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1,156 total results
Comments (1,069)
Good morning, @jose10. What a lovely thing to say!! This is one of those really ‘feel...
https://connect.mayoclinic.org/comment/1458352/
ET (essential thrombocythemia) or PV
I was diagnosed 3 years ago with PV and positive for Jak 2. I take 2...
https://connect.mayoclinic.org/comment/869702/
I was diagnosed 3 years ago with PV
There's a lot to take in! Our blood has four main components: White blood cells, red...
https://connect.mayoclinic.org/comment/1211059/
HU treats both ET and PV.
The previous oncologist said it was fine to take turmeric. I read that there were studies...
https://connect.mayoclinic.org/comment/1291267/
there were studies saying it may help PV
@ubear56 I think it makes sense that having periods with that blood loss could alleviate the...
https://connect.mayoclinic.org/comment/1405987/
loss could alleviate the symptoms of PV
I was nervous about flying from all I’ve read about PV and blood clots. I was...
https://connect.mayoclinic.org/comment/851224/
about flying from all I’ve read about PV
Aloha MW2023.. yes. found you!. I had a trend of increased WBC, HCT and within a...
https://connect.mayoclinic.org/comment/1330240/
I asked if I was transitioning to PV ... its not approved for E.T. but for PV ... doctor and ask if transitioning to PV
Erikaerika, I just looked at NIH.gov and as of 2020 the median survival age of people...
https://connect.mayoclinic.org/comment/799775/
caseload of rare diseases like, ET, PV
Yes unfortunately that is true. For years after my mom passed from Myelofibrosis I donate to...
https://connect.mayoclinic.org/comment/982569/
But once I got my diagnosis of PV, I
I also have no energy as I try and help my son on his new house...
https://connect.mayoclinic.org/comment/897003/
drop the dose.I am not sure if it is PV
Hi: It's a mixed bag of views. Some say phlebotomies can manage PV, but most don't...
https://connect.mayoclinic.org/comment/1188589/
Some say phlebotomies can manage PV, ... me to believe that they caught her PV
Posted by dmiles @dmiles, I have 9 rare disease (few since birth), I Just have symptoms...
https://connect.mayoclinic.org/comment/802779/
overlapping symptoms and need to know PV ... My PV was skip over for years, passed ... questions (next have list of what PV ... (I've spent days researching PV) ... than men
56% Men are diagnosed with PV
Welcome to Connect, @eferret. Polycythemia vera is from a group of blood conditions called myeloproliferative neoplasms....
https://connect.mayoclinic.org/comment/1125122/
PV is frequently caused by a gene such ... with the JAK2 gene that caused your PV
A year and a half ago, I presented a hemoglobin of 7g with no evidence of...
https://connect.mayoclinic.org/comment/915865/
I’m labeled as having PV and have been ... in the literature about anemia with PV
It’s a comfort to know you and others had the same initial experience when diagnosed. My...
https://connect.mayoclinic.org/comment/1280121/
But, he never told me PV was cancer. ... It was only when I googled PV that I
I have PV and experienced hair loss when taking Hydroxyurea 7 days a week but it...
https://connect.mayoclinic.org/comment/1211910/
I have PV and experienced hair loss
I have PV secondary, Jak2 positive. I was on Hydroxyurea for about 8 months, but side...
https://connect.mayoclinic.org/comment/1195446/
I have PV secondary, Jak2 positive.
PV can cause occasional blurred vision. My eye doctor said we are prone to clots so...
https://connect.mayoclinic.org/comment/1168906/
PV can cause occasional blurred vision
Hello, I was diagnosed with PV in Jan 2023. Taking Hydroxyurea just 3X a week currently...
https://connect.mayoclinic.org/comment/1114376/
Hello, I was diagnosed with PV in Jan
I’ve been having monthly blood tests (CBC) since my diagnosis of PV in 2021. My doctor...
https://connect.mayoclinic.org/comment/1367747/
tests (CBC) since my diagnosis of PV
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