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116 total results

Comments (99)

No biopsy and none was recommended. That’s kind of why I’m still uncomfortable of the diagnosis...

https://connect.mayoclinic.org/comment/184247/

I’ve also been diagnosed with myoclonus

Discussion: Watching a Meningioma Brain Tumor

Support Group: Brain Tumor

Posted: Oct 26, 2019

gderickson5 Hello, Can you tell us how you or someone else is affected by Jeavon syndrome...

https://connect.mayoclinic.org/comment/763500/

other types of seizures besides the myoclonus

Discussion: Epilepsy medication side effects - hair loss and weight gain

Support Group: Epilepsy & Seizures

Posted: Oct 20, 2022

Hi @ellenanne33, I would like to add my welcome to Connect along with Becky @becsbuddy. I...

https://connect.mayoclinic.org/comment/738115/

encephalomyelitis with rigidity and myoclonus ... Encephalomyelitis with Rigidity and Myoclonus ... Encephalomyelitis with Rigidity and Myoclonus

Discussion: Progressive encephalomyelitis with rigidity and myoclonus (PERM): Help

Support Group: Autoimmune Diseases

Posted: Aug 16, 2022

Hello @traut4 and @medskush, Welcome to Connect. Here's some information on the topic that may explain...

https://connect.mayoclinic.org/comment/741012/

"The term for this is sleep myoclonus ... , or hypnic myoclonus, and occurs when

Discussion: Body vibrations when falling asleep or waking?

Support Group: Sleep Health

Posted: Aug 24, 2022

P.S. The bed side unit is Merlin Home. The Vendor is St. Jude Medical. I take...

https://connect.mayoclinic.org/comment/103960/

I have back, neck and myoclonus dystonia

Discussion: Pacemaker recipients: Looking for support from others

Support Group: Heart Rhythm Conditions

Posted: Feb 7, 2020

Hi @lizzyliz143, I see that @willows has some further questions for you. Did you see her...

https://connect.mayoclinic.org/comment/753733/

who have experience with middle ear myoclonus

Discussion: Middle Ear Myoclonus and Neuropathy

Support Group: Ear, Nose & Throat (ENT)

Posted: Sep 25, 2022

@ellenanne33, I see you have successfully started a discussion in the Autoimmune Diseases Support Group to...

https://connect.mayoclinic.org/comment/817473/

encephalomyelitis with rigidity and myoclonus

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Blog: About Connect: Who, What & Why

Posted: Feb 26, 2023

I had similar symptoms that kept me up hours during the night as many as four...

https://connect.mayoclinic.org/comment/835032/

neurological tests, I was diagnosed with Myoclonus

Discussion: Both legs sore during day and spasm during sleep. Muscle twitching.

Support Group: Brain & Nervous System

Posted: Mar 31, 2023

Question: With BFS, does anyone else experience twitching in the toes? I started similar things around...

https://connect.mayoclinic.org/comment/777104/

and it seems to have come with sleep myoclonus

Discussion: Benign fasciculation syndrome (BFS)

Support Group: Brain & Nervous System

Posted: Nov 25, 2022

Hi @fela0218 . Thanks for asking . His follow up on Monday went well !! Thank...

https://connect.mayoclinic.org/comment/1173097/

involuntary movements that seem to be myoclonus

Discussion: Benign fasciculation syndrome (BFS)

Support Group: Brain & Nervous System

Posted: Nov 13 9:37pm

@jrangel1 is this the link you wanted to post? Paraneoplastic Syndromes Associated with Lung Cancer (ectopic...

https://connect.mayoclinic.org/comment/318186/

degeneration, paraneoplastic opsoclonus-myoclonus

Discussion: PMR and Cancer

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Aug 2, 2020

Hi @kimabooker. From experience it sounds like a few things but really depends on what they...

https://connect.mayoclinic.org/comment/132198/

www.mayoclinic.org/diseases-conditions/myoclonus

Discussion: Daily random shocks throughout body

Support Group: Chronic Pain

Posted: Dec 29, 2016

Slightly different topic, but I have started having (mild) jerking and twitching in my hands, but...

https://connect.mayoclinic.org/comment/765589/

I think it might be myoclonus, but my

Discussion: Muscle Spams and Neuropathy

Support Group: Neuropathy

Posted: Oct 26, 2022

Hello, just wanted to give an update. I saw an ENT today. He was super nice...

https://connect.mayoclinic.org/comment/811015/

that he does think I have middle ear myoclonus ... said TMJ doesn't cause middle ear myoclonus

Discussion: Thumping/drumming in one ear

Support Group: Ear, Nose & Throat (ENT)

Posted: Feb 13, 2023

I have myoclonus leg jerks any time I get drowsy. They hurt. I can imagine how...

https://connect.mayoclinic.org/comment/265623/

I have myoclonus leg jerks any time ... movement disorders (both at night) and myoclonus

Discussion: Have you ever had hiccups with or after chemotherapy?

Support Group: Cancer: Managing Symptoms

Posted: Jan 24, 2020

I started with the same symptoms in one ear in August. It has come and gone...

https://connect.mayoclinic.org/comment/979856/

comments that this is MEM (middle ear myoclonus

Discussion: rapid thumping sound in left ear

Support Group: Ear, Nose & Throat (ENT)

Posted: Dec 13, 2023

@caprice123. I am newly diagnosed but I've had "it" over a year. I thought it was...

https://connect.mayoclinic.org/comment/182523/

may have a second dx: diaphragmatic myoclonus ... research described my symptoms as d. myoclonus

Discussion: Camptocormia (bent spine syndrome or BSS): Looking for others

Support Group: Spine Health

Posted: Oct 15, 2019

Hi . Thanks for replying . Well …, he was promoted in his job so trying...

https://connect.mayoclinic.org/comment/1159231/

What did your doctor Said about the myoclonus

Discussion: Benign fasciculation syndrome (BFS)

Support Group: Brain & Nervous System

Posted: Oct 18 10:03pm

@bill54321 Hi Bill, I developed Exaggerated Sleep Myoclonus 10 years ago, as a reaction to a...

https://connect.mayoclinic.org/comment/270899/

Bill, I developed Exaggerated Sleep Myoclonus ... Also, there are 8 different types of Myoclonus

Discussion: Periodic Limb Movement Disorder

Support Group: Sleep Health

Posted: Jan 16, 2020

Yes in regards to vibrations and jolts and twitches especially when laying down the other day...

https://connect.mayoclinic.org/comment/790275/

toe, I read about it it’s called “MYOCLONUS

Discussion: Post Covid internal vibrations & hair loss

Support Group: Post-COVID Recovery & COVID-19

Posted: Dec 30, 2022