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105 total results
Comments (101)
I'm 70, ET-CALR. On HU + ASA x 6 yrs. Blood counts stable in 400s. If...
https://connect.mayoclinic.org/comment/1296573/
I would certainly consider Peg or Besremi
Good luck with the Besremi. I have been taking it for about a year and a...
https://connect.mayoclinic.org/comment/1235142/
Good luck with the Besremi. ... since first month of treatment with Besremi ... So far so good on the Besremi.
I have now had 7 Besremi injections, number 8 coming up on Wednesday. The side effects...
https://connect.mayoclinic.org/comment/1321409/
I have now had 7 Besremi injections,
After visiting the hematologist at Fred Hutch in Seattle, she sent me a letter informing me...
https://connect.mayoclinic.org/comment/1156023/
They agreed to put me on Besremi and
Hi @eferret. Sounds like you have a good team behind you with your local hematologist and...
https://connect.mayoclinic.org/comment/1156861/
both concurred with the switch to Besremi ... When do you have your first Besremi
Hi all, Just an update to my Besremi adventure. After a few months off Besremi, my...
https://connect.mayoclinic.org/comment/911825/
Hi all, Just an update to my Besremi ... After a few months off Besremi, my liver ... switched from a doctor who did not like Besremi
Hi @janem411. That first day with a new med is always a little stress inducing, isn’t...
https://connect.mayoclinic.org/comment/1154065/
☺️
Besremi is an injectable
According to a study I read, HU has no benefit to middle aged ET patients unless...
https://connect.mayoclinic.org/comment/1296523/
Seems like Pegasys and Besremi are $6k
Thank you, I am hopeful/ encouraged by the progression in medical technology and that I was...
https://connect.mayoclinic.org/comment/1210468/
for Pegasys and am also looking into Besremi
Aloha.. I have been taking Hydroxyurea 500mg daily for over 20 years. I still have my...
https://connect.mayoclinic.org/comment/1321243/
transitioned to P.V. so I am starting to take Besremi
Just turned 67 and found I have ET and JAC2 mutation through a blood test and...
https://connect.mayoclinic.org/comment/1197829/
I’m on Besremi ( cannot take Hydraea
I’ve had ET for over 30 years now and have done quite well just on hydroxyurea....
https://connect.mayoclinic.org/comment/1321109/
My hematologist said I should start Besremi
I started using Besremi (I do not live in the U.S.) in March. My platelets were...
https://connect.mayoclinic.org/comment/1296284/
I started using Besremi (I do not live ... and very grateful I have access to Besremi
Recently diagnosed with ET/mild PV, I too am about to start treatment for the first time....
https://connect.mayoclinic.org/comment/799853/
Hematocrit level down, then get my first Besremi ... I was surprised to be offered Besremi
66 year old male, diagnosed ET with JAK2, June 2024. Last week my haematologist gave me...
https://connect.mayoclinic.org/comment/1211108/
gave me the choice of starting HU or Besremi ... On his advice, I opted for the Besremi
Hi Lori, I'm waiting to hear the results of a "financial aid" application for Besremi. I...
https://connect.mayoclinic.org/comment/912216/
financial aid" application for Besremi
I have heard of shin pain from others in ET support groups. Seems to have been...
https://connect.mayoclinic.org/comment/1279993/
but at my clinic, if you are taking Besremi
A good question is: What symptoms might I have that I should call the office to...
https://connect.mayoclinic.org/comment/1272284/
post on another thread), ask about Besremi
Hi @bharty615 Generally, a bone marrow transplant is reserved for extreme conditions such as leukemia, MDS,...
https://connect.mayoclinic.org/comment/1079339/
aspirin, anagrelide, Interferon drugs~Besremi
I'd be interested in knowing more about why yr doc is suggesting the switch. Am on...
https://connect.mayoclinic.org/comment/1294006/
Besremi is very expensive in the US,
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