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1,204 total results

Comments (1,114)

@bluebird43 Hello. I too am 78 years Old. I started taking 500 mg HU daily after...

https://connect.mayoclinic.org/comment/1502392/

HU (Gout diagnosed at same time as PV

Discussion: Any suggestions on what time of day is best for taking Hydroxyurea?

Support Group: Blood Cancers & Disorders

Posted: Feb 10 10:10am

As I stated in my post, I thought there was something wrong with my brain due...

https://connect.mayoclinic.org/comment/812957/

that followed got me the diagnosis of PV

Discussion: Your tips as I prepare for first phlebotomy

Support Group: Blood Cancers & Disorders

Posted: Feb 17, 2023

Hello Jules, I was diagnosed with PV this past September. I am a high school science...

https://connect.mayoclinic.org/comment/810183/

Hello Jules, I was diagnosed with PV

Discussion: Polycythemia Vera: Just been diagnosed

Support Group: Blood Cancers & Disorders

Posted: Feb 12, 2023

Omg the nights sweats are killing me! I’m in the middle of menopause and taking HU...

https://connect.mayoclinic.org/comment/1038082/

middle of menopause and taking HU for PV

Discussion: Started Hydroxyurea: How long to see decrease in counts?

Support Group: Blood Cancers & Disorders

Posted: Mar 22, 2024

When I was diagnosed with ET in 2018 I saw on the MPNRF website that our...

https://connect.mayoclinic.org/comment/194351/

went to the site and now it just says PV

Discussion: JAK2 Mutation - Effects and Questions

Support Group: Blood Cancers & Disorders

Posted: Oct 21, 2019

If you continue to have monthly phlebotomies, you may want to ask your Dr if they...

https://connect.mayoclinic.org/comment/1068716/

less than monthly phlebotomies for my PV

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 16, 2024

I never even looked it up until now! I knew I could n’t donate due to...

https://connect.mayoclinic.org/comment/851571/

I am aware that PV is considered a blood

Discussion: Blood Donor: Is it safe to donate blood if you have a blood condition?

Support Group: Blood Cancers & Disorders

Posted: Apr 29, 2023

Once they get the meds at the correct dosage to keep her numbers down, usually phlebotomies...

https://connect.mayoclinic.org/comment/1193917/

but I haven’t heard of anyone with PV

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2024

I’ve had ET for over 30 years now and have done quite well just on hydroxyurea....

https://connect.mayoclinic.org/comment/1321109/

tried this for their ET or potential PV

Discussion: Essential Thrombocythemia treatment with Besremi

Support Group: Blood Cancers & Disorders

Posted: Jun 5, 2025

I’m 71 & now 28 mths PV diagnosed… I’ve been in constant (4wks now) DISCOMFORT (pain)...

https://connect.mayoclinic.org/comment/737466/

I’m 71 & now 28 mths PV diagnosed

Discussion: Polycythemia vera (PV): Does altitude matter?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2022

@dkennedy6 https://connect.mayoclinic.org/comment/1430065/ Her is the link I referred to in my reply... Here is what AI...

https://connect.mayoclinic.org/comment/1471613/

AI Overview Beta-Alanine For PV Related ... and those with polycythemia vera (PV

Discussion: Showering with Sjogren’s

Support Group: Autoimmune Diseases

Posted: Dec 31, 2025

I am 59, male, oficially diagnosed with PV w/Jak2 November 2024. Phlebotomies every week until I...

https://connect.mayoclinic.org/comment/1464522/

59, male, oficially diagnosed with PV ... It appears that PV really can effect

Discussion: What are most common side effects when starting HU (Hydroxyurea)?

Support Group: Blood Cancers & Disorders

Posted: Dec 20, 2025

Diagnosed with PV a little over a year and a half ago... I am going to...

https://connect.mayoclinic.org/comment/787252/

Diagnosed with PV a little over a year

Discussion: Polycythemia Vera: Is there anything I can do for fatigue at home?

Support Group: Blood Cancers & Disorders

Posted: Dec 21, 2022

Interesting, since that's exactly what happened after I started Jakafi. My platelets doubled in one week...

https://connect.mayoclinic.org/comment/1123781/

minimal side effects for me, though my PV

Discussion: What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV)?

Support Group: Blood Cancers & Disorders

Posted: Aug 14, 2024

I am on hydroxyurea 1000 a day and blood thinners. I have had pv for about...

https://connect.mayoclinic.org/comment/869796/

I have had pv for about a year and still ... tests.It may be the hydroxyurea or PV.but

Discussion: PV and fatigue

Support Group: Blood Cancers & Disorders

Posted: May 31, 2023

Most of us seem to have been blind-sided with a PV diagnosis… I’m willing to bet...

https://connect.mayoclinic.org/comment/828826/

seem to have been blind-sided with a PV

Discussion: Hydroxyurea side effects lessen over time?

Support Group: Blood Cancers & Disorders

Posted: Mar 20, 2023

I take Hydroxyurea for PV. My platelets vary monthly! Anywhere from 390to almost 500. I’m 58...

https://connect.mayoclinic.org/comment/1276088/

I take Hydroxyurea for PV.

Discussion: My platelet count has increased after a year on Hydroxyurea (HU)

Support Group: Blood Cancers & Disorders

Posted: Apr 7, 2025

@lisbob40 I was diagnosed with PV In 2021, but probably had it for a lot longer....

https://connect.mayoclinic.org/comment/1419888/

@lisbob40 I was diagnosed with PV In

Discussion: My mom has Polycythemia Vera: Can PV be managed without phlebotomies?

Support Group: Blood Cancers & Disorders

Posted: Oct 20, 2025

@trillium, yes I would call the appointment line in Phoenix again and explain the situation regarding...

https://connect.mayoclinic.org/comment/336439/

The most common treatment for PV is

Discussion: JAK2 negative with high platelets

Support Group: Heart & Blood Health

Posted: Mar 6, 2021

I too spoke with my Hematologist and again asked about the sun mainly for the preferred...

https://connect.mayoclinic.org/comment/1077579/

dermatologist every 6 months...I have PV

Discussion: Polycythemia Vera or Essential Thrombocythemia ?

Support Group: Blood Cancers & Disorders

Posted: May 30, 2024