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Comments (10,000+)

Hello @tojk, and welcome to Mayo Clinic Connect. I'm glad you found this online support group...

https://connect.mayoclinic.org/comment/1216332/

glad you found this online support group

Discussion: Leg atrophy on Camzyos

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 19 9:40am

I'm also 2 years out from my Septal myectomy. I too was very active and physically...

https://connect.mayoclinic.org/comment/1208419/

Russian Kettlebell strength training group

Discussion: Post septal myectomy

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 10 1:03pm

bjwilliams thanks; just yesterday I read it (very interesting) and joined the group. And posted something...

https://connect.mayoclinic.org/comment/1216515/

(very interesting) and joined the group

Discussion: Grover disease: is a final healing possible???

Support Group: Skin Health

Posted: Jan 19 11:45am

Well, your concerns are absolutely valid. Seems like a very challenging surgery. Have you gotten a...

https://connect.mayoclinic.org/comment/1214984/

was inoperable, but finally found a group

Discussion: Carotid body tumor encasing completely carotid artery

Support Group: Neuroendocrine Tumors (NETs)

Posted: Jan 17 1:17pm

Hi Colleen, thank you for your kind words. We are doing fine. I am getting over...

https://connect.mayoclinic.org/comment/1215888/

are with you and the others in this group

Discussion: Dealing with a Spouse with a “Mild Cognitive Impairment”

Support Group: Caregivers: Dementia

Posted: Jan 18 4:01pm

Wow! A Raynaud's Group! I've had it since 1976 and only officially confirmed it this month...

https://connect.mayoclinic.org/comment/1216931/

A Raynaud's Group!

Discussion: Raynaud's Syndrome: Anyone want to talk about Raynaud’s?

Support Group: Autoimmune Diseases

Posted: Jan 19 8:34pm

Seeing a psychologist who works with seniors can be very helpful. Nice that this can be...

https://connect.mayoclinic.org/comment/1213482/

I organize luncheons for a group of

Discussion: What are your tips for staying independent at your own home?

Support Group: Aging Well

Posted: Jan 15 9:21am

@vegita182 there is a support group for those with BE/NTM under 50-ish. I could be a...

https://connect.mayoclinic.org/comment/1217810/

@vegita182 there is a support group ... the link for a calendar of support group

Discussion: What’s the youngest person to have MAC?

Support Group: MAC & Bronchiectasis

Posted: Jan 20 9:31pm

There is a woman from my church who offered to go to a support group/grief group...

https://connect.mayoclinic.org/comment/1217566/

church who offered to go to a support group ... /grief group for spouses.

Discussion: Why can’t people stop giving empty hope?

Support Group: Loss & Grief

Posted: Jan 20 3:04pm

Well, possible, likely, don't know. Given your clinical data, I'd consider not hitting the panic button....

https://connect.mayoclinic.org/comment/1217999/

things you know - Gleason Score, Grade Group

Discussion: I am worried about recurrence 16 years after RRP.

Support Group: Prostate Cancer

Posted: Jan 21 8:47am

Following up on this after my meeting with my team at Mayo Rochester. For anyone with...

https://connect.mayoclinic.org/comment/1218733/

There really isn't a better group

Discussion: Does anyone else have AML with ddx41 genetic mutation?

Support Group: Blood Cancers & Disorders

Posted: Jan 22 8:24am

I appreciate your nervousness using a newish heart drug. I was too, however the alternative of...

https://connect.mayoclinic.org/comment/1218891/

This Mayo Clinic group of wonderful

Discussion: Anyone take new drug Camzyos (mavacamten) for HCM?

Support Group: Hypertrophic Cardiomyopathy (HCM)

Posted: Jan 22 10:33am

Yes, I am very happy to find this group. Thank you

https://connect.mayoclinic.org/comment/1219060/

Yes, I am very happy to find this group

Discussion: Newly diagnosed ascending and descending aorta

Support Group: Aortic Aneurysms

Posted: Jan 22 1:19pm

I'm sorry you are correct, I was wrong about there being a scoliosis group here. In...

https://connect.mayoclinic.org/comment/1219177/

wrong about there being a scoliosis group ... get some views and responses in this group ... and they definitely have a scoliosis group

Discussion: T10 to Pelvis Fusion. Experience, Comments Appreciated

Support Group: Spine Health

Posted: Jan 22 4:25pm

Hi Jeff @jeff97, Artificial Intelligence is moving really quickly and I think it can be helpful...

https://connect.mayoclinic.org/comment/1218022/

of the lead researchers in the AI group

Discussion: Artificial Intelligence in action

Support Group: Polymyalgia Rheumatica (PMR)

Posted: Jan 21 9:10am

Hello, Diagnosed in February 2024. Treatment is INQOVI. I get frequent blood and platelet transfusions. No...

https://connect.mayoclinic.org/comment/1219841/

How can I join a support group (via

Discussion: Waldenstrom's: Should I take the new medication (rituximab)?

Support Group: Blood Cancers & Disorders

Posted: Jan 23 2:06pm

Until you get used to the ticking time bomb, you'll be nervous. Even once you adjust,...

https://connect.mayoclinic.org/comment/1218667/

This group is great because we all have

Discussion: Newly diagnosed ascending and descending aorta

Support Group: Aortic Aneurysms

Posted: Jan 22 7:31am

Hi @bri3sd Welcome to our Head and Neck group. Swallowing likely will be a challenge for...

https://connect.mayoclinic.org/comment/1211773/

bri3sd Welcome to our Head and Neck group

Discussion: Swallowing hard 7 wks after radiation: Will it get better?

Support Group: Head & Neck Cancer

Posted: Jan 15 5:34am

I was diagnosed 2 1/2 years ago and my wife was diagnosed 15 years ago so...

https://connect.mayoclinic.org/comment/1209849/

weights, boxing, gardening, join a PD group

Discussion: How to Relieve Fatigue?

Support Group: Parkinson's Disease

Posted: Jan 12 11:23am

I went to my PCP with some PMR muscle aches in the usual areas, however I...

https://connect.mayoclinic.org/comment/1220374/

I don't believe the mdical group

Discussion: Can PMR (Polymyalgia Rheumatica) be induced by vaccine?

Support Group: Polymyalgia Rheumatica (PMR)

Posted: 6 days ago