorded cases of people having both PV ... aggressive & dangerous form of PV
Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?
Support Group: Blood Cancers & Disorders
Posted: Oct 15, 2025
I was diagnosed with PV about five years ago just after moving to another state. I...
https://connect.mayoclinic.org/comment/1305643/
I was diagnosed with PV about five years ... , as much on my age as I do on the PV ... Maybe it’s the PV/HU? ... results but I suppose it could be the PV
Discussion: Getting nowhere with current Hematologist
Support Group: Blood Cancers & Disorders
Posted: May 16, 2025
Hello. I asked my hematologist when HU was first prescribed when I should take it and...
https://connect.mayoclinic.org/comment/1302128/
organized when I got diagnosed with PV ... word and it wasn’t until I googled PV ... all the maladies that can afflict us PV ... think of, or truth be told know about, PV
Discussion: Is Essential Thrombocythemia a blood disease or cancer?
Support Group: Blood Cancers & Disorders
Posted: May 11, 2025